Kids on Singulair

Andrea - posted on 03/29/2009 ( 136 moms have responded )

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I was just wondering if anyone else has children on Singulair who have had trouble with night terrors/hallucinations. My daugter has been on Singulair since she was about 4. She is now 8 and just in the last 2 months she started have these scary night terrors where she would have her eyes open and talk to us but she would be crying and seeing things that weren't there. At first we were afraid that she was having some type of seizure because my husband has epilepsy. But then we read up on the side effects of singulair and night terrors was one of them. (as well as hyperactivity, depression, suicidal thoughts and all kinds of other scary things) we took her off the singulair and she has not had a problem since which is amazing because they were happening at least 2 times a week. I can't believe that this started out of the blue after almost 4 years on this med. I was just wondering if anyone else had similar experiences?

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Lisa - posted on 12/09/2014

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I know this is an old post, but I am relating to it and have some questions. My 6 year old daughter was prescribed Singulair yesterday for her allergies because she has been congested since September and Claritin isn't working anymore. After reading all these posts, I really don't feel comfortable starting her on Singulair. I am wondering if any of you have any other suggestions to help clear up my Sweetie's congestion? Thanks in advance!

Marsinah - posted on 08/27/2013

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I'm convinced and relieved after reading previous posts that this is our problem as well. My sweet 12 year old boy, who used to be laid back and full of humor has been taking Singulair for 2 years (the last year or so the generic version). This past summer he has become overly-sensitive, tearful, has lots of anxiety issues, says he sees shadows and hears noises, and is afraid to be alone at night. He's also been feeling guilt for things that are so minor, they're not even worth mentioning (yet he does, . . constantly). This last week he wakes up crying in the mornings and says he says he can't get certain horrible thoughts out of his mind . . . the worst being that he should kill himself. Initially, I thought it was just a severe hormone fluctuation since he's at that puberty age. But now I'm convinced (and hoping ) it must be the Singulair, and currently, that is the only he's been on all summer. We stopped giving it to him last night. I pray it wears off soon . . . I want my son back.

Mary - posted on 08/06/2013

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Hello all, please do not give your children Singulair. I have filed a complaint with the FDA and have not heard anything for over 1 year. I monitor post regularly and sad to say the negative responses from reviewers are not enough to get that drug off the market. My son at 11 years of age was prescibed Singulair and after 6 months these side effects followed: bed wetting, (twice) he never had done this before. Nightmares, constantly!!! And the most troubling was Tics, he would constantly blink his eyes, and they would roll back. Most of all troubling was i didn't put two and two together. I feel guilty that i didn't equate these things soon enough. What happended was I ran out of the medicine and didn't get a refill for about 3 weeks, in the 3 weeks all of the above ceased! After i recieved his refill started him again on Singulair and the side effects started! I immediately took him off, called his Doctor and it was so down played it was pitiful. I was so upset I urged them to put on his records not to EVER give him this drug, nor any similar drug EVER! I turned around and filed a report with FDA.

Please file with the FDA, make a difference, hopefully the numbers will cause this med to be pulled off. As i read other post there were several related suicides wasn't that enough!!!!!! Any questions my email is zappfor3@yahoo.com

Jenna - posted on 12/02/2009

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My son had a terrible time wth Singulair. He took it for about 5 1/2 years starting at about age 3 1/2. He experienced several behavioral and psychiatric side effects which severely impacted the quality of his life. Last year he became depressed and started saying that he wished he were dead so he "wouldn't have to feel this way." Last fall we discovered the connection, stopped the medication, and within a few days observed a dramatic positive change in his behavior and mood. His behavior has continued to improve during the last year.

Our experience prompted me to found an advocacy group to raise awareness of Singulair's side effects and provide support to parents whose children are experiencing adverse reactions to Singulair. I have been in contact with hundreds of parents. One valuable thing I have learned as a result of this contact is that side effects do not always occur immediately when Singulair is started. Parents have reported that side effects began days, weeks, months, or years after starting Singulair. The longest was 2 years. A few parents reported their children experienced side effects after a dosage increase. Looking back, my son's problems worsened after his dose was increased from 4 to 5 mg.

Dream abnormalities (which are what night terrors are) are documented side effects of Singulair (www.singulair.com).

This past June, the FDA announced the findings of their year long safety review of Singulair and required a precaution about neuropsychiatric side effects be added to Singulair's label. Detailed information is available on our website: www.parentsforsafety.org. We also provide a link to report adverse reactions to the FDA. This is VERY important to do because these reports are what lead to labeling changes and research.

