Kids on Singulair

Andrea - posted on 03/29/2009 ( 98 moms have responded )

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I was just wondering if anyone else has children on Singulair who have had trouble with night terrors/hallucinations. My daugter has been on Singulair since she was about 4. She is now 8 and just in the last 2 months she started have these scary night terrors where she would have her eyes open and talk to us but she would be crying and seeing things that weren't there. At first we were afraid that she was having some type of seizure because my husband has epilepsy. But then we read up on the side effects of singulair and night terrors was one of them. (as well as hyperactivity, depression, suicidal thoughts and all kinds of other scary things) we took her off the singulair and she has not had a problem since which is amazing because they were happening at least 2 times a week. I can't believe that this started out of the blue after almost 4 years on this med. I was just wondering if anyone else had similar experiences?

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Mary - posted on 08/06/2013

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Hello all, please do not give your children Singulair. I have filed a complaint with the FDA and have not heard anything for over 1 year. I monitor post regularly and sad to say the negative responses from reviewers are not enough to get that drug off the market. My son at 11 years of age was prescibed Singulair and after 6 months these side effects followed: bed wetting, (twice) he never had done this before. Nightmares, constantly!!! And the most troubling was Tics, he would constantly blink his eyes, and they would roll back. Most of all troubling was i didn't put two and two together. I feel guilty that i didn't equate these things soon enough. What happended was I ran out of the medicine and didn't get a refill for about 3 weeks, in the 3 weeks all of the above ceased! After i recieved his refill started him again on Singulair and the side effects started! I immediately took him off, called his Doctor and it was so down played it was pitiful. I was so upset I urged them to put on his records not to EVER give him this drug, nor any similar drug EVER! I turned around and filed a report with FDA.

Please file with the FDA, make a difference, hopefully the numbers will cause this med to be pulled off. As i read other post there were several related suicides wasn't that enough!!!!!! Any questions my email is zappfor3@yahoo.com

Marsinah - posted on 08/27/2013

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I'm convinced and relieved after reading previous posts that this is our problem as well. My sweet 12 year old boy, who used to be laid back and full of humor has been taking Singulair for 2 years (the last year or so the generic version). This past summer he has become overly-sensitive, tearful, has lots of anxiety issues, says he sees shadows and hears noises, and is afraid to be alone at night. He's also been feeling guilt for things that are so minor, they're not even worth mentioning (yet he does, . . constantly). This last week he wakes up crying in the mornings and says he says he can't get certain horrible thoughts out of his mind . . . the worst being that he should kill himself. Initially, I thought it was just a severe hormone fluctuation since he's at that puberty age. But now I'm convinced (and hoping ) it must be the Singulair, and currently, that is the only he's been on all summer. We stopped giving it to him last night. I pray it wears off soon . . . I want my son back.

Jenna - posted on 12/02/2009

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My son had a terrible time wth Singulair. He took it for about 5 1/2 years starting at about age 3 1/2. He experienced several behavioral and psychiatric side effects which severely impacted the quality of his life. Last year he became depressed and started saying that he wished he were dead so he "wouldn't have to feel this way." Last fall we discovered the connection, stopped the medication, and within a few days observed a dramatic positive change in his behavior and mood. His behavior has continued to improve during the last year.

Our experience prompted me to found an advocacy group to raise awareness of Singulair's side effects and provide support to parents whose children are experiencing adverse reactions to Singulair. I have been in contact with hundreds of parents. One valuable thing I have learned as a result of this contact is that side effects do not always occur immediately when Singulair is started. Parents have reported that side effects began days, weeks, months, or years after starting Singulair. The longest was 2 years. A few parents reported their children experienced side effects after a dosage increase. Looking back, my son's problems worsened after his dose was increased from 4 to 5 mg.

Dream abnormalities (which are what night terrors are) are documented side effects of Singulair (www.singulair.com).

This past June, the FDA announced the findings of their year long safety review of Singulair and required a precaution about neuropsychiatric side effects be added to Singulair's label. Detailed information is available on our website: www.parentsforsafety.org. We also provide a link to report adverse reactions to the FDA. This is VERY important to do because these reports are what lead to labeling changes and research.

Singulair's neuropsychiatric side effects include:
agitation including aggressive behavior or hostility, anxiousness, bad/vivid dreams or dream abnormalities, depression, hallucinations, insomnia (trouble sleeping), irritability, restlessness, somnambulism (sleep walking), suicidal thinking and behavior (including suicide), tremor

Hyperkinesia (which is related to ADHD) is listed on the Canadian prescribing information for Singulair (the link to this document is on our website).

