which meds for ADHD work for you?

Jennifer - posted on 01/04/2010 ( 528 moms have responded )

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I have struggled with if I should use meds or not but I have tried everything else and nothing seems to help. So after seeing the dr today they want me to see what meds I like best out of concertra, dexedrine or strattara (I hope I spelled them right..lol) I am so confussed and would love to know what others used or are using and if they work or not. I am new with this and could use all the help I can get, any info would be great.I don't know if it helps or not but my son is 8.
Thanks,Jen

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Angela - posted on 10/05/2012

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I'm giving my 13 year old fish oil1,000 mg 3 times a day and he is still on ADHD meds. He just started on a new one. He always maxes out on his meds. But he is also Bipolar. The ADHD he just started is Daytrana patch.

Amy - posted on 10/03/2012

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Hi Ruth,

My son is on Intuniv too. Worked great for a year and a half...now is not working at all. In fact, he has been a complete basketcase lately! Cries at the drop of a hat for nothing, mixed with melt down temper tantrums that we haven't seen in over a year. It's aweful!



Good luck,

Amy

Jennifer - posted on 10/02/2012

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My son is going to be ten and has been on concerta for the past five years; I find this one has the least side effects .

Ruth - posted on 09/27/2012

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Just put my son on intuniv and it has been amazing!! For the first time in a long time we are getting great reports back from school!

Amy - posted on 09/25/2012

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Lloyd,

You sound like a spokesperson for the legalization of marijuana. LOL



Surely, there is something you can do besides smoking marijuana that will help you. I'm glad your better, just hate that it has to be something illegal. And - I agree with you about the cocaine comment. I too feel that stimulant drugs for ADHD are in the same class as cocaine. Unfortunately, that is what seems to help a lot of kids. I do not give it to my son anymore, but I certainly understand why parents do it. In a lot of cases, it's the only treatment that works :(



Amy

Lloyd - posted on 09/25/2012

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I am not a mom but I am a single dad I was diagnosed with adhd when I was around 10. The meds the doctors gave me never worked infact made things worse in alot of ways. I became unsocial, very moody, crying for no reason, unable to sleep, inactive, and depressed with alot of thoughts af suicide that i never shared with anyone. I myself tried marijuana when I was around 14 and it did better than any medication my doctors ever put me on. Now dont get me wrong I AM NOT telling you to hand your child a joint nor will I ever hand my children one. My children doesnt know I use it and I haven't or ever will use it around them. I am just telling you that it alleviated my problems with adhd. I became focused and calm and able to sleep. For the first ever I had made A B honor role, my mood swings were no longer there, I stopped being such a little prick and actualy started having a social life and started feeling better about myself. I became more focused and able to concentrate on completing any task. I finished high school with a 3.5 GPA and the same in college. I own my own buisness and own my house out right at the age of 33 so please dont judge me and lable me as drug addict and a bad parent. I am no more dependent on this [drug] as your kids are on the ones they are forced to take. I am just letting you know what worked for me. I do not think giving any child a synthetic form of crystal meth or cocaine is good for them in any way shape or form and thats all most of these drugs are.

Sandra - posted on 09/24/2012

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My older children have used concerta, strattera, and rispodal



My 5 year old was just diagnosed with ADHD. I have known for sometime that he had it but didn't want to medicate this young. Two of his brothers started meds in 6th grade and one has never had them although he is ADHD. All of them were very well behaved at school through at least 2nd or 3rd grade. Then a few minor problems.



He has been getting in trouble daily since he started kindergarten in August. He has been in mother's day out, preschool, then 5 day a week pre k with very little problems. I made the appointment not only to get conformation but to see what the dr suggested I do about school. I didn't plan on sending him until he was 6 then I changed my mind and registered him at the beginning of the year. Now I couldn't decide if I should take him out and put him back in a pre k program or home school for kindergarten.