Singulair's neuropsychiatric side effects include:
agitation including aggressive behavior or hostility, anxiousness, bad/vivid dreams or dream abnormalities, depression, hallucinations, insomnia (trouble sleeping), irritability, restlessness, somnambulism (sleep walking), suicidal thinking and behavior (including suicide), tremor

Hyperkinesia (which is related to ADHD) is listed on the Canadian prescribing information for Singulair (the link to this document is on our website).

I encourage every parent whose child takes Singulair to monitor their child vigilantly and contact their child's physician IMMEDIATELY at the first sign of any behavior, emotional, mental, or mood changes, or the development of any physical complaints or problems.

Please share this information with other parents. We also have a facebook support group: Singulair Parents. Anyone whose child had an adverse reaction to Singulair is welcome to join.

Marsinah - posted on 08/29/2013

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Thank you so much for the words of encouragement and alternative medicine suggestion. I've scheduled an appt. with his doctor for tomorrow to discuss the issue.

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Rares G. - posted on 11/02/2017

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I am a father of a 5 year old kid with asthma and bad food allergies. The pediatrician recommended Singulair as a substitute for albuterol. He has been much better and that gave us a lot of hope, but this week he started waking up in tears and crying for his mother almost every night about half an hour after falling asleep. He appears scared and shaky and cannot reply to the question whether he had a bad dream. The next day he cannot recall anything but it all looks like something like that is happening. Tomorrow I will take him off the drug. I cannot believe this drug is allowed to be on the market.

Rares G. - posted on 11/02/2017

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I am a father of a 5 year old kid with asthma and bad food allergies. The pediatrician recommended Singulair as a substitute for albuterol. He has been much better and that gave us a lot of hope, but this week he started waking up in tears and crying for his mother almost every night about half an hour after falling asleep. He appears scared and shaky and cannot reply to the question whether he had a bad dream. The next day he cannot recall anything but it all looks like something like that is happening. Tomorrow I will take him off the drug. I cannot believe this drug is allowed to be on the market.

Rares G. - posted on 11/02/2017

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I am a father of a 5 year old kid with asthma and bad food allergies. The pediatrician recommended Singulair as a substitute for albuterol. He has been much better and that gave us a lot of hope, but this week he started waking up in tears and crying for his mother almost every night about half an hour after falling asleep. He appears scared and shaky and cannot reply to the question whether he had a bad dream. The next day he cannot recall anything but it all looks like something like that is happening. Tomorrow I will take him off the drug. I cannot believe this drug is allowed to be on the market.

Rares G. - posted on 11/02/2017

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I am a father of a 5 year old kid with asthma and bad food allergies. The pediatrician recommended Singulair as a substitute for albuterol. He has been much better and that gave us a lot of hope, but this week he started waking up in tears and crying for his mother almost every night about half an hour after falling asleep. He appears scared and shaky and cannot reply to the question whether he had a bad dream. The next day he cannot recall anything but it all looks like something like that is happening. Tomorrow I will take him off the drug. I cannot believe this drug is allowed to be on the market.

Rares G. - posted on 11/02/2017

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I am a father of a 5 year old kid with asthma and bad food allergies. The pediatrician recommended Singulair as a substitute for albuterol. He has been much better and that gave us a lot of hope, but this week he started waking up in tears and crying for his mother almost every night about half an hour after falling asleep. He appears scared and shaky and cannot reply to the question whether he had a bad dream. The next day he cannot recall anything but it all looks like something like that is happening. Tomorrow I will take him off the drug. I cannot believe this drug is allowed to be on the market.

Rares G. - posted on 11/02/2017

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I am a father of a 5 year old kid with asthma and bad food allergies. The pediatrician recommended Singulair as a substitute for albuterol. He has been much better and that gave us a lot of hope, but this week he started waking up in tears and crying for his mother almost every night about half an hour after falling asleep. He appears scared and shaky and cannot reply to the question whether he had a bad dream. The next day he cannot recall anything but it all looks like something like that is happening. Tomorrow I will take him off the drug. I cannot believe this drug is allowed to be on the market.

Gei - posted on 08/22/2017

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My 4 year old daughter was diagnosed with asthma and allergies at 1 year of age. She has gotten better but she takes Singulair on a regular basis to keep from having flare ups. It's helped a lot but she's started having very scary dreams and her detailed accounts of them are terrifying. Then there are the fits of rage. My normally sweet little girl loses her mind. She started acting up at the pool recently so I told her it was time to go. She refused, so I picked her up. She started hitting me hard in the face and told me she was going to stab me with a knife. Then she proceeded to call me a stupid idiot and saying she was going to hurt me and that she hated me. I was at a loss. I've never seen her that bad before. Once she calmed down, she apologized. I have been trying to figure out since then what could have caused this extreme rage in someone so sweet and innocent. That's when I started researching Singulair. After reading a lot of the comments here, as well as other research, I can safely say we're done with it. We'll just deal with the flare ups as they happen. (Just FYI...she was super scary on Albuterol too! She would bite us and threaten to rip our faces off - no joke. Finally I got her switched to Xopenex and that has been much better!)