I encourage every parent whose child takes Singulair to monitor their child vigilantly and contact their child's physician IMMEDIATELY at the first sign of any behavior, emotional, mental, or mood changes, or the development of any physical complaints or problems.

Please share this information with other parents. We also have a facebook support group: Singulair Parents. Anyone whose child had an adverse reaction to Singulair is welcome to join.

Marsinah - posted on 08/29/2013

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Thank you so much for the words of encouragement and alternative medicine suggestion. I've scheduled an appt. with his doctor for tomorrow to discuss the issue.

Smcromey - posted on 10/12/2012

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My daughter has been on singulair for a couple years now. Throughout these years, she has been sleepwalking, waking up confused and disoriented. However, sleepwalking runs in my family so we thought nothing of it. Within the last month and a half, she started taking the generic version of singulair. Since then she has woken up twice with anxiety attacks and hallucinations. She said that things in her room were getting bigger and smaller, and that her fingers were stretchy and getting too thin. We took her to the doctor after the episodes and the doctor took her off her breathing treatments (Xopenex and Pulicort). During the appointment the doctor said that she was pulling her off the breathing treatments because she might be over medicated, since her lung were sounding very clear. But she also mentioned that usually singular is the drug that they have issues with, but since my kid had already been on it for 2 years, she doubted it was related. Then last night at dinner, she said she had an episode in class where something on the white board got bigger than everything else, and nothing else on the white board looked right. I felt like I got the air knocked out of me. I was absolutely terrified for her. I was up all night worrying, and it was then that I remembered the doctor mentioning Singulair during the appointment. I looked up the side effects, the report from the FDA, and found message boards like this one. Thank goodness! I called the doctor this morning and we are discontinuing Singulair immediately. She said that it takes a few weeks to build up in your system, so it will take a few weeks (at least) to leave. Thank you all for posting your experiences. I thought my kid was losing her mind, and I was about to lose mine.

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Cindy - posted on 08/16/2014

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My 6 year old has been on singulair for a year last year he had a terrible school year he was hitting kids, angry, wanted to kill himself, scared to be alone, will not go to the bathroom by himself, waking up at night and seeing things. He was diagnosed with ADHD and anxiety he has been on tenex and zoloft. My husband the other day googled singulair and my son has ever single side effect and it all started a year ago. We stopped the singulair and are praying a lot of his issues could have been caused by the medicine. Is there other meds to treat asthma that is non steroids?

Jaya - posted on 08/15/2014

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My child had repeated episodes of asthma attacks from age 2 to 3 1/2. We have been to ER several time and her oxygen would go below 90. Back to back nebulizer treatments and steroid intake for 5 days or so will regain her back. Doctor also asked us to start maintenance steroids. It was heart wrecking. The steroids and bronchodilators would make her nervous, weak and behave erratic. This was happening on a monthly basis. It made me drive crazy and start looking for alternative to escape these meds and bring her back to normal.
I did a series of life style changes which step by step helped her and slowly made her recover. I kept persisting on my changes for more than an year now. It all turned out good. Now my child is 4 1/2 and she is asthma free even during her worst cold days.
Asthma can be cured, please read
http://asthmacurebymom.blogspot.com/2014...

Alisa - posted on 08/13/2014

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I started singulair with my son with in days I noticed something was wrong . Not knowing if it was because school just started but he became very aggressive angry made horrible faces hitting walls severe temper tantrums uncontrollable Behavior crying his mouth hurt . Don't use this drug !! Very dangerous . I stopped the medication immediately I hope the symptoms go away soon . I thought it would help his asthma instead it changed his whole Behavior very scary !! I will never let my child use this again

Cathy - posted on 07/20/2014

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My daughter will be 3 in September and I recently took her off of her allergy medication because it was causing fast heart beat and she was waking in the morning more tired then when she would go to bed at night and getting 11 hours of sleep. So I talk with my doctor about my concerns and she prescribed the generic form of Singular but as the over protective mother that I am I read through the side effects like a fine tooth comb scamming webs sights before I ever consider giving my child a new medication I do not like giving or even taking medication and when I saw that it contained or may contain aspartame and phenylalanine I was very concerned and that took me to google research and to this page and I personally want to thank each and everyone of you who have posted the pros and cons of this medication because it just confirmed my worries and concealed my decision of not even giving this medication to my child. Thank you

