what to do with the test results?

Heather - posted on 02/09/2010 ( 9 moms have responded )

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My daughter is 3 and had a celiac panel done about a week and a half ago. I was told that all levels were in the normal except her aga igg test was 20.6. I think the nurse said under ten was normal. Does anyone have any information on this or can help me in any way? They said that she was negative for celiac even though the aga igg level was high. Please help me with any advice.

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Heather - posted on 05/19/2010

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Thanks for your help; everyone. It was a blood test. The problem with the elimination diet is her only symptoms are constipation and low muscle tone. They did not want to do the biopsy. Thanks anyway, I feel Im at a dead end again

Nancy - posted on 03/30/2010

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Heather, did they recommend any further testing? I believe that your IgG can be elevated with many food allergies also. Just a thought.

Rebecca - posted on 03/01/2010

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Not sure what test this is - The IgA tTG normal is under 20. The IgAEMA is either positive or negative. If one or both of these indicate Celiac Disease, they will confirm with a biopsy. The IgG tTG is usually tested when the IgA tTG is in the normal range. IgG tTG is considered normal at 9 or below. It alone cannot confirm Celiac Disease, but can indicate that *something* is attacking the tissue.
You probably want to talk with the doctor about why they ruled out Celiac Disease. You can push for a biopsy, if you want... be aware that even the Biopsy, endoscopy and upper GI can be inconclusive if your child only has gluten intolerance and not Celiac Disease. In my opinion, a diagnosis is not necessary in order to put your child on a gluten free diet. Talk to your doctor about trying the diet anyway.

Heidi - posted on 02/25/2010

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Our numbers were off as well. We had an upper GI and the Dr. saw existing damage. We were told this is the only true way to detect Celiac's.

Toni - posted on 02/25/2010

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It sounds to me like you are not dealing with a Celiac Specialist. I would make sure that you are in fact with a specialist if not, switch to one.

Rebecca - posted on 02/24/2010

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The tests are notoriously inaccurate. Have you tried an elimination diet? I've known several people who have undergone all kinds of tests from numerous doctors who told them they were fine, it was in their heads, or they were just stressed. They went gluten-free and within a week they were feeling better than they had in years. I highly recommend The Gluten Connection by Shari Leiberman. This book was very helpful to me in explaining tests, what they mean, and the hows and whys of gluten intolerance.

Emily - posted on 02/19/2010

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Hey what test did they do? A blood or did they do a biopsy on your daughter in her intestines? Needing to start finding out more informtation so I know what to ask for with my daughters GI dr she has been seeing since around 6 months old....she is now 6 and we are still having issues....constipation, and gerd with for sure breads I know that one for sure becouse with out them she does much better...Emily

Stephanie - posted on 02/18/2010

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that sounds confusing. I would ask a gastro specialist an interpretation of the results. They may recommend further testing to rule out celiac. At a minimum, it sounds like you have lots of questions that need to be answered, so make an appt and get your mind at ease.

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