The doctor said that she would not suggest that I let him reenter kindergarten next year. She thinks that he is probably either gifted or has a high IQ. That plus the fact that he has been raised with 4 teenage brothers and is "street smart" she feels like he will be way above the level that the younger class would be. He would still be ADHD plus bored. We talked about it and I agreed to try medication for two weeks and see how it goes. He started 5 mg of Focalin (he is only 5 but very big for his age) on Saturday. I took him to work with me on Saturday and he tried my patience all morning. Around 11 he calmed down a little and we made it through the day. On Sunday he spent the day coloring and writing words most of the day. He also played hot wheels for awhile and played with another little boy.



Today was his first day to school on the meds. He came flying off of the bus today to tell me that he got outstanding on his behavior chart today (the highest mark) and it was so easy! He told me that he didn't talk or shout out one time all day. Today is also the first day he didn't forget his backpack on the bus and have to run back and get it. He got some gummy worms from the teacher for a reward.



This is the same little boy that has been walking from the bus stop dragging his backpack like it had the weight of the world in it. Whenever I asked him about why he had done something at school he would cry and say that he tried to be good but it was too hard.



He has no idea that he is taking the ADHD medicine. He takes meds for asthma and allergies and ear infections so he hasn't questioned the new one. The doctor and I discussed things while he was out looking at the fish. So there is no Placebo effect.



If he continues to do this well and has no bad side effects I will continue the medicine.

Amy - posted on 09/23/2012

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Good job Christal!

My son started on stimulants when he was 6 yrs old and took them for almost a year. He lost a LOT of weight, stopped growing, started developing tics and his behavior was not much better than when he was off the medication. The side effects were terrible! Not worth it.

Now he just takes Intuniv in the evenings. He's calmer than off medicine and it helps him just enough that he doesn't need the stims.



Amy

Christal - posted on 09/23/2012

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hi, my son is 4 gonna be 5, he was prescribed ritalin n i was so scared to give it to him, he was on it 2 days n would go into rages that he never had!. Threw the ritalin in the trash, then he was given adderall, he became toooo focused in things n began being overly emotional n sad, i took him off after 2 day, adderal in the trash. 2 days later, he started having this tic with his ears, shoulders, and itchy neck, n now eye blinking!. My son never had Tics, I am sooo Livid, the doc never told me this could happen..He is now on Tenex for the Tics n ADHD. All the tics went away except the eye blinking which seems to be going away now, Thank God..Im still guilty of even giving him the stimulants, but i have to remember why I gave it to him, B/c i wanted him to feel better, not so high strung and on the go all the time. Now, it seems the Tenex is working..It takes about 3 weeks to a month to see full effect but worth the try

Sandy - posted on 09/17/2012

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Dexedrine, although old fashioned is the only one my daughter and I never had bad side effects from using. The short duration is nice, so you r not medicated all of the time.

Kay - posted on 09/14/2012

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My daughter (now 8) has tried Ritalin, then the Daytrana Patch. About a year ago we started with Vyvanse, and it has been amazing. It's long lasting and it has a very easy uptake, and come down. This helps not only through the school day, but also through homework time. The Vyvanse is usually out of her system after about 10 hours. Don't be surprised with the weight loss....it's scary and you have to stay on top of it. Usually after a month or so, the weight will start to come back as the appetite increases.

Catherine - posted on 09/10/2012

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My 8 year son has ADHD and I didn't want to put him on medications, but eventually I had to. We put him on Strattera near the end of the school year last year, and it took awhile to see the difference. But this year, he is like a different person. He stays focused on his schoolwork, he remains in his seat, he doesn't talk out of turn (most of the time, he is 8 after all), and he is generally well behaved. Homework is no longer a struggle and when i described his previous behavior, they were shocked because he is so well behaved.

Ellen - posted on 09/05/2012

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I've tried many ADD meds and finally found Vyvanse 20 mgper day and Ritalin 10 mg once a day as well. I was orig on a very high dose of Vyvanse 50 than 60 mg, that made me insane! I chewed my fingers until they bled. I couldn't relax at all. My body was so tired but my mind kept telling me to go go go. I also started smoking (I socially smoked only, very rarely) I was up to a pack a day! Now I'm on the lowest dose w/the Ritalin. I actually take the Ritalin in the AM, I gets me going and I am focused. And then around 10 am I take the Vyvanse. I'm very happy with the results! Also an FYI-Vyvanse has a coupon to use (is usually good for 6 mos) that is a huge money saver! Just go to their website a print it out or when u go to your Dr for the med chg, they usually have the coupons right in the office. Ive worked in Dr's offices for over 20 yrs so I know they keep this stuff on hand from the pharm reps. Just ask. Good luck!!