HLC - posted on 07/07/2014

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My daughter took Singulair for 3 years. Her behaviour started to change drastically, she became aggressive, frustrated, threw temper tantrums that were out of control, she even used to jump up and down on the spot, red-faced and frothing at the mouth. When we spoke to her teacher, GP and allergy specialist, they all gave us the same answer "She is a 3 year old girl, testing the boundaries". We knew that something was not quite right so started to look at all everything from the things she ate, to the shampoo we use, as well as any stresses in her life. Eventually it got so bad that she was totally uncontrollable, and that is when it dawned on me. The problem was her medication. We took her off Singulair immediately. She went through a horrific period of withdrawal symptoms, but after about 4 months things started to really improve. She is now the sweet little girl she was before taking Singulair. Unfortunately during the time she was on it, she developed certain behaviours that we are now "unlearning". She is being treated by a homeopathe, ostheopathe and kinesiologist. We are using natural ways of curing the after effects of using this drug. We still have the occasional melt-down, but the worst thing is that since being on and coming off Singulair she has become paranoid that we, her family and friends do not love her. This is heart-breaking from a 6-year old girl who lives in a loving family home. I wish I had never even heard of this drug. It ripped our family apart for three years.

Anna - posted on 07/06/2014

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SAFETY REVIEW FOR SINGULAIR - Please read this! - The US Food and Drug Administration is meeting to review the pediatric safety of Singulair. The Pediatric Advisory Committee will meet to discuss pediatric-focused safety reviews, as mandated by the Best Pharmaceuticals for Children Act and the Pediatric Research Equity Act for Singulair (Montelukast) - IF YOUR CHILD HAS EXPERIENCED SIDE EFFECTS FROM SINGULAIR IT IS EXTREMELY IMPORTANT THAT YOU SEND A WRITTEN SUBMISSION TO THE FDA so that they may include this in their safety review. Written submissions may be made to the contact person on or before August 25, 2014. Contact Person: Walter Ellenberg, Office of the Commissioner, Food and Drug Administration, 10903 New Hampshire Ave., Bldg. 32, rm. 5154, Silver Spring, MD 20993- 0002, 301-796-0885, or FDA Advisory Committee Information Line, 1-800-741-8138 (301-443- 0572 in the Washington, DC area).

Vannini - posted on 06/29/2014

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Please, how long takes the tic? My son stopped singulair 20 days ago and has a lot of tics in his eyes. I am desperated. Thanks

Janet Alexander - posted on 06/26/2014

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My grandaughter took singulair for 8 days and started with spasms ( ticks) she said she had a nightmare she said her stomach hurt, her head hurt like she was going to fall dwn. She is 4 yrs. old. She has been very hyper, restless, started lying about things and is just totally not the same as she was before taking the generic for singulair. This is still going on16 days after getting off of the medicine her tics seem to be her whole body now not just arms and head like before. We were told by her pediatric Dr. It could take 6 months to a year to stop. Do not give your child singulair is my opinion. An allergist Dr. Prescribed this medicine.

Lauren - posted on 06/05/2014

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My 6 year old has been taking singulair for 3 months and has been sleep walking every night. He wanders around looking for the bathroom and completely unresponsive. A few times he has tried opening the front door to go outside. When I talked to the doctor about my concerns she told me to have him take it in the morning. I don't have a PHD, but I would place bets that he will have behavioral side effects during the day if he is having them at night.

Meredith - posted on 05/09/2014

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Goodness! My son who is 15mos. Was started on Singulair last Friday. He also started Augmentin for a sinus infection. After 2 doses of this medication I noticed extreme irritability. I thought it might be more related to tummy upset from the antibiotic so we just pushed through.
After 4 days on it he began to cry uncontrollably. He didnt want me to leave his side. He is our 5th child and always very easy, sweet, never a crier and he sleeps like a dream...so something was bad wrong! I still couldnt figure it out and was starting to think he was getting worse on the antibiotic.
Yesterday was his 6th day on it and he was nothing but a bucket of tears. So I called the doctor who said he wanted to recheck him. However he was called away and we saw a doctor we have never seen before. He was very helpful as far as the antibiotic went but when I mentioned the warning on the Singulair bottle he just blew it off as if it is uncommon. So we left there with a referral to ENT for chronic sinusitis and a script for a new antibiotic.
I felt a little better but my mothers intuition just told me something else was wrong. I went ahead and gave him the Singulair dose as usual before bed....and thats when it happened!
He went to bed but kept crying....it was a scared cry....I would go get him and he would look at me like he didnt know who I was. He wouldnlook at me while I was holding him and turn away in fear and try and get away from me. He would writhe around and cry and sob and there was nothing I could do. If we turned out the light he would totally lose a grip...I mean totally!!! If we turned it back on he would stop crying temporarily. When I would hold him he would claw and scratch at my neck and then grip my neck as if something very very scary was after him.
This morning I found this thread and just feel extreme relief. Its not his antibiotic its the Singulair!!!!! Do not give this drug to your children. I feel terrible for him and hope we can get our sweet mild mannered not afraid of the dark baby back soon. Yikes!!

