I belive my son is celiac and I'm in need of some advice, what should I do?

AnnMarie - posted on 10/12/2012

My son went back in for his 3 yr follow up and we opted to do the blood work instead of doing the endoscopy. Thankfully the blood work came back negative at this time. I have never put him on a gf diet as I feel as though his last scope was inconclusive. But on the other hand, since he has the gene for celiac, it can change at any time. Plus my son is now old enough to tell me if his tummy hurts and if it stays constant, then we will go back for the scope to be done. Good Luck, its a hard road, but once you get your answers, its smooth sailing if you have access to gf food.

AnnMarie - posted on 10/12/2012

My son went back in for his 3 yr follow up and we opted to do the blood work instead of doing the endoscopy. Thankfully the blood work came back negative at this time. I have never put him on a gf diet as I feel as though his last scope was inconclusive. But on the other hand, since he has the gene for celiac, it can change at any time. Plus my son is now old enough to tell me if his tummy hurts and if it stays constant, then we will go back for the scope to be done. Good Luck, its a hard road, but once you get your answers, its smooth sailing if you have access to gf food.

Evie - posted on 10/02/2012

Hello! My 3 year old was just diagnosed last week.He had all these symptoms for months before a great pediatrician in Greece found the reason. The thing is that you should put your kid back on a regular gluten diet for a while and then make him have a blood test which shows if he has celiac.However if he has been off gluten the test won't show the real results. So even if your child has celiac disease and he has been off gluten for a while the body heals and he won't show. After the blood test he will have an endoscopy and biopsies will be taken to confirm the diagnosis. So don't eliminate gluten from his diet until he is diagnosed.All the best of luck to you and your little one!!

AnnMarie - posted on 01/23/2012

Hello! If there is anything I can tell you from my experience, you need to find a doctor that cares enough to do further testing. If the blood work comes back negative, doesnt mean that his body can handle products with gluten. My son was diagnosed with Celiac Disease back in 2009 and he was just turning 2. We went into to see a gastro specialist because he was wet burping and had diarrhea all the time. He had a bowel movement while we were there and the doctor said he thinks he has celiac disease and immediately opted for the DNA test which did come back positive. The next step was an endoscopy, which meant he had to be sedated and that test came back inconclusive. He will be 5 this summer and we are due for another endoscopy. I am hoping he is just a genetic carrier and wont ever need a gf diet, but it can go either way at any moment. And with him being older and able to express pain,. when the time comes, I know he will be able to tell me. No one else in the family has been tested, so we dont know if it comes from my side or dads side. But I am hispanic and it is more rare that I would have it compared to my hubby, he is white. Good Luck and Dont Give Up!