Val - posted on 08/29/2012

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My daughter is 8 yrs. old, she has been on adhd meds since she was 5. We did not go through a pediatrician for medication because they started kids much later and I did not want her to get behind in school (she also was having great difficulty just sitting in class-that was impossible). If they are asking you what you want your child to take for his adhd that should be a red flag right there. The nuerologist we go to in San Antonio told us what he was going to use with her and why. He even went into the molecular structure of the medication and why it worked the way it did. From my research the best people to in the medical community to prescribe such medications would be a pediatric nuerologist or pediatric psychiatrist. At this time we have our daughter taking focaline and intuniv. We are having very good luck with them. Good luck with your son Jen, and may God Bless you all. Valen

Amanda - posted on 08/28/2012

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Every child is different and you may have to try several different ones before you find the right one. For our 6 year old it took 3 before we found the right one. The first one we tried was 2.5mg of dexmethylphenidate twice a day. That one was okay but it didnt last through the school day. His doc then switched him to 10 mg of focalin xr. This was horrible for him. It made his ODD way off the wall and his doctor was not listening to our concerns and would not switch him. We than found a new doctor and this doctor diagnosed him with ADHD and ODD which made ALOT more sense! We are now on vyvanse 30mg a day and we have seen such a huge difference in attitude, behaviour, and focusing. Our child is also mentally delayed and we even notice a difference in his speech! So far we are liking vyvanse and he is still eating very well and growing appropriately for his age. Most meds you will have to watch is your child loses appetite or stunts growth or even developing tics. Meds is a very tough decision to make but for some it is needed.

Bri - posted on 08/25/2012

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Kids don't outgrow ADD/ADHD. I just don't want you to be surprised when your child is an adult living with the disorder.

Sarah - posted on 08/24/2012

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i found stratera and fish oil together good but it took a while to getmy daughter on the correct dosefor her weight x

Tatia - posted on 08/21/2012

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My son has been taking ADHD meds since he was 3. He's 8 now and is on 60 mg of Vyvanse and 2 mg Intuniv. Those seem to do the trick for him and he's not drugged up like a zombie.

Meme - posted on 08/15/2012

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Dear Jennifer
My son is 16 ,he start taking strattera ,it is a great medication.I like it but he doesnt like it because he wants concerta.Tommorrow I go to my psychiatrist to ask him for low dose of concerta and increase dose of strattera to 100mg.Just pry for me.

Val - posted on 08/14/2012

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I started my daughter on meds at 5 she is now 8. Now after a year from H____, we have her taking 10 mg. foculine, and 3 mg intuniv, and it works. The worst medication regime for us was 30 mg. vyvance and prozac, Yikes! A joint colaberation between her teacher and nuerologist (not a good speller). Hope that helps you, there are so many combinations out there, good luck my friend.


Val Ford

Heather - posted on 08/14/2012

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what is the additional benefits to fish oil Omega 3-6-9? Any other diet tips you can give me other than no sugar and dies.