Starr - posted on 05/05/2014

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My son has been on Singulair for 2 years now - he has never had an issue. Lately he is complaining of stomach pain, has started having motion sickness (may or may not be unrelated) and his attitude is very crummy - nothing dangerous or depressive, but really more frustrating than he probably should be.

The pharmacy just in the last 2 or 3 refills switched us to a new manufacturer and we now have oval shaped pills instead of circles. His doctor recommended we take him off of it to see if this is causing his issues or not.

Anyone else notice the symptoms change when the shape of the pill changed?

Natalie - posted on 04/27/2014

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I have twin boys now age 5. Both boys started on singular at age 2. O had terrible night terrors and screamed with in two nights and I took him off after a week and he was back to normal within two days. My other son did ok on the medication but I also quit using it with him. When they turned 4 I tried singular again for asthma and allergies but within 2 days my son O again had bad side effects of anger, hyper, and threat to burn down a toy castle at preschool! Thankfully I warned the teachers and they let me know the concerns, again he was off the med within a week and he is off for good! My other son continued the Singular for another 6 months and then started to change his personality. He used to be outgoing and silly and had now became sad, scared, and mad! He would say he was dumb, fat, no one loved him, and even told us he did not care if he died! We were freaking out and took him off singular after about 2 weeks of this behavior. With in two weeks I am seeing our old boy back. I would not recommend Singular for kids!

Amy - posted on 04/11/2014

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So my 4 year old was just prescribed singulair and it is way too expensive for us (and the generic) now reading about the side effects I don't think I want him to take it. Anyone had experience with Levocetirizine (Xyzal)? My little man is wild as it is so I don't need ADD or psychiatric systems in addition!

thank you! Also does this page have a Facebook group?

Amy - posted on 04/11/2014

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Hello all! My 4 year old was just prescribed singulair and number one it is not covered by my insurance and the generic is not much cheaper. After reading all this, I wonder if I should even start him on it. He is a wild little boy to begin with. Has anyone found any drug that works better? I know as a young adult, singulair was wonderful for my allergies and asthma!

I saw someone mention Levocetirizine (Xyzal) as an alternative. Any experience with kids and this drug?

Susann - posted on 04/10/2014

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Help!
Two years ago I had my daughter on singulari for a short time. She was three at the time. I had her on a low dose and not everyday to fight inflammation due to allergies. You name it.
When consulting the doctor before drugs I told him that I would rather teach her what she can and should not eat rather than treat her for eating foods she shouldn't after the fact. But without a good understand as to why he prescribed it and said it wold help her. I asked about side effect and was told they were minamul and not to worry but to call him if she started acting up. A three-year-old girl act up...never.
Well, things went on and she took the drug and started going crazy. I didn't put it together until it was so bad that she was screaming for me and pushing me away saying she didn't want anything to do with me she "wants my mommy!"
I took her off the drug and started seeing improvements right away with no more fits months after.
But now as she gets older she fights me on everything even if I'm agreeing with her. She at times acts singulair crazy again and can give no reason for it.
I was wondering if anyone else has been seeing long trem side effect in their children?
If so what and is there anything to do?
I know that with a girl it won't get much easier but we use to be best friends and now, at times, it seems that she hates me.
Anyone?

Mystique - posted on 03/17/2014

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I'm so happy to have found this post. My son is 2 years old. He has been diagnosed with reactive airway disease, not asthma, but because of a few episodes in the past year, he has been put on singulair. He is normally a very happy, contented child who doesn't cry unless something is really wrong. Since starting the singulais, he has had 2 episodes of crying inconsolably. I will have to talk to his doctor tomorrow about other options. She took him off of inhaled flovent because it contains steroid. I'm not sure if that's better. But thanks for this thread.

Caroline - posted on 02/20/2014

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My daughter was on singulair before the warnings went on the bottle. Several months into taking it her personality changed. She became angry, disobiedent and even tried to hurt herself. I told the doctor and of course he said it was not the medicine but her being 5. I took her off it and with in a short time my daughter was back. The first sign of a change in your child you need to take them off it.

K - posted on 02/07/2014

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We live in rural Australia and our six year old son was diagnosed with mild Asthma four months ago. The Paediatrician put him on Singulair and it has proved to be a great solution for his intermittent coughing. However, over the past few months we have noticed a dramatic change in his behaviour and initially thought (up until tonight) that it was due to his diet (sugar / colour / preservatives). We cut out as much as possible since December, but his outbursts have only increased and become more violent. He is very anxious and struggles to go to sleep at night. Normally he is a sweet, confident and loving child, but tonight was the last straw. After screaming at me and calling me names and kicking his younger brother, I went to bed wondering what had happened to my beautiful boy. Then I suddenly thought of the Singulair. I googled the drug's side effects and couldn't believe what I was reading. My partner and I feel sick to the stomach that we have most probably contributed to his behaviour. As of now I will stop giving him this drug and hope that our lovely boy returns soon.