Celeste - posted on 07/08/2017

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My son is almost 12. He's been on Singulair/Kulair for the past 6 years, and it's kept him breathing easily. Just a few days off and he is tight-chested and wheezy.
His cousin (who also has asthma)is visiting for the holidays, and had an asthma attack late last night. He does not take singulair, and in my desperation, I Googled if it is compatible with his current medicine. Instead of getting the answer, i came across this site. It's almost too incredible to believe what people say.
I am at a loss for words. For 6 years, I've dealt with an extremely passive /aggressive son. My beautiful boy has severe mood swings, talks in his sleep and gets angry for no reason. He withdraws for days and gets very emotional and depressed. All these years i've been blaming myself for not being a good enough mom, even though i know this is not the case (his siblings are all happy and well-adjusted) I've blamed it on my divorce, my ex husband. Recently, I've been researching good psychologists in our area, as his mood is gradually getting worse, and i am at a loss as to what i should do. Almost every one of the 134 comments here explains our experience exactly.
Doctors dont always appreciate self-diagnosis and people's feedback from Google, but i will arm myself with this blog and confront my dr about this. I have unknowingly done this harm to my son, only seeing the good side of the medicine, and not for once linking medicine for breathing to mental dysfunction .
I am appalled to know that this is partly my doing.

Karla - posted on 05/20/2017

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I know that this post is old and so is the comments.

I had a lady at my daughter's school who I am friendly with. I was explaining how my daughter's behavior has been so unusual and unlike her. We had not had to punish her like we had these past two months.

The lady asked me if she was taking any new medications or any type of daily medication because they had a similar issue with their son and Singulair (Montelukast).

I was like oh my I had not realized all these new behavioral problems started with her being on and off of Montelukast per a previous doctor and then an ENT. So we are going to notify her doctor and the ent because it all makes sense now when the issues started and almost identical to what this lady's son went through and what other children I have read about.

I hope to make others more aware that their child's behavioral issues esp if they are new behavioral issues could be related to a medication, even a nasal spray. My daughter was started on two new medications, Montelukast and Fluticasone Propionate Nasal Spray in our situation.

Heather - posted on 05/11/2017

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Hi! I am certainly no doctor but, in 2015 my son was 12 and had been on singular for 5 years. I found this blog through a friend. It literally changed my life.

My son had behavior problems that can only be described as terroristic. When we would talk about it he described being unable to control it. I thought he had a mental illness. At 12 he was bawling his eyes out one day and described the most horrific image and told me he contemplated suicide. I freaked and my neighbor (a psychologist) told me about this blog.

Since taking him off the drug two years ago we have resumed what I would call a normal life. If I recall it took close to 4 months to see changes. I watched him like a hawk for that time and luckily he felt comfortable telling me about his feelings. I can't imagine if he wasn't.

Since then we have also removed dairy and this has helped his asthma tremendously. I wish you all the luck. My advice is to research diet and asthma and keep your daughter as far away from singular as possible!

Kimberly - posted on 10/19/2016

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I do have a 4 year old who has been on Singulair for a year and is extremely hyper and has outbursts. Lately he has been having a difficult time sleeping through the night. At this point, we are not noticing depression but I am considering taking him off this medicine. It is becoming difficult for our family.

Amy - posted on 10/16/2016

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Allergist prescribed this for my 8 year old son, in addition to qvar, which gave him headaches. After reading these reviews, I refused to give him the singulair and also stopped the qvar due to the headaches. Allergist then refused to continue seeing him. Now the pediatrician is forcing us to see a lung doctor. If they prescribe medication, I will have to give it to him or the pediatrician will no longer see him. I stand by my decision to not give singulair to him. We will stick with essential oils.
Thank you for these reviews. Hopefully his next doctor will be more educated.

Donna - posted on 10/13/2016

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My child also has ADHD so even more concerns. The ritalin can cause tiks and outbursts of a night and it seen the singular too. We still use the preventer (purple spray) but stopped the singular. If going to affect any child it will be ours.

Donna - posted on 10/13/2016

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My child also has ADHD so even more concerns. The ritalin can cause tiks and outbursts of a night and it seen the singular too. We still use the preventer (purple spray) but stopped the singular. If going to affect any child it will be ours.