Maya - posted on 07/13/2012

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Hello. My son was diagnosed last year when he was 6. He was started on Ritalin 5mg twice a day and it was almost immediately we saw improvement we all were so happy with it!!! ..... UNTIL... after about 4 months he developed a horrible tic in which he would roll his neck/ shrug his shoulders and then kick his leg out if sitting..when standing, it would be a hop. I was so devastated when it started. Gradually it would get worse and worse. He was then sent to a neurologist who diagnosed him as having Tourettes Syndrome due to the Ritalin. Now me being the mother and put him on the meds, I felt like the worse person ever! Ok, so he was took of the Ritalin and put on Orap 1mg to help with the tics and Straterra for the ADHD. Straterra didn't work as quick as the other but after a week or so I was seeing progress. It was working well for the 5 months he was on it.(although the tics from the Ritalin are still present) Slowly it started having its affects first my son couldn't stay awake after 2:00 in the afternoon, even at school.. nothing could keep him awake, so the Dr lowered his dose from 25mg to 18mg. The sleepiness was no longer an issue, but now he has these terrible fits of rage and anger, which he has never had ever. Its almost as if he is not the same child he once was! Its hurting me so much that we cant find something to help my son.. Im worried about taking other stimulants because of the risk increasing the tics and the Straterra just isn't working. If anyone has any suggestions they would be greatly appreciated! Thanks Maya H

Val - posted on 07/12/2012

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Trust me, people in the school system really do not know anything about ADHD. Even though there are so many kids with ADHD that they work with. It just floors me the ignorance about such a well research subject with some many people having the condition. If I were a teacher I would want to know about they things effecting the population I was working with. I had to tell administrators and cafeteria workers that my daughter was not eatting her lunch because she takes ADHD medications and they suppress her appitite. At least one of her teachers keep telling me that she is just being picky, (I just decided to not even discuss it with her, she would never understand). Even though loss of appitite is on the documents from the pharmacy and from the doctors, I still have to explain this to the same people every year. Go figure. Val

Jennie - posted on 07/12/2012

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Way to go!! You know what's best for your child. Doesn't this teacher know that when kids are on their meds that they're not hungry? No matter if the teacher let's the child eat as many snacks in class they are not going to eat it because they are not hungry. So far my son has had great teachers and I hope that continues. Good luck with everything.

Jennie - posted on 07/12/2012

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My son is on Ritalin LA 20mg. It works great. The only down fall is his appetite. He's just not hungry. His dr prescribed risipidone and he's gaining weight now. When I first put my son on meds for his ADHD I didn't want to do it either. I decided to give it a try 3 1/2 years ago. I think it was a good decision because he was always getting into trouble and unable to finish his class work. His self esteem was so low and he tried so hard to control himself. He would tell me I tell my brain to do this but it doesnt work. I felt so bad for him because I know he tried so hard. Who cares if people have opinions about giving kids meds. They don't walk in your shoes. My son is 9 years old now and of course everything isn't perfect but it sure is a lot better. He has also been diagnosed with aspergers too. I knew some of his behavior wasn't just ADHD and other drs wouldn't listen too me. I changed drs and a year and a half later was diagnosed with aspergers. Good luck with everything and do what you think is best.

Amy - posted on 07/12/2012

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Great job Nicole!
You are a wise Mom :) I noticed also that after I took my son off his stimulant (He was on 54mg of Concerta), he was not getting in any more trouble than he was when he was on his med. But the school STILL bullied me trying to get me to put him back on his med. His teacher would call and say "why did you take him off his medication, he was doing so well." I wanted to say "BULL SH**"
But I held my tongue. It was hard. I told her I was trying to get him to gain weight. Then she said "well, he can just bring in a lot of snacks and eat at his desk all day while he's working." Then she said "I'm not noticing he's eating any more than he was when he was on his med." She was trying everything she could for me to cave in and say, "Oh, ok. Well I will just put him back on his medication then."
When I put my foot down and said I was absolutely NOT putting him back on drugs, she just shut down. Wouldn't talk to me any more the rest of the school year. Just sent home nasty notes in my son's book bag saying how bad he was acting. I didn't care. He was happier at home, gaining weight, and sleeping better. Best decision I've ever made.

Amy

Nicole - posted on 07/11/2012

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My son was on 36mg concerta, 10 mg ritalin and risperidone. Didn't seem to help much. Always in trouble at school. He wasn't gaining weight. He wasn't happy. They had him on Adderall and he didn't do well. I was called into school a lot for him getting into fights. His doctor actually took him off medication 4 months ago. He is doing a lot better. He is gaining weight. He is happier and he sleeps. He is still hyper and has a lot of problems focusing doing school work. Doesn't seem the have the problem at home. We have a reward chart for him. It seems to help a little. Since taking him off the medication we have had the school social worker bug us about him not being medicated. They so badly want him back on medication. We are happy his off medication. His doctors are happy with how his doing.

