Jennifer - posted on 04/15/2010 ( 6 moms have responded )
I created this group because there doesn't seem to be many places online for mothers whose children have survived bacterial meningitis.
Our daughter fought for her life in the ICU and then neurology main floor at Children's Hospital in DC due to group b strep bacterial meningitis. We lived with her in the hospital for a month and were so blessed to be able to bring her home. She has since been able to begin bottle feeding and no longer needs a feeding tube and we've been working with PT, OT, and vision therapists to work on building back her strength after all that she's gone through. Her hearing is intact, but we know that she definitely has vision issues. We've been working on tummytime, teaching her how to roll over and play with her toys. As a result of the meningitis, she has a handful of health issues including diabetes insipidus (which is an inability to produce ADH which tells your body to hold onto its fluids). She also takes anti-seizure medications and we've been weaning her from her hydrocortisone to see if she can produce cortisol.
If you're a Mom who had to go through bacterial meningitis with your child, it'd be great to hear your story, where you're from, and the challenges and health issues you're child is facing.