Marilyn - posted on 12/31/2013

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My child is now twenty-eight. Her first asthmatic episode occurred whrn she was two years old

She was put on singulair while still in Middle school (approximately age 13). She was always an impulsive child, and given to risk taking behavior . Still, she was extreemly loving, gentle, and a friend to all .

Though she is very intelligent, she was classified early on with an attention deficit, ...a label which caused her much stress and which necessitated her an on again off again placement in remedial and/or special classes. That classification was unsettling for her. Over time this once ebuillent, friendly and happy child had became anxious and depressive. Talk thereapy didn't help much. Given her scholastic problems and her emotional issues, we were glad that she was accepted into a college not far from us., where we could keep an eye on her. However the academic and social anxieties got the best of her,,,and she self-mdicated with alcohol, a fact which the school did not share with us because of confidentiality laws. She left college a fter her second year Although she found a vocational niche, her reliance on alcohol intensivied and this coincided with wreckless driving and other agressive behaviors , both of which resulted in a loss of friendships and a ushered in a period of scraps with local law enforcement.

Nearly a month ago, after a stressful encounter with my daughter, I went on online looking for some insight into a root cause. That's when I found a sitet developed by a mother who had her own horrific story to tell .

My daugter has been off singulair for only a short time....already I see a vast difference

That it took me nearly fifteen years to find what now appears to be that "root cause" grieves me, and infurieates me.. . ..
.

This so-called medicine was infinitely worse than the malady it was sopposed to relieve. It changed my daughter forever.. Still I'm one of the lucky mothers. for this so ca;lled medicine is the stuff of a parent's worst nightmarel

Liz - posted on 12/12/2013

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On my case my son started to be very forgetful and also having issues focusing and concentrating at school.
Mind you all this wasn't an issue until he started to take singular.

Melanie - posted on 12/10/2013

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After our appointment with the allergist Dr ham Pong yesterday, he was precripbed Singulair to help his asthma. He said if I notice that he is getting moodie, I should take him of this med. After reading all these posts, I refuse to take the risk... He only had one dose (yesterday night) and was agitated and was sweating a lot more than usual. I dont uderstand why this medication is still offered to children!!

Tracey - posted on 12/02/2013

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My son has been on singulair since aged 2 it's improved his asthma of a night but over last year his gradually changed and gone from being a happy boy into a very confused angry And upset child, anxiety has become present in last few wks and his rarely gets a full nights sleep, he is constantly hungry and very aggressive, aggressive behaviour has become more and more striking out verberlly and physically at others for no reasons. Doctors think ADHD but I know it's more my health visitor mentioned about possibly being his asthma mefication and I've now been searching the web the more I read the more I'm convinced its the singulair, any help and advice would be much appreciated as my boy had gone from being so happy to such an aggressive and unbalanced child x

Betty - posted on 11/25/2013

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I have a 4 yr 10 month old girl who was diagnosed with a milk protein allergy at 6 weeks. She needed to take Pepcid daily until age 13 months. She was allergic to eggs until age 4 years six months. At age 2 she was diagnosed with asthma. She is on atrophine drops twice a week for strabismus. Her asthma regime includes asmanex in the am, nasonex as needed and singular every night. When she's having a flare she uses xoponax and steroids. Honestly, I hate how she reacts with her asthma meds. She is fidgety and bedtime is a struggle. I think it is singular. But I don't know what good alternatives are available because it does control her asthma. HELP!!!

Sandra - posted on 11/21/2013

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Thank you Mary Zapp, I sent you a private email to your yahoo account. We experienced very similar excessive blinking, and eye rolling "tics". I can only assume that its the Sigulair possibly doing this, but no one professionally, eye doctors, or pediatrician can or will confirm this. It is SO frustrating. Its a difficult decision to continue Singulair or to have to rely on steroids for an extended time for children with astham/allergies. Hope that we don't discover that the drug is dangerous in years time and our kids are the guinea pigs.