Val - posted on 07/09/2012

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Her psychologist used to do it, but his office space decreased so I was glad when I learned about it. Today I found out we were accepted I just have to beat the deadline to get her registered, (we are going on vacation and the deadline is the same day we get back. We may just come back a day early. I hope this will be the easier on both of us next year.

V

Amy - posted on 07/09/2012

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I hope she gets in! That would probably be good for her :)

Actually, my son's play therapy is with a licensed therapist, not me. I thought it might be better to do it that way, so if he has anything he wants to talk about and doesn't feel comfortable talking to "Mom" he can vent to her. LOL

Val - posted on 07/08/2012

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Wow, you are going to love the play therapy session and he is going to get a lot out of them. You will learn a lot about each other as well. I went to a workshop with a friend of mine on play therapy at a church here in San Marcos. I was glad I did it, and my daughter stills wants me to start back with our "care group" at home. I keep looking for something else, something new. Last year was so bad I am waiting for a call from the area charter school. They know she has ADHD and have no problem with it. I think we may have moved up the list. We will see:).

Amy - posted on 07/08/2012

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Trust me, I understand where you are. And I also believed that my son's teachers were doing what was best for him. It is very disappointing to learn that teachers these days have far too many students and want to do anything and everything to make their work days easier.



But, we really have to think of our kids first. We are, after all, their only real advocates. My son can be quite difficult, yes. He doesn't listen most of the time, but I love him more than anything else in this world. He is healthy (has gained 5lbs in 3 months), happy, and a wonderful blessing. His health has improved a LOT since I took him off Concerta! Plus, I can sleep much better at night knowing he is not on any mind altering drugs that are addictive, and even illegal on the street :) It is amazing how many times his Pediatrician increased his stimulant in a year and a half. And I let him!! I felt so much guilt, and realized I had to just let it go, and start doing what was right as soon as possible!! So I did :)



We have also started play therapy. He really enjoys it, and it is helping him too...



Amy

Val - posted on 07/08/2012

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Wow, I wish I would have known more, and stood up for her more. I will remember those words. I was so niave. I never thought an educator would worry about anything but her students. Now I have heard of educators who have required so much medication that some of thier students were in a stooper. I have been there with you where my child was so thin she just stayed sick (pnumonia, influenza, etc.). I do not plan to be in that position again. I am just going to have to be a lot more persistant.

Amy - posted on 07/08/2012

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Don't let your kid's teachers bully you into medicating your children! After all, they are YOUR kids, not the teacher's.

My son's teacher called me twice a week last school year telling me I needed to put my son back on his meds after I stopped them in the spring because he had gotten so skinny. First she bullied, then she begged. But I finally told her that my son's health was more important than making her day easier!! If she can't handle it, she needs to find a new career!



Amy

Val - posted on 07/08/2012

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Jennifer,
We are using 3 mg. of intuniv and 2 mg. of foculine right now with my soon to be 8 year old daughter. It is working pretty well. Her personality seems to show through the meds and they wear off with little problem. We also give her 2 mg of melatonin, for relaxation and sleep at the end of the evening. To medicate or not to medicate is a hard question. I felt I had to do so in kindergarten, she had a teacher that just was not going to tollerate anything, so we found a nuerologist. We changed the teacher because we found out that she was denying snacks to our daughter because of her behavior. The next teacher was awsome, and we could have gotten away without meds but we had already started the evaluation process and medication regime. From that point on we were on the medication "rollercoaster." That was a mess, because it was very teacher dependant and she went through some very difficult times. Second grade in particular. Our physician got very frustrated and we ended up having to see someone in a different city (that threw away about 12 bottles of medications she had been on and off, and at that time she was taking three medications and threatening suicide. I wish I could have waited. Right now everything is stable, and we are waiting to hear from a school that we have been on the waiting list for. I will just say this wait as long as you can, and read as much as you can. Good luck. Valen

JM - posted on 07/06/2012

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I also struggled with putting my son on meds for years.. He suffers from Generalized anxiety and Tics. He is now almost 13. To top it all off, he was recently diagnosed with ADHD. He has been on lexipro for a year now which has been great. We tried Kapvay for his ADHD & impulsivity, but it did not do anything. Today we just started Straterra.. Hoping it will work better.. Good luck!