Aine - posted on 10/10/2016

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Thank you all so much for this info on Singulair.4 yr old with asthma.put on this once daily 3 wks ago.no info from gp about side effects.no info inside box and chemist said this med is very good hope it works.well after 1 wk things went wrong.poor child who normally sleeps great waking up screaming.complains of very scarey dreams.every night this week she has woken the whole house screaming as if she is being attacked.also during day getting very aggressive towards her sisters where as normally she is the placid child.I decided to question this drug and now that I see all these posts I am livid that the gp did not mention side effects nor was there any leafet info inside box.She is go 2 go back 2 gp on friday to review and I definitely will be putting repeat prescription in the bin and try a different road of treatment.

Jsirerasalvador - posted on 05/23/2016

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My 16 month old daughter suffers from allergies. We tried zyrtec but she was still coughing a lot. Our doctor prescribed Singulair to take daily. She started taking it immediately. The first thing I noticed is that daughter started to pull at her eyelashes hard like she was trying to pull them out. She would do this mostly at bedtime but sometimes during the day to the point we were putting socks on her hands. Then I noticed she would start having little violent outbursts which she had never had before. She would get mad and hit me or my husband or hit the table, floor, etc. She all of a sudden stopped sleeping well at night. She had been going to bed at 7:30PM and sleeping through the night. She still went to sleep at 7:30 but would wake up about an hour later hysterically crying and would not go back to sleep until I took her to bed with me. She also stopped wanting to be around my husband. He is the one who does bath time which she LOVES. She started throwing big tantrums at bath time and refused to let my husband hold her or read to her. After all of this, I started looking into reviews online. We stopped giving her the medicine 2 nights again and she is already back to enjoying bath time, sleeping all night and not pulling at her eyelashes. We only gave this to her for 1 month. I don't recommend giving this to your kids. Our doctor said that 1-2% have mood changes with this medicine but I am thinking it must be much higher and maybe parents don't notice/or understand that the medicine can cause this behavior :(

Jacinta - posted on 05/14/2016

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Hi eveyone a little update i just like to say that if it wasn't for this group i found i probably would of never of thorght that singular would have those side affects on a child let alone an adult but now it has been 3 1/2 mths since i stopped singular on my 4yr old who had been taking them for nealy a year lucky we trust our mother's instincts when we think something is not right i know where you are all coming from and have felt the same sadness and confusion with frustration but i finaly feel i have my daughter back no more over dramatic episodes apart from the 4 yr old i know it all tamptrums lol but i have noticed she started grinding her teeth REALY bad in her sleep when she started singular and out of 100% she has only calm down about 15-20% its still pritty bad and it most definitely started with the tables i have try all that can realy be done whitch isnt much apart from the dentist tell me all i can realy do now is distrib her sleep but once she is back into a deep sleep it starts again and it is so loud im amazed she still has teeth but apart from that and the topical 4 yr old tamptrums she is doing extremely well an alot better in kindy as she got to start mid last year but the best thing i ever done i must say she had a viral infection about a month ago and it took her nealy week and 2weeks to get over it with also having to hsve a course of steroids (prognisolone) think its the wrong spelling but just had to ride it out with panadol,flixertide jr and asmol but she got throw it and still just on asmol hope you all find some kind of peace and balance and just take each day as it comes with ashmattics and try and keep it under control and if we ever get anything proscribed to our kids do your research like we all have now i hope everyone on this site stays in conversation to better our futures. XoX

Gloria S - posted on 03/24/2016

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I just spoke with my Goddaughter who said a doctor just prescribed Singulair for a 1 year old. I thought this was not the type of drug to be prescribing so freely to a 1 year old. Plus, I had a vague memory that Singulair caused problems for adults when it first came on the market. Seeing the responses, I am going to us my medical background (veterinarian who used to work in the research field) and convince my goddaughter not to give my grand godson this drug.

Word of caution - FDA requires all drugs to be tested in children, even if the drug is not labeled for adults. Where do you think these kid test subjects come from? The unsuspecting public, those on public assistance, and foster children. I actually know of 3 foster children that where used this way.

Jacinta - posted on 02/20/2016

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Hi everyone
Im sorry im not sure if this conversation is still active but i sure hope so,my Daughter has just turned 4 and has been on singular for just over a year and a half now,I was just looking at the side effects ect as we have missed a cupple of tablet and I come across this this page and convention and my heart just skiped a few beats.
For months now I have been wondering what is going on with my daughter a lot more aggressive sad then angry at times I feel like I don't know her and it brings me to tears and now reading all yours post's it all makes sence,nothing has changed around her just starting singular after she had her first ashma attack,she's had bad ashma since 12 mths old if she gets even the slightest bit of a runny nose or cold its on (her ashma) and worsen as she gets sticker over the winter time so she was prescribed singular and her asmol as well,so im thinking well i know what i am going not even consitter giving her onther one of them Pills l fee so bed and blame full for this,I just want my little girl back
Does anyone know have long it takes to leave there body completely and another way of treating bad ashma .???
Thank you
This page saved my little girls life....