Marcus - posted on 11/14/2013

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I took singulair from age 6-19 my mom is a psychotherapist her first instinct in response to my now known side effects was psychiatry. I was diagnosed ADHD and bipolar disorder. I was warrantlessly anxious, depressed. Talking therapy didn't work because there was no emotional cause to my symptoms. Now it did what it was supposed to quite well, at age 5 I was on 2 litres of oxygen and by age 6.5 I was running around outside. But I knew what was happening to me, even as a child was not what everyone around me said it was, I just didn't know what exactly. I was heavily medicated for all of my childhood and most of my teen years, I was numb from the neck up, I did not mature emotionally because of this. I was mainly existing. I had severe social anxiety, I had to drop out of school my senior year. Once I got off singulair in November 2013 I have been able to go to school, (I'm a few weeks a way from graduating), I got accepted to the local art college (early admission), I taught myself to draw with graphite and charcoal, I have many friends now and am ready to start dating. I'm 20 years old now and I'm doing ok thanks to stopping singulair just one year ago.

Singulair does its job well but, it's side effects are very real, I only recommend it if without it, you risk hospitalization, like in my situation. If you can avoid taking it DO!!

Nicki - posted on 11/10/2013

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Yes, we had night terrors, sweats and , towards the end, severe stammering. He started on it at 1.5 and we never realised it was the medication. It was only two years later when the stammer appeared literally overnight that we investigated diet and medication as possible cause. What we read about singulair terrified us. We'd read the info sheets when originally prescribed but hadn't realised or been informed that it was subsequently under investigation
We took him off it immediately and have had no further night terrors or sweats. Unfortunately the stammer has stuck and he is.currently undergoing speech therapy. I would strongly recommend an alternative to this drug. It should only ever be used as a last resort.

Sheila - posted on 11/10/2013

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Our allergist just recommend singular for my 9 year old son. After researching and reading these posts I just do not feel comfortable putting him on it. I know that I will get push back from my doctor. What other methods are you using to control your child's asthma?

The doctor also said that he expects our asthma and food allergies to worsen with the onset of puberty. Has anyone else experienced that?

Ashley - posted on 10/10/2013

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Hey STEPH, you said in your post that your daughter took singulair bc of her asthma....have you started her on anything else? My daughters pediatrician said that there isn't anything else to give he other than a steroid(which she doesn't need) she has an inhaler that she uses if needs it, but hers is more seasonal..not full blown asthma.

Kelly - posted on 09/25/2013

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Hi Ashley,

My Son was the same. He was taking it as an asthma preventer. Singulair was horrific for him. I took him off without replacement initially as I just did not want him to suffer a moment longer.

He is now on flixotide as asthma preventive and nasonex for dust allergy. Your GP if specialist will be able to point you in the right direction. There are a couple of Facebook pages for us Mums you might want to look into, they are great support. All the best!

ASHLEY - posted on 09/24/2013

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I am new to this site and I have a daughter who is currently on singular. She has been on it for almost a yr now and is having a lot of the same symptoms that have been mentioned here. She has been taking it due to her asthma. I would like to take her off of it, but I need to find something to replace it with before I stop it completely. Does anyone else have a child that was on singular and has asthma? If so what did you replace the singular with or does anyone else have any suggestions?

Melanie - posted on 09/10/2013

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My son is 9 and has been taking singular for about a year. I didn't realize that his mood swings and nightmares and tics he is developing was caused by this drug until I did a ton of research yesterday. I am very alarmed and he has stopped this medication immed as of yesterday. I pray he goes back to his upbeat self he was before staring this medication.

Farrah - posted on 08/28/2013

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Marsinah, that definitely sounds like Singulair. You should have your boy back to normal in a week or two after being off Singulair. Ask your doctor for Levocetirizine (Xyzal). It has helped my son's allergies tremendously without any noticeable side effects. It's a shame they have to suffer so much when a doctor could say, "if you notice any changes in behavior let me know and we'll try a different medicine".

Steph - posted on 08/05/2013

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I just stumbled across this post, thankfully! I was looking for a link between Singulair and my daughter's new habit. The last three weeks, we put her to bed and she sleeps for a few hours, then wakes up and begins waking me because she is bored/scared/fill in blank here.

She has taken Singulair on and off (more off than on) for two years, since around 24 months old. We only started keeping her on it full time the last two months since she was diagnosed with asthma due to exercise and allergies.

Tonight I have decided to take her off of the medicine and pray she sleeps. I'm so exhausted. Thank you all for your posts! Reading them I don't feel so crazy for thinking she is changing in an abnormal way.