Val - posted on 06/14/2012

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Jennifer,
To medicate or not to medicate, that is the question. I will give you a bit of our story and I hope it will help you with your delimma. I sort of knew we were headed in the ADHD way when my daughter was 3 years-old, but her pediatrician thought I was jumping the gun. When she was 5 and would not sit down in kindergarten, I went back to her pediatrician and once again he would not do anything, but said if we wanted an evaluation or medication we would have to go to a specialist (nuerologist), and so we did because we had no other choice, we were told she would fail kindergarten otherwise.
I felt the same way, should we give her medication. The nuerolgist said one thing that made me convenced that medication was right. He told me that kids with ADHD had smaller brains than their counterparts, and that medications increased gray matter in the brain (or over all brain size). I thought about it, if she could learn more she would have an increased brain size. He also informed us that these medications have been used since the mid or early 1900's.
On the other-hand after the first year we had to go through a ton of medications, looking for a combination that worked. Meaning lots of changes, size effects and a medication roller coaster that seemed unending. Three years and two specialist latter we are still waiting to see if this comibination works (intuniv and foculin). We went through crying and tantrums at school so extreme that she had to come home. Right now all is well. She seems to be doing great after a really difficult year. These kids grow out of their meds and school clothes for many years. Keep that in mind if you decide to medicate. I think we did the right thing now that she is stable, but it was really hard. Not everyone has such extreme complications or side effects. Whatever you do good luck and God be with you all. Keep in mind that it is a very competative world and education can be the key to getting ahead. If ADHD is standing in the way of grades you may want to consider medication or alternative approaches. My daughter is now 7 (8 next month), she has really good grades and was even on the A/B honor roll this year. I worry about her future every day, as I am sure you do too. Good luck with your decision. Val Ford (robixqueen@yahoo.com)

Kellie - posted on 06/13/2012

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I am one of those mothers who felt terrible about giving meds. By grade one, it was obvious that my son needed meds for school. I did not give on weekends/holidays. Now, at the end of grade 3, I am still struggling with side effects. I am trying to keep him on meds every day now. I am told that side effects stay a problem when they go on and off. Hopefully a full time commitment to vyvanse will ease the problems. It is a hard thing to deal with. They go to school off meds and all hell breaks loose. They go to school on meds and teachers are happy and your child accomplishes what they need to, but come home, no lunch touched, not hungry, regular rage outbursts... makes you think you are doing the wrong thing but there is nothing you can do. Many days are indeed a struggle.

Mildred - posted on 05/25/2012

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All these post are so sad. I notice that everyone has had some sort of mishap with meds. I tried concerta with my son and soon after it wore off it was ugly. He would just mope and cry and become apathetic. It was horrible. I am definitely not a meds advocate, but if it works well then it's ultimately your choice. I just pray for all the mothers out there. I feel your pain. Public schools don't even understand and maybe one day there may be a chance that their little brains may develop those areas that are lacking important functions that cause for ADHD. my prayers are with you and your children.

Val - posted on 05/08/2012

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From my experience none of them. Life with a child with ADHD is a medication rollerc oaster. I am just in year three of the wild roller coaster ride, and everyone says there comes a day when something will work and there are no more changes. But all I can see is the next hill on the roller coaster.

Amy - posted on 05/04/2012

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Thank you for your reply Angie.
Sounds like you have a lot of experience with the trials and tribulations of ADHD. It is so hard!