Qamarillayl - posted on 01/18/2016

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I am so glad I came across this article. My son is 7 was prescribed singulair 5 mg today for his asthma. I was about to give it to him before I asked myself, Let me google this med just incase. I am totally shocked from the reviews im reading. Thank you so much for your advices. I will never give it to my son. I will definitely look for other alternative treatment.

Jaya - posted on 12/27/2015

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Dear Moms, I told this before and I am telling it again. It is possible to prevent the occurrence of childhood asthma and stay away from steroids and meds that cause unnecessary side effects. It is all about the diet and life style changes that need to be followed very strictly. My child was prescribed 365 days maintenance steroid for her asthma when 3 year old. I did not want to do it for it made my child tremble and jittery. It forced me to follow a set of rules. I wouldn't say it completely wiped out the wheezing. But the occurrence is very minimal and my child is not on any meds. Please read more
http://asthmacurebymom.blogspot.com/2014...

Anna_8503 - posted on 12/03/2015

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My 2 year old son started taking Singulair granules right at 1 month ago for allergies. It has helped his allergies so far, but he has become more aggressive when he is usually sweet and affectionate, very restless at night (taking over an hour for him to fall asleep where it used to take 15 minutes) he is very sleepy in the morning and very emotional (he used to be a happy camper and woke up with a smile) decreased appetite and overall very emotional and irritable. I noticed he had changed but decided it was his age but last night my husband and I were talking about it and determined he started changing right after starting Singulair. I called his allergist and he said to stop it for 2 weeks and then to start giving him 2 mg instead of 4 mg. After thinking about it and talking to some friends, I've decided to not start him back on it. Even if the half dose doesn't make him act and feel different now, I don't want him to eventually need the full dose and then experience the side effects again. I have a feeling this drug will be taken off the market eventually if we all submit our complaints. The pros do not outweigh the cons. I'm hoping it doesn't take too long for my sweet little boy to be back to his old self.

Michelle - posted on 11/21/2015

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My grand daughter took 4 pills, had night mares, and serious trouble breathing . even after being off the pills for 2 days she is still having trouble breathing when she tries to play basketball. she was put on it for allergies and I am so mad, all this better stop. I wouldnt give this to anyone ever

Michelle - posted on 11/21/2015

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I have a 10 year old grand daughter, she was just put on singulair for 4 days, yes she has night terrors yes she freaked out, she could not sleep. She also plays basketball and when she was at practice it took her breath and she couldnt hardly breath fopr about 20 minuts, then it did it again even after she quit taking it at a game :( very unhappy about all this and will be calling her DR Monday morning
I would never recomend this crap

Heather - posted on 11/19/2015

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You just described perfectly my 12 year old who has been on singulair for like 5 years. He describes his tantrums and evil (only way to describe it) behavior as something he cannot control and can't snap out of when it's happening.

Recently something more concerning has happened which lead me to this blog. Thank God I found it or I'd be committing him. Thank you for sharing. You have helped me so much!!

Erin - posted on 10/17/2015

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I'm in the same boat-just gave a first dose and am freaking out now that I'm reading these posts (my daughter has mood disorder already) - did your child have side effect after 1 dose?? Thanks!

Kellie - posted on 10/05/2015

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Just wondering if anyone has heard of withdrawal effects of taking a child off Singulair? my 5.5 year old son has been on it for 2.5 years, and we decided to take him off it. During these 2.5 years he has had outbursts, tantrums, issues at Daycare, restlessness and not being able to sit still, hard eye blinking and facial tics such as jaw clicking. this is day 5 of being off it and he has been quite emotional especially before bed.

Can anyone share their experience with taking their little one off Singulair or does anyone know of any studies done on potential withdrawal symptoms?