Lisa - posted on 07/05/2013

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I have been searching the internet trying to find answers to what my son has gone through, this led me to this site. My son,7, has been diagnosed with asthma and acid reflux. 2 months of zantac later and 3 weeks of antihistamine and now he is hallucinating. Actually sees monsters and bats etc. in the room. The Dr on call thinks it is the antihistamines, but now I suspect singular,as well as the zantac. Zantac is an antihistamine as well. I am so glad I found this post as I felt very alone with this. I don't give him antihistamines or zantac as of 3 days ago. I don't know how long it will take for this to wear off. He was on singular at a young age but if he saw anything then, he could not tell me. At least at this age he can actually tell me "I remember a time when I did not see things, then you gave me meds and now I see things."
I always try Clairitin and he gets so grumpy I have to take him off, this is why I tried Benadryl. The Benadryl seems to be very bad for making him see things. I have to treat the acid reflux some how. It is so bad that it has caused his airway to close off. All that I can say now is how scary it is to see him go through this and not know when it will get better!

Jennifer - posted on 06/26/2013

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Take him off the drug!! Check with his Dr. But monitor him!!! My daughter is 4 and starting to have bad dreams.... We're taking her off... We have not been on as long... Check with his DR.

Andrea - posted on 06/25/2013

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I have to say ladies, I feel very bad that after following this post for a few months I kind of forgot about it. So to anyone that asked questions I apologize. I do have to say that my daughter is now 12, has not taken Singlar in almost 4 years and has never had the night terrors again. I'm not a doctor, I haven't done a bunch of research on this medication, but from my daughter's experience I have to think the medication played some role.

Jennifer - posted on 06/25/2013

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my 12 yr old son has been on Singulair for as long as I can remember. Recently, he moods and behavior has become very strange, very unlike our son. I have no idea what to do.

Stacy - posted on 05/09/2013

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Randa, I have been in your situation recently but my son who is 12 years old didn't have the same reaction to the medicine as yours did. He started having mood swings and depression after being on the singulair for 6 months. After looking into it we found out that I had started him on a new bottle of the generic singulair and that is when it all started. I took him to a psychologist to try and figure out what was causing this problem. After discussing different things going on in his life did she realize, after I mentioned him having asthma, that his medicine could be the problem. I did a internet search and luckily found this website which confirmed our suspicion of the singulair. For my son, it took him two weeks to the day for the medicine to get out of his system and get back to normal. We have not had any problems since he has been off of it and I don't plan on starting him on it again. One thing you do have to watch though is that the pediatricians don't believe that singular is the problem. My son's doctor told me that it was highly unlikely that it was the singulair, but we could stop it if we wanted to. I really hope that your daughter's symptoms go away when those two weeks are up.

Randa - posted on 05/01/2013

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My daughter has been on it for about a month and the last week and a half she has seemed down which my daughter is the opposite of that she is very outgoing and up for anything shes a free spirit..well she has had bad dreams, cried in her sleep she sais her brain doesnt feel good she is 5! she kept saying mom i dont know what is wrong "wif" me...she became non social etc....and she said cars sometimes scare her because they have scary faces???? well i took her off of the medicine 2 nights ago and im giving her over the counter claritin for children so far it seems to be helping and she has woke up happy but how long does it take to get out of their system? Is it about 2 weeks since it takes that long to build up?

Mary - posted on 05/01/2013

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Hello Nicki Smith, My son is 3 and we too had some issues with the stuttering,night sweats,and seizure( for no apparent reason). He did have a complex febrile seizure 6 mos ago, but that one was sickness related. This last one he wasn't even sick. I read that seizures can be a side effect also. They now want us to do further testing with him to see if there are spikes in brain waves. We took him off singulair and now waiting to go ahead and schedule test. How long was it to see side effects improve with your daughter? Do you know how long this drug stays in their bodies? It just doesn't make sense to test him with a drug that can have this side effect in his system. How is your daughter doing now? Hope to hear from you soon. Take Care. Mary M.

Jackie - posted on 03/13/2013

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Hello everyone, i can't help notice that most of the post are related to girls is it possible this medication has more side effect on girls then boys?
I have a 8 year old daughter she has sever seasonal allergies and her asthma gets worst during spring, so 4 years ago her pedi got her on sigulair after 1month of use, she started crying and complaining she was lonley and she wanted to die!!! i was so frustrated so i went to ped and she said it was one on the side effects, so we got her of after 4 years she is back on meds singulair the ped thinks she is older and probably we wont have more issues, well to our surprise after 5 nights of taking singulair she tells me her heart is in pain and the she feels sad and doesnt understand why oh and keep in mind i don't tell her anything about the medication, last night she was crying in her sleep, woke up in the middle of crying and said she was having a horrible nightmare,, obviously i will not give my daughter this medicine ever again i will try natural remedies.. Moms and Dads please watch out for these symptoms

