Helen - posted on 02/28/2009 ( 16 moms have responded )
Hi, my Name is Helen and my young duaghter got Alopecia about 4 years ago. It has been really hard to deal with. The hair loss is really not that bad you get over that pretty fast. But how do you get over the feeling of helplessness. This is something I cannot fix. No matter how hard I want to. This illness remains. Each time it occurs it's different. Small spots, all the hair everywhere, larger spots, falling out then growing in, at the same time it is falling out. Strange illness.
It is also hard to watch as your child changes. Spirit goes down when hair falls out. Comes back up when hair starts to grow back in. When your beautiful young daughter buys clothes (dresses/skirts) to wear to school and then won't because her hair falls out just before or slightly after school starts. How can I make her understand that she is beautiful no matter what. With or without hair. When I say this I think she feels I have to say this because she is my daughter. Hope I am not venting too much. I have so many feelings I have been holding onto. Like not letting her see me get upset when her hair starts to fall out or get upset with how fast it is falling out. I have 2 cats at home and I find more of my daughter's hair on the floor then theirs.
Please write back if you have any suggestions or you feel the same way.