Anna - posted on 09/13/2015

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Hi, I could really do with some advice..
My 7 3/4 year old son has been taking singular for the last 5 years, the last 2 have been the generic version. He also has an inhaler he uses twice a day too.
However in the last 3/4 months my beautifully behaved little boy has turned into a Jekyll and Hyde. His behavior is terrible, he is having mood swings and tantrums that I've never seen him do before.
He doesn't have insomnia, or nightmares and he is well behaved at school and for others but at home it's like living on the battlefield. I don't know if this is just his age or if it is connected to the medicine but it's breaking my heart.
I thought he might be anxious about going back to school but he loves it.. So I feel that it might have something to do with the meds.
After he's had a meltdown he is so very sorry and says he doesn't understand why he is behaving badly and he feels like he can't stop himself.
He told me he hates himself and wonders why he was born, this is just so unlike him and is something I've never heard him say.
I've decided to stop the medication purely to see if it will help as I'm running out of ideas. I don't want him to feel like this and I feel useless right now,

Kristin - posted on 08/25/2015

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My 8 yo son has been diagnosed with ADHD, anxiety disorder and disruptive mood disregulation disorder. As well as a sensory processing disorder and sleepy has always been an issue. Last week, his allergist prescribed singulair for allergies and asthma. We started allergy shots in May, but he had a reaction to one two weeks ago. So the doctor thought that singulair would help prevent more reactions and helps his asthma. Which, has been asymptomatic all summer. The doctor had briefly mentioned the mental side effects. And I was a bit concerned, but agreed to give it a try. I didn't noticed anything right away but after 4 nights of him having trouble getting to sleep (despite taking melatonin) and staying a sleep I began to put 2 and 2 together. At first I thought it was because school just started but he's not anxious about school so I figured it had to be the meds. So, after coming across this site, I decided not to give him singulair last night. And he went to sleep fine and slept fine all night, in his own room.
I didn't do a very good job of filling his allergist in on his mental health issues. (Which I plan to do this week!) I think for kids with known preexisting issues it should not be considered.
Also, for all those other moms out there wondering what other options are, consider allergy shots. My son broke out in hives this spring after playing in the grass. So, we had him allergy tested. I had also long suspected he had asthma so they tested that too. He has both. My hope is that the allergy shots will help not only his allergies, but his asthma as well. And so far, things have been really good. Like I said he's been asymptomatic all summer. He's using the QVar inhaler twice a day and taking Zyrtec and that seems to work for us.

Jenny - posted on 07/01/2015

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We have tried our 4 yr. old son on Singular 3 times and a recent try with Nasonex. All disasterous! We did 6 weeks on the nasonex before I realized it was causing his major mood issues and insomnia. He started getting up multiple times per night. I took him off it three days ago and his sleep was better two nights and then horrible again last night. He got up 4 times demanding milk or TV and is super restless. His asthma is well managed when he takes steroidal inhalers and the nasonex did completely stop his runny nose, but these side effects aren't worth it. I'm seeking alternate treatments as I can no longer stand having a "demon child" take over my sweet little boy. We all need to call the drug companies and report these side effects!

Billie Jo - posted on 06/27/2015

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My 6 year old son was just prescribed Singulair for the treatment of chronic hives. This is not an FDA approved treatment but he is still having symptoms with antihistamines. Reading these posts are so disturbing to me. A few years back my son was prescribed nasonex for allergies. Gradually over a few months his behavior started changing. He was a totally different kid. Went from wanting to cuddle and telling us he loved us, to not even making eye contact with us. We were ready to take him to a behavioral therapist. My husband started researching and what we found was a blog similar to this. I couldn't believe it. And when I mentioned it to his doctor she said his symptoms couldn't be from the drug. So, after reading this I am definitely not putting him on Singulair. I would rather deal with him being itchy every do often. Let this be a lesson that we research every drug before we give it to our children. Just because the doctor says it's ok, doesn't mean it is.

Bacon - posted on 05/05/2015

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Wendy, how is your son doing now? From the posting date, he has been off Singulair about 2 months.

Daniellepolicare - posted on 04/30/2015

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I am so very thankful my sister in law referred my to this blog. My 4 year old was just prescribed Cingulair and a nebulizer due to allergies and congestion...I heard scary things about the side affects and I am opting NOT to put her on this medicine. I have an appointment with an allergist in a few weeks, so im hoping there is an alternative to cingulair.

Bacon - posted on 04/24/2015

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My son was prescribed Singulaire in 2006. On April 26, 2012, after at least 18 months of high anxiety, night terrors, walking and talking in sleep, inability to sleep, vivid dreams, hallucinations, depression and talk of suicide, I saw the behavioral health effects of Singulaire. The FDA added these effects in 2009.

It took 2 weeks for the effects to wear off. On the 14th night, my son slept through the night peacefully for the first time in at least 1.5 years. A week after that,I found him smiling. When I asked, "what are you smiling about?", he replied "this is the first time I have felt happy in a really long time."

Three years later, he is in therapy for the PTSD effects of being on Singulaire. It was a living hell for him.

