Moms of Chiari Kids!

A place for moms of Chiari kids to connect and find support. Many of us face special challenges, and need a place to ask questions and vent. Whether you have one child or several, we welcome you to our community!

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Cerebellar slump

Hello! Is there anyone who has a little one diagnosed with cerebellar slump, following decompression surgery? I would love to connect with someone, as our daughter is 3 months...

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cerebellar ptosis (slumping)

I would like to network with other mom's of children that have the cerebellar ptosis aka cerebellar slumping from decompression surgery. My daughter is 10 years old, 2 and a...

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Pain Management

For those of you that have children that are hurting...how is your child's pain managed?? My daughter is 15, and very aware of the dangers of prescription pain medications....

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Daughter has Chiari

My 24 year old daughter was diagnosed at age 22, when she had a "spell" while visiting us in Germany. On the day of the MRI, they found a stage 2 Chiari. Turns out she had...

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Happy Holidays!

I pray that everyone has a safe and happy holiday season! Blessings, Rebecca

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Just checking in....

We are in the process of moving, and things are CRAZY! So, I just wanted to send a quick not to let you'all know that I am keeping your children in my thoughts and prayers!...

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Thanks for joining!

I have been away for several months, and am delighted to see that so many of you have joined. Let me know how I can help you. I'd love to hear ideas or suggestions that would...

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My Apologies!!

I am very sorry that I have not been checking in on this community. It has been a tough summer, as my daughter has had surgery and we are facing a move, unexpectedly. Thank...

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WALK

IS THERE A DATE FOR THE CHIARI WALK THIS YEAR IN MICHIGAN?

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Just wanted to say Hello! :)

Hi, everyone! I wanted to let each of you know that I pray that your children have good days this week. I know that many of you are facing challenges that you never dreamed...