Nicki - posted on 03/04/2013

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Hey, sorry for raising an old post but I wanted to share our experience. Our 3.5 year old has been on singulair since aged two. It was prescribd for a persistent cough and allergic shiners. I remember joking that my baby boy changed overnight when he reached the age of two but we just put it down to the terrible twos. Night terrors, really bad sweats, lashing out, mood swings , social anxiety. We are even in the process of having him evaluated because we felt he was experiencing developmental issues. What bought is to a head was a few months ago he developed a psuedostutter . Nothing overly concerning but we were keeping an eye on it. Then last Monday he woke up and could not speak. My gorgeous boy, who has been chatting like a pro since he was 1.5 could not get the words out due to an extremely profound stammer. He has become depressed, reserved, isolating himself from friends, and to see him struggle so desperately to get his words out is heartbreaking. Then I looked up diets and stammering which raised the issue of medications. Looking up singulair I realised we've been, I'm essence, poisoning our poor little man. It's packed full of aspartame which is hugely toxic. Amd there is anecdotal evidence to support the correlation between singulair and stammering. We've taken him off it tonight and it is the first time in forever that he has not screamed in his sleep. Nor is he sweating or tossing and turning. I'm praying this will have a positive affect on his speech. Good luck everyone

Heather - posted on 03/02/2013

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I know I am replying to an old post but I wanted to share this anyway. My 8 year old son started with the generic version of SIngulair about 5 months ago. I noticed an increase in his anxiety and a darkening of his moods. After reading the side effects we decided to take him off the medication even though it was extremely effective in controlling his asthma/allergies. A doc at Childrens Hospital suggested we give the Brand name Singulair a try - thinking that perhaps the brand name is chemically different enough to avoid the potential depressive side effects. Well after about 2 months on the brand name, my son is experiencing what I would identify as deeply depressive tendencies. He told a teacher at school that he wanted to hurt himself. It is totally out of character for him - he is normally the brightest most bubbly positive child in the world. I would value knowing if anyone else has had these experiences and if there are other med alternatives out there.

M - posted on 02/09/2013

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My son has taken singulair since he was 4, and he will soon be 9. He is and always has been a very well- behaved, good, kid. My other son, however, used to have horrible night terrors and insomnia. He was diagnosed with apnea, and also has anxiety and ADHD. When he was first trialling several anxiety/sleep meds, he had really scary hallucinations, where he woke up wide eyes, glassy, and didn't seem aware of us. We stopped it right away. I think it important for individuals to be wary of jumping on a bandwagon, and consult with their individual child's paediatrician, AND know that as your child's parent, YOU know them best. I also agree with other comments that dyes and added ingredients can cause a lot of worry, and concern about a med that might not be the actual med but the additive! You can ask at many pharmacies, especially compounding pharmacies, for additive free meds. Singulair has been a godsend for our youngest son- without it he was sleepless, had pneumonia constantly, and coughed all night. Our pulmonologist and pediatrician recommended trying singulair. He has never been better! I think it important to note that ALL medicine has a long list of fairly significant side effects. One has to consult with the appropriate doctors and if researching online make sure to consult REPUTABLE medical sites such as the MAYO CLINIC, etc... But parents know their kids best! It is benefits outwaying risk, on a very individual basis. Good luck to every family dealing with the stressors of a chronic illness.

Diana - posted on 02/04/2013

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OMG, My son has been taking Singulair since he was 4! He is now 12 and taking Focalinxr because we thought he had inattentive ADHD. Everything I've read here says Singulair could be responsible for that! The biggest alarm is the fact that my son had to have occupational therapy because he had poor gross motor skills and I am reading here that Singulair can cause Hyperkinesia which my son displayed all of the symptoms for. Wow, time for me to have a nice long chat with the Pediatrician!

Holly - posted on 01/11/2013

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Pharmacies will occasionally change between generic forms of a drug and each one has a little different formula giving you different side effects. If your child was on a generic this could be the reason.

Danyell Arrae - posted on 12/11/2012

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both of my sons that were on it for about 5 years it wasn't til after about 2 1/2 years when they started having serious behavioral issues night terrors .... i took them off it after several times of taking them into the dr. and the last visit i had for my daughter the dr said "oh yay there are some side effects to this medication, but it is very rare so we doctors tend to forget to to tell them to the parents" and guess what all the same issues i have been askin about with my boys that they never would do anything about. She prescribed it for my daughter i refused to give it to her and imediately took my boys off it. Within a couple months they where great school and home behaviors are gone and my 11 year old was having depression and suicidal thoughts now he is a great team leader in school and his 6th grade football star. It is just scary i am very careful about what i give my babies or even myself anymore.

Danielle - posted on 12/11/2012

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Our daughter age 5 was on Singulair for 10 days worked great, but after 7 days started talking about wanting to die so I called and we took her off, now she is having troubles breathing again! What can we do for her that doesn't have all those side affects we hate drugs I want natural that works!

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