Sickle Cell

Erin - posted on 12/14/2009 ( 8 moms have responded )

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The metabolic screaning they did on my son came back for positive for sickle cell anemia. I know that doesn't mean he has it, but that does mean he could have it. My son's father is not involved in his life and I don't know anything about it. What is the likeliness that he will have the disease? Is it expensive to treat? Is it life threatening? Will it significantly effect his life?

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GHANA - posted on 03/27/2013

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WELL I AM A 26 YR OLD SINGLE MOM AND I BEEN DEALING WITH SICKLE CELL ALL MY LIFE AND I HAVE THE WHOLE DISEASE. ITS ROUGH ESPECIALLY WITH ME HAVING A 5YR OLD LITTLE BOY. IM IN PAIN EVERYDAY. I BARELY GET TIME TO MYSELF BECAUSE IM A SINGLE PARENT AND MY SONS FATHER IS IN HIS LIFE BUT HE RATHER BE LIVING HIS NEW LIFE WITH HIS FIANCE INSTEAD OF HELPING ME WITH HIS SON WHILE I AM SICK. IT IS TOUGH AND SOME DAYS IT GETS BETTER

Ashley - posted on 01/19/2010

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my step-son has the trait, we were told by his doctor that because he is bi-racial he can ONLY have the trait and its nothing to worry about, that later on down the road if he were to get with another black and white female or a black female that has the trait or sickle cell anemia there is a chance his children can have it , so unless the doctor tells you there is something to worry about don't stress over it , my step-son was 5 when we finally found out he had the trait because his BM didnt know

Patricia - posted on 12/17/2009

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Both parents have to have the trait for it to be passed on. Even then with every pregnancy there is a 1 in 4 chance for the infant to obtain it but a 2 in 4 chance to become a carrier and 1-4 chance to not have the trait that is if both parents are carriers. If one has the condition and the other is a carrier the chances increase to 2-4 chance to inherit the disease and 2-4 chance to be a carrier and 0 chance to not contain the trait. If only one parent is a carrier and the other is not then 1-4 chance to be a carrier and 3-4 chance not inherited.

Chesslee - posted on 12/17/2009

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I have asked alot of question about this and al the doctors have told me that bi-racial children can be carriers but it is almost impossible for them to haveit. The only way they can have it is if both parents have the trait and it is mostly a black trait. SoI wouldn't worry but as your child gets older they need to be made aware if the fact they have the trait

Stephanie - posted on 12/16/2009

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Are you sure he really has it. Our son took the test, and he only has the trait.

Emili - posted on 12/15/2009

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my sons screening was the same and they did another test that revealed that he only has the trait and not the disease. they will probably be doing another test for you. until then just pray! god bless!!

[deleted account]

Sickle cell anemia is a condition that is more prevalent in the Black community. It can be life threatening if your child has a sickle cell crisis, which can be caused by many things such as stress, illness, exposure to cold temperatures, etc. Most if not all people with this condition require blood transfusions. People with this condition also have red blood cells that are sickled shape instead of rounds and thus cause tremendous pain. They have more hemoglobin than necessary and usually need supplemental oxygen. I am a registered nurse and but would like to tell you that the test you had is not definitive and your child may just carry the trait. Having sickle cell trait means that if your child was to have kids with another person who carries the trait; there is a high possibility that your grandchild will have sickle cell anemia. I hope this helps you but just talk to your doctor for further information.

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