Does anyone's children have coeliac and lactose intolerance?

Leeann - posted on 10/13/2009 ( 13 moms have responded )

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My almost 3 yr old has coeliac. So thought i would get my son that is 1yr old test..Blood test came back negative. But the pediatrition seems to think he my develop it later in life,so just keep him on a gf diet cause gluten isnt good 4 u anyway.

The problem is that his poo is still bad we r excluding dairy from the diet (i thought gluten free was hard) ha.. We should know by the end of the week..So my question is does anyones child have both and if yes how do u cope? thanks

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Priscilla - posted on 11/23/2010

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My 5 year old is gluten intolerant (not as extreme as celiac) and lactose intolerant. He is old enough and unfortunately aware enough to remember the pain he went through before being diagnosed. He ended up in the hospital because he passed out on me while experiencing the excruciating pain. He likes the Silk vanilla milk and we have a local grocer here that carries an amazing tasting store brand lactose free milk and cholocate milk. We buy him almond milk ice cream but he doesn't quite care for it and isn't a big ice cream eater so that's not an issue. I've found a very good gluten free bread mix that I make in the oven. The brand is Gluten Free Pantry. It's delicious. He also loves pancakes and the best tasting brand we've found is maple Grove Farms. Glutino Gluten Free Pretzels are AMAZING! I find all my GF items at our local grocery store. For the most part, pastas taste the same as well. We try to push veggies and fruits as much as possible. Going gluten free hasn't been that bad at all for our family. I wish you the best!

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Elizabeth - posted on 11/02/2011

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Hi Leeann, It is very common for kids with celiac to also have lactose intollerance. My son is both dairy and gluten-free. We substitute almond milk, rice milk and coconut milk in most everything and he is now totally used to it.
It is a difficult thing to go through but your son will feel so much better soon! I hope my blog can be of help: www.thepurepantry.com/blog

Jenna - posted on 06/08/2011

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Plus I wouldn't have said it was a good idea for ur 1yr old to be totally gluten free as when the time comes for him to be tested again he wont show any damage if he is! Toy should still try and give his at least a slice of bread per day to keep it innhis system then if she shows symptoms they he can be retested. When they are tested you need to be on a diet with gluten present for at least 6 weeks prior to the test for it to be correct! Hope that helps!

Jenna - posted on 06/08/2011

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My daughter doesn't have both but her poo is still hard. I asked her consultant about this at her yearly review and it's due to the lack of fibre intake for coeliacs.

Danielle - posted on 10/30/2010

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My four year old son was diagnosed late may with celiac and we are gluten free now trying lactose free as his stool is still not right. It does get easier it takes a lot patience!!! My son is incredibly picky stopped eating meat at one and likes very few things.

Laura - posted on 04/30/2010

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My son has celiac. He also has problems with dairy. (milk allergy and intolerance) I put him on some probiotics and it really seemed to help him with both. If you want to try it, send me a message and I will send you a link to where I got it!

Lacy - posted on 03/11/2010

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I'm quite certain that my little girl (5 months old) is lactose intolerant and celiac. Does anyone know which formulas are both gluten free and lactose free??

Barbara - posted on 01/16/2010

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My son started life as lactose intollerant, or so we thought. Yes, it is extremely common for someone to be both. The reason being that celiac disease attacks the small intestines and eats away the cillia (the tiny hairs that line the inside of the intestines). This makes it difficult, if not impossible to properly digest food. With lactose, it takes a somewhat large amount of work to fully digest so with an already damaged system things are even worse. Neither of my children tested positive with blood tests. My son had a celiac crisis and was deathly ill for several months. The day I took gluten out of his diet I saw a drastic improvement within about 12 hours. My daughter on the other hand showed no more than weak teeth. Her teeth decay from the inside out. A sure sign of malnutrition. We immidiately started her on the diet. The good news is this... often times the lactose intolerance will go away. Not always, but much of the time, esp in children, as the intestines recoup and the cillia regrow the lactose problems disappear. If this does not go away, I'm of no help to you. Every health issue my kids had have now disappeared, and they barely get a sniffle any more. The best I can offer you is hope. No matter how hard it seems now, things WILL get better. That much I can promise! ;)

Kristy - posted on 01/16/2010

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I am a celiac myself, and realized that I am lacotse intolerant. I was told that once my body has healed from all the gluten damage I may find that my lactose intolerance has gone away. I was told that the damage done to the intestine can also damage the part that help digest the lactose. Keeping my fingers crossed for myself and your LOs :)

Ce - posted on 12/07/2009

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It is hard -- however, we have just discovered that in addition to celiac's our son is lactose intolerant, fructose intolerant, and allergic to soy. Gluten free is actually the easiest part. Hang in there -- it takes time, but you'll find produts you'll like!

Samantha - posted on 11/06/2009

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It does seem complicated at first but as soon as your child starts feeling better you will do anything for them. My son is on a GF lactose free diet and there are many chalenges but seeing him healthy is so rewarding. Fruit and veggies, are the best treats and you know they are free of everything. It does sound boring but at 3 they don't really know. Hang in there it does get easier day by day honest!

Terri - posted on 10/23/2009

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Leeann,
I have a 2 1/2 yr old son with Celiac and a 1 1/2 yr old daughter who is negative for Celiac but is lactose intolerant. The GI dr also recommended that we keep her on a GF diet as well, just because it is easier for digestion. We have chosen to let her eat food with gluten and she has done well. I have found that excluding dairy is definately harder than GF. We do the best we can and she is doing well with changing her milk to "Lactose Free". I use that in cooking now but she still eats cheese, yogurt, etc. It is very difficult, but you do what you can. Good luck!

Carolyn - posted on 10/22/2009

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It is common for celiacs to be either lactose intolerant or casein intolerant. If it is just lactose intolerance using lactose free dairy products will help but if it is a problem with casein you have to avoid all dairy products. Goat milk and cheese are tolerated by those with casein problems. My oldest is celiac and lactose intolerant.

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