What I have learned so far:

1. Singulaire can really help improve lung function in those with asthma.

2. Many Singulaire users do not have behavioral health symptoms.

3. The FDA warnings list The behavioral health effects of Singulaire as incedental. Which means that the probability of of experiencing the behavioral health effects is literally one in a million. It also implies, to doctors, that the side effects are not likely linked directly to the medication. For example, if someone developed swine flu while taking Viiagra, that would be an incedental relationship. This is determined by the number of data points that the FDA has collected about the medication. This is the reason that doctors do not believe that there is anything to be concerned about.

4. Once a medication is FDA approved, the only reporting mechanism about medication side effects is self reporting. There is no requirement for doctors or any other clinicians to report that your child wanted to kill themselves due to this medicine.


I believe that the behavioral health effects are drastically under-reported. Please self-report.

http://www.fda.gov/Safety/MedWatch/HowTo...

My biggest fear, especially now that Singulaire has gone generic, is that the pharmaceutical companies will attempt to release Singulaire as OTC.

R.A. - posted on 04/20/2015

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My daughter was 11 when she was prescribed Singulair for about two months.She developed insomnia, high anxiety, nightmares and day terrors. She said it was like her mind was thinking bad things all by itself. We determined it was the only new medication she was on and stopped it immediately. We also brought her to a child psychologist for about six months afterwards. The dreams and thoughts terrified her for months.

Puri - posted on 04/20/2015

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Hi,
My son just started Singulair/Montelukast about 2 months ago. I'm an LVN and I've read and heard about the side effect of this medication on my patients. I agreed my son needs it, so I gave it to him when he was having asthma exacerbation (wheezing/cough due to allergy or cold virus). I stopped as soon as I noticed that he is better (1 week usually).
My mother in law took him to the pediatric for 18 months check up about 3 days ago. He was with mild wheezing and I've been giving nebulizer treatments and he was actually improving. The doctor assured my mother in law that there is no side effect of the montelukast/Singulair and told her to continue with it. I looked it up online and came upon this blog and wanted to cry.
Why did the doctor said there is no side effect, even reassured my mother in law my son should continue with it?!
I'm so upset.
Please always get a second opinion on medications given by MDs. Sometimes their info is not updated.

Dealicia - posted on 04/10/2015

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hi ,

i just read this after my daughter just took her first dose ...is there a affect after the first dose .I'm not giving it to her again ...im praying it does not effect her after the first pill

Perihansalam - posted on 04/03/2015

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Oh thank lord I read that. I was loosing my mind. My boy is 3. He has been on it for a month now. He became horrible. Tantrums like never before n never does what I ask him to do. He draws on the floor n pees in his toys n screams sleeping at night. I first thought that his behaviour is due to his age n was really hating my life as I cant cope as a single mum. I didnt give him the pill this night n I wont give it again. I hope he gets back to be my lovely boy. 😢😢😢😢

Wendy - posted on 03/09/2015

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My 16 year old son has been on singulair for at least 6 years, but has, within the last several months began to have night terrors, say he wishes he could die, having very angry violet outbursts. i am stopping the singulair AND THE zoloft he was prescribed by the psychiatrist. He complains that the zoloft makes him feel like a zombie. I'm thinking removing Singulair may solve most of his problems!! Thank God for this forum and for putting it in front of me when i needed it most!!!

Marni - posted on 12/02/2014

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My son has been taking it since he was 2. He is now 5. He has many night terrors through out the 3 years. I thought nothing of it because I had them too as a child and they are heredity. This Saturday night he woke up with a bad dream that last from 2:00 am to 7:00 in the morning. He was petrified that monsters, bugs and bats were tracing him. He was hallucinating that he was seeing bugs all over the place. He finally went back to sleep at 7:00 am and when he awoke at at 11:30 he was still experiencing hallucinations. We brought him to the ER because we were not able to comfort him. The doctors said that wouldn't happen to him if he was taking the drug for a long time. After reading this and many other things, I don't believe them. I will never give this to him again.EVER!!!!!

Nicole - posted on 11/30/2014

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I really am so relieved to find this post. My daughter is just shy of 3 and has been on it for almost 2 months. Initially I noticed a difference but my husband insisted it was probably just the age and she would get over it. After tonight he is now convinced its the drug. My sweet, well mannered girl has progressively become more aggressive and says the most hurtful things without even batting an eye. I am constantly getting kicked and slapped. Especially today but ever since she started taking it, she has been extremely disobedient and argumentative. A conversation with her goes no where and heaven forbid you say no it turns into a 3 hour meltdown. I really hope I can see a difference in her behavior soon, I miss my sweet girl.

