One Healthy and One Not So Healthy

Kim - posted on 12/01/2008 ( 6 moms have responded )

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Jason, 4, no health problems whatsoever. Jacob, 6 months, born with Hirschsprungs Disease.

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Kelly - posted on 03/25/2011

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Can anyone tell me if maybe they could miss this diagnosis when they are born. My 17 month old has had chronic constipation since he was a month old. He cant go to the bathroom on his own without a stool softener. We have had him on mirilax since he was 3 months and if I miss one day he gets constipated. We have been seeing a GI doctor for the past 4 month and now they want to send him to get a biopsy to see if he has hirchsprund disease. My worry is I dont want to send him in for this just as a guessing game but each time he is screaming going to the bathroom kills me, Anyone have any insight this or know of a great GI doctor in the Boston area???

Kim - posted on 02/20/2009

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Glenda,



I forgot to tell you, Jacob's condition is Total Colonic.  I think I've blocked somethings out when it comes to this.  I don't mean to, everything just happened so quickly after he was born.  How have you dealt with things?



Kim

Kim - posted on 02/20/2009

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Hi Glenda.  Jacob is due to go back to CHOP on May 6th for yet another check up and at that time, his surgeon will go ahead and schedule the first of 3 surgeries.  He told us previously that he will NOT do everything in one.  How old was your son when he was diagnosed?  Jacob was just born when they had an idea that it may be Hirschsprungs.  Where are you located?  We're in South Jersey.

Glenda - posted on 02/20/2009

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hi i have a son 14 months with hirschsprungs (long segment), he is going for his pull thru in the next month. If i can be of any help just shout.

Leyla - posted on 01/13/2009

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Kim I know considering surgery for your infant is terrifying but have you talked to a GI specialist about pull through surgery? If you have not it is a surgery where they take a portion of the colon that is not affected and literally pull it through the part that has no ganglion nerves and sews it over that portion. People typically have large sections of the colon that are unneeded and typically Hirschsprungs only affects a portion of the bowel. Good luck with your little guy and God bless

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