Angel - posted on 12/04/2008 ( 12 moms have responded )
Hi! I am new here. I have 4 kids and we are all gluten intolerant, though I have one child that is a traditional celiac.
We were dx through a lab online called Enterolab. I HIGHLY recommend it! I tested myself first. They also did genetic testing on me and found that I have one celiac gene and one non-celiac gluten sensitivity gene. I also had antibodies to gluten in my stool. When I went in to the dr. however I did NOT have a positive blood test which led to the dx of non-celiac gluten intolerant. My dr. was very interested having not heard of Enterolab, but deeming them reliable after looking into it.
Since I had 2 genes I had all 4 kids tested for gluten antibodies in their stool and they ALL had it! Most of my kids seemed totally fine, big, healthy, etc. I was totally surprised. But now that they have been GF for almost a year, if they eat something with a little gluten they feel very sick!
My Celiac child hugged me for the first time after being GF for 2 weeks. He had just turned 6. It turns out he also has an actual allergy to wheat that affects his brain. Food can be so weird!!
After finding this out about my family I encouraged my parents and siblings to get tested as I know I had to get a copy of each gene of mine from each parent. It turned out that my dad had a celiac gene and a non-celiac gluten intolerance gene and very high antibodies and a terrible, terrible test score indicating bad inflammation. His dr. had been trying to tell him for years that his vast intestinal issues were nothing! Yeah right!
My mom had 2 non-celiac gluten intolerance genes and also antibodies and intestinal malabsorbtion. She has had no intestinal issues whatsoever, but many other issues like fibromyalgia, sleep issues, depression, etc.
My sister also had one of each gene and antibodies to gluten. She has had juvenile rheumatoid arthritis and seems to be feeling better since going GF.
My brother also had 2 non-celiac GI genes and antibodies to gluten and had seemed to be a healthy young man but feels even healthier being GF.
SO gluten can be causing damage and you can have no symptoms whatsoever. ick!
Most of us also tested positive for dairy antibodies in our stool through Enterolab.
I would HIGHLY suggest that you guys consider getting the rest of your family tested through Enterolab. A negative blood test doesn't necessarily mean that gluten isn't causing trouble, just that it likely isn't traditional celiac. But this does obviously run in familes. I am so glad we got all our kids tested. :)
I look forward to getting to know you all!!