My 7yr old ds does so well when he get TONS of exercise, but when he skips it for several days, he is aweful again. He was diagnosed a year ago by a Pediatric Neuropsychologist. She was wonderful. It is such a daily struggle with him. I am thankful for such a sweet loving little boy, but I really hate ADHD! I feel like it's robbing him of his childhood. He has a hard time making and keeping friends and a hard time focusing at school. It just doesn't seem fair.

Amy

Angie - posted on 05/03/2012

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My child has been diagnosed with ADHD for 3 years now. His father has ADD. We have tried many different routes, done sleep tests, neurologists, all different meds.in order to find a routine. The key is to find what is best for you and your family and do it. Getting there is very tough, took us a couple years and we still sometimes have fall backs, but I would not always listen to other people's opinions. Listen to your gut. Yes, often children are diagnosed incorrectly with ADHD when they don't have it, then they are medicated which is wrong. If your child requires medication because of ADHD, who cares what other people think. I have 3 kids, only one has ADHD. He is medicated on adderall and we do use a diet of low sugar, no dyes,often gluten free, however, we also allow him to occasionally indulge because the meds cause low weight and loss of appetite and he is a kid. I also choose to deal with the craziness on weekends and not medicate. We tried a lot vitamins and supplements through a holistic doctor but he is still too young to take 40 different things a day to help clean out his system ,especially when they are bad tasting(we will try this again as he gets older and matures some) so we currently give him the essentials-of course we use all natural vitamins and supplements such as Perque. He takes a multivitamin, high dosage of DHA which helps with brain function and a calcium supplement and a probiotic. Will he ever grow out of this? I don't know. We also have gone through several therapists and psychiatrists in order to find ones that specialize in children and do an excellent job. So I do think therapy and behavior management can also help immensely. Just remember, everyone has an opinion or a book these days but you sometimes just have to get down to the science of it and use trial and error. http://www.feingold.org/Research/PDFstud...

Amy - posted on 05/03/2012

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HI Cindy,

Sounds like your son is doing well. That is great. I am very happy for you!



We are struggling right now with my ds regarding whether or not to give him his stimulant anymore. He started with Focalin XR 5mg last March, then increased to 10mg 4 months later, then increased to 15mg 8 months after that. He had terrible tics @ 15mg so we switched to Concerta 36mg. Not enough, so we went up to 54mg. He is also taking Intuniv 2mg in the evenings. All this has happened over a one year period. At this rate, he will be on 108mg of Concerta by next school year, and he's only 7! He's a baby. All this "speed" can't be good for his little body!



I am SOOOOO FRUSTRATED! He is so over-medicated, and I am really tired of his school and his doctor (especially his school!!!) pushing me to drug my child!! Honestly, we get just as many phone calls from the school when he doesn't take his Concerta as when we do give it! The only difference I notice at home is that he is a little more focused. That's all. He's no less impulsive.

My son is 7 and a half years old, 50inches tall and 50 lbs. He is in the 30th percentile in weight for his age. He has dropped from the 45th percentile 6 months ago to the 30th percentile as of last week. He is skinny. Too skinny. But his school doesn't care about that! They even called me today and said "well, we don't notice he's eating any better since you stopped his stimulant" That's bull! I weigh him at home. He's gained 1/2 a lb over the past week alone, and that's a lot for his little frame. The scale doesn't lie! I weigh him first thing in the morning, in his underwear, before breakfast...every time.



When he takes his Concerta we fight CONSTANTLY to get him to eat. It is a daily tantrum at dinner time. A daily tantrum at snack time, when he gets home from school. A daily tantrum even at breakfast. I hate it. Our lives are hell. I am tired of fighting with my child over food! It's not worth it to me. He begs me not to give him his stimulant, and I don't blame him.



Now I give him his 2mg Intuniv in the mornings before school and he is hungry all day. He eats great, but the teachers keep bugging me about putting him back on his stimulant. They say he is impulsive. So what?? He was impulsive when he was ON his stimulant. I STILL got just as many phone calls from his school when he took his Concerta, so why in the world would I put him back on it?

I really hate the public school system. I have no more problems with him at home than I did when he took his Concerta, so it's hard for me to believe they are having any more difficulty with him there. They just want him to be a drugged out zombie so their day will be easier.