Cindy - posted on 08/16/2014

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My 6 year old has been on singulair for a year last year he had a terrible school year he was hitting kids, angry, wanted to kill himself, scared to be alone, will not go to the bathroom by himself, waking up at night and seeing things. He was diagnosed with ADHD and anxiety he has been on tenex and zoloft. My husband the other day googled singulair and my son has ever single side effect and it all started a year ago. We stopped the singulair and are praying a lot of his issues could have been caused by the medicine. Is there other meds to treat asthma that is non steroids?

Jaya - posted on 08/15/2014

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My child had repeated episodes of asthma attacks from age 2 to 3 1/2. We have been to ER several time and her oxygen would go below 90. Back to back nebulizer treatments and steroid intake for 5 days or so will regain her back. Doctor also asked us to start maintenance steroids. It was heart wrecking. The steroids and bronchodilators would make her nervous, weak and behave erratic. This was happening on a monthly basis. It made me drive crazy and start looking for alternative to escape these meds and bring her back to normal.
I did a series of life style changes which step by step helped her and slowly made her recover. I kept persisting on my changes for more than an year now. It all turned out good. Now my child is 4 1/2 and she is asthma free even during her worst cold days.
Asthma can be cured, please read
http://asthmacurebymom.blogspot.com/2014...

Alisa - posted on 08/13/2014

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I started singulair with my son with in days I noticed something was wrong . Not knowing if it was because school just started but he became very aggressive angry made horrible faces hitting walls severe temper tantrums uncontrollable Behavior crying his mouth hurt . Don't use this drug !! Very dangerous . I stopped the medication immediately I hope the symptoms go away soon . I thought it would help his asthma instead it changed his whole Behavior very scary !! I will never let my child use this again

Cathy - posted on 07/20/2014

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My daughter will be 3 in September and I recently took her off of her allergy medication because it was causing fast heart beat and she was waking in the morning more tired then when she would go to bed at night and getting 11 hours of sleep. So I talk with my doctor about my concerns and she prescribed the generic form of Singular but as the over protective mother that I am I read through the side effects like a fine tooth comb scamming webs sights before I ever consider giving my child a new medication I do not like giving or even taking medication and when I saw that it contained or may contain aspartame and phenylalanine I was very concerned and that took me to google research and to this page and I personally want to thank each and everyone of you who have posted the pros and cons of this medication because it just confirmed my worries and concealed my decision of not even giving this medication to my child. Thank you

HLC - posted on 07/07/2014

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My daughter took Singulair for 3 years. Her behaviour started to change drastically, she became aggressive, frustrated, threw temper tantrums that were out of control, she even used to jump up and down on the spot, red-faced and frothing at the mouth. When we spoke to her teacher, GP and allergy specialist, they all gave us the same answer "She is a 3 year old girl, testing the boundaries". We knew that something was not quite right so started to look at all everything from the things she ate, to the shampoo we use, as well as any stresses in her life. Eventually it got so bad that she was totally uncontrollable, and that is when it dawned on me. The problem was her medication. We took her off Singulair immediately. She went through a horrific period of withdrawal symptoms, but after about 4 months things started to really improve. She is now the sweet little girl she was before taking Singulair. Unfortunately during the time she was on it, she developed certain behaviours that we are now "unlearning". She is being treated by a homeopathe, ostheopathe and kinesiologist. We are using natural ways of curing the after effects of using this drug. We still have the occasional melt-down, but the worst thing is that since being on and coming off Singulair she has become paranoid that we, her family and friends do not love her. This is heart-breaking from a 6-year old girl who lives in a loving family home. I wish I had never even heard of this drug. It ripped our family apart for three years.

Anna - posted on 07/06/2014

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SAFETY REVIEW FOR SINGULAIR - Please read this! - The US Food and Drug Administration is meeting to review the pediatric safety of Singulair. The Pediatric Advisory Committee will meet to discuss pediatric-focused safety reviews, as mandated by the Best Pharmaceuticals for Children Act and the Pediatric Research Equity Act for Singulair (Montelukast) - IF YOUR CHILD HAS EXPERIENCED SIDE EFFECTS FROM SINGULAIR IT IS EXTREMELY IMPORTANT THAT YOU SEND A WRITTEN SUBMISSION TO THE FDA so that they may include this in their safety review. Written submissions may be made to the contact person on or before August 25, 2014. Contact Person: Walter Ellenberg, Office of the Commissioner, Food and Drug Administration, 10903 New Hampshire Ave., Bldg. 32, rm. 5154, Silver Spring, MD 20993- 0002, 301-796-0885, or FDA Advisory Committee Information Line, 1-800-741-8138 (301-443- 0572 in the Washington, DC area).

Vannini - posted on 06/29/2014

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Please, how long takes the tic? My son stopped singulair 20 days ago and has a lot of tics in his eyes. I am desperated. Thanks

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