He counts everything he does.

Alicia - posted on 05/31/2010 ( 1 mom has responded )

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8

My 5 year old son was misdiagnosed with ADD, when he actually had OCD. He was on medication for ADD for almost 2 years, but I knew this was not ADD.

It all started three days before his fifth birthday, when I noticed he kept tapping his fingers on everything. He tapped the coffee table in the living room a few times, and he was counting. "One... Two Three....Four...No. One... Two... No.." I asked him what he was doing, and he seemed to ignore me. "Seth, what are you doing? Stop, Seth. Seth..." He didn't listen. He kept tapping his fingers in a pattern of one, one two, one, one two. If he messed up his pattern- he would restart.


A few days later, he was sitting at the dinner table, and he wasn't eating. I asked him what was wrong, and he told me that his foods were touching. "No. Mom. No. I can't. Mom. No, I can't.. Its. Mom. Its touching." He wouldn't eat it. I had to fix his food on seperate plates. Then he ate.

I took him to a phsycologist. They examined him, and put him through several exercises. They noticed a new "ritual" that I didn't notice. He was blinking excessively. He was counting his blinks. He couldn't blink an even number of times, & he didn't blink with both eyes. He would use one eye, then the other, then both. He would do it over and over again.

They sent us home, and we waited on test results.
Seth would curl his toes and pop them, and he would fidget with his hands. He would bite his lips.
We waited almost two weeks for the test results. Seth developed a thing to where he would ask me repeatedly what I had said at any given time. He had a sudden fear of falling sick. He didn't want to go to school. He would ask me over and over to tell him things would be OK. It got exhausting.

When the test results got back, it was no surprise to me that Seth had been diagnosed with Over-compulsive disorder. I've tried flooding him into his fears, by sending him to school without answering him, I've tried taking away things for him to tap on, and putting bandaids on his fingers (This makes the tapping dull, and he has to do it over and over and over again, because its not right.) I've tried everything, and I just feel desperately hopeless.

Any suggestions, please?

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1 Comment

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Michelle - posted on 10/19/2010

189

75

I wish I had words for you to make things easier. Unfortunately, I do not. I do not have experience with this type of behavior. Although my nephew has a few ritual type habits, he has Autism. I might offer a few suggestions on where to find help and what you can do to keep your sanity. First, consult with the therapist. If you feel the therapist is not helpful or you are not receiving answers to your questions, then find another. Keep this up until you are satisfied. Keep in mind that you may hear things you don't want to hear. You may receive answers you don't want or don't understand. That's okay. This is a learning process. This is something you will have to learn how to manage. Taking away his ability to tap on things will only make the behavior worse. It will only frustrate him and make him feel 'not safe'. I have watched a few programs about OCD and have heard grown adults say it they don't do this or that, something terrible will happen. I know you don't want your son to feel like he caused something to happen, even if it is not him or he has absolutely no control over these things. Find a support group near your home. If these are not available, search for an online support group. Circle of Moms is a great tool to use, but it can lack proper information. Find a group by seraching the National Institution for Mental Health ( I think that is what it is called). Search NIMH in google and keep this as a resource. There is a lot of valuable information out there. It will take time, and patience. Try to understand the disease, the mental disorder that your son was diagnosed with. This will help you understand him and what you can do to help him. I wish you the best of luck and wish I had more experience to offer you better solutions. Keep me updated as to what the docs say. I will help you the best I can.