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Lauren - posted on 06/18/2009 ( 3 moms have responded )

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Hello, My name is Lauren and my son Quentin was born 5/30 But it was an emergency c-section because we were having a hard time with his heart beat.....he had a heart defeat and had to have open heart surgery. We thought he was not going to make it! He went to CHOC. He had only a 20% chance of living.....They didnt think he would even make it tell the transport team from Choc to get there. He had what they call Transposition of the Great Arteries (TGA). So at 5 day old he had open heart surgery it was very hard for us to go thought. On top of all this my husband had to work everyday...plus we had to move because there was black mold in our home and the landlord would not fix it! So when he was discharged from the hospital we didn't have a place to go for awhile. So we had to stay at the Ronald McDonaid house that had been staying at when i got out of the hospital. There is so much more that happen. my life was turned upside down in just mins. I also had to give up our dog because we could not have him with a baby that just had heart surgery. They odd thing is my grandpa is a cardiologist and helped make the heart and lung machine that he was on. He is almost 13 month soon and he is the love of my life. I would do it all over again just to have him.

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Mindee - posted on 01/09/2010

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Lauren, I am so sorry you and your little one have had to go through this. How terrifying to have your newborn taken from you for surgery! Although the first 5 months were terrifying hoping we could keep our daughter calm and alive, we didn't have to hand her over to the surgeon until she was 5 months old. It was still a heart-wrenching experience. Our little Annibelle has since had another open heart surgery, and 3 days later had to have another surgery for a pace maker. Our dear 'Tetralogy' baby is now 15 months old, 1 month post-op, and seems to be doing well. Life will hold more surgeries for her, and some restrictions, especially because of her pace maker, but I pray our little ones will overcome and rise above these trials. We are so blessed to have them in our lives!
I am now expecting baby #2, and am praying for a perfectly healthy baby.

Angie - posted on 11/09/2009

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Hi Lauren, I'm Angie and my little girl Maci was born with TGA-VSD-ASD and Hemangiomas around her voice box and vocal cords She has donor tissue in her heart and She is 16 months and doing good she did however just start with some narrowing we take her back in Jan. for her EKG and Echo to see what's next

TNell - posted on 10/04/2009

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Hello Lauren, my name is T'Nell. My son has HLHS. We were fortionate to know ahead of time, and my son had his first surgery at 6 days old. He is now three and has had three open hearts, 6 Cath labs, and one pluraldises (outer lung area ) operation done so far. He is active and doesn't know he has half a heart most of the time! :) I hope you have a great day and it is nice to meet you!

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