Sorry, but I have had a tough week and I need to vent...Thanks for listening :)



Amy

Cindy - posted on 05/02/2012

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My husband and I started our son on Ritalin LA when he was 7 years old, just before he started 2nd grade. We had agonized over the decision of whether or not to give him medication, but he was having such a hard time in school that we decided it couldn't hurt to try. His doctor at the time recommended Vyvanse, a stimulant, but I was dead set against using a med that had so little history behind it. Ritalin has been around for many years and its benefits and side effects are well understood, so that's what give our son. The LA (long-acting) Ritalin means that he doesn't have to take a 2nd dose in school (he would have to go to the nurse to get that 2nd dose) and that saves him from embarassment. Almost as soon as he started taking it, we saw his focus improve as well as his behavior. His behavior improved DRAMATICALLY, mostly as a result, I believe, of being able to FOCUS in school. He was less frustrated because the medication helped him become available to learn -- as he was able to learn, his self-esteem soared -- which led to calmer, and all-around better behavior. I definitely think we made the right decision to help our son by giving him ADHD medication -- having said that, it is not a cure-all. Our son STILL needed intensive, one-on-one and small group instruction outside of the classroom -- for READING and WRITING, because he has dyslexia! That's very common with kids who have ADHD. I advocated for services and it took a while but he started getting the help he needed from his elem. school and NOW he is reading ON GRADE LEVEL!! (5th grade).
We are so thrilled for him!! He is a smart and loving little boy and just needed the right combination of specialized instruction and focus medication, plus a loving and supportive family. In the last year or so, we started giving him "holidays" from his Ritalin -- he does not take it on weekends or during the summer. This way, he will eat regularly (side effect of Ritalin is it can suppress the appetitie) and grow properly. It's been a long haul, because we really didn't know how to help him -- and it will continue, I'm sure, to challenge us -- as he grows into a teen and possibly decides he doesn't want to take meds!! But for now, it's wonderful. I hope this helps. Don't ever lose faith. Good luck! Cindy L

Amber - posted on 04/29/2012

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we are using guanfacine for our 5 year old and he has made amazing improvements at home and school! we are so thankful!!!!

Lisa - posted on 04/25/2012

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I have not heard of a patch for Vyvanse. My daughter has a clonidine patch that she wears all day to help slow her down. It has helped some. The one thing for me is when the day comes for a new one she has a hard time with going to bed. My daughter was on concerta. But her body burned threw it. Just make sure the Vyvanse doesn't go up fast. I learned that the hard way ( Vyvanse from 30mg to 50mg now back down to 30mg). But with the new doctor she has he plans on keeping an eye on things better then the last one.

Jennifer - posted on 04/22/2012

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I liked concerta for my son. The Vyavance caused alot of trouble for my son. He is now 9 and was diagnosed with ADHD when he was five. Each child is completely different so it is hard to say what would be the best for your lil guy. Just please make sure you go with your mom instincts and don't let the doctors try and step on your feet when it comes to your child, you know him the best. I know from experiance that changing meds is an walk on egg shells experience in some cases. Please make sure that you really read and research each med. Some side effects can be missinterpeted as a new mental condition or phase. Not to scare you but it took my son being hospitalized to find out that not only was the new med not doing him any good but he was diagnoised with couple more things. After telling his dr that this new med was not right for him and my son is on a visious down hill slide the dr would just keep raising his doesage. So as per med can be an great tool to help our children, There are so many things to keep in mind.

Alyssa - posted on 04/22/2012

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My son is 7 and he was diagnosed last year. They have him on 20mg of Vyvanse. I have to send his meds to school bc he gives me such a hard time taking his meds in the morning and I didnt want to fight with him anymore. He really needs to start taking his meds on the weekends and I asked about another form that was easier and would work like a patch. The doctor told me there was not unless its just because she knew my insurance didnt cover it. Do you know how that works with certain insurances covering it or do you think all insurances would since it is a diagnosis from the doctor? Do you know if only certain states have this med or do all?

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