Susie - posted on 10/28/2008 ( 2 moms have responded )
Hey, I am new to this group. Just thought I would give a little background. My angel Jack Jack was born 5 years ago. I was in labor for 12 hours and didn't see one doctor until the last 18 minutes. He was decelerating for 3 hours before birth, but no doctor. Finally, 18 minutes before he was delivered, he decelled and didn't come back. They used a vaccuum twice and it popped off, so they grabbed the forceps, and they slipped off, he was in severe distress. They cut me to a 3rd degree epesiotomy and reapplied the forceps. He finally came out, black with no respirations and no heart rate. They finally got a heart beat and 9 minutes after he was born they intubated and took him down to the NICU. We were in the NICU for 6 weeks where I was told that he may not ever see the light of day. He had his first seizure at 5 hours of age. He had a G-tube placed at 3 weeks of age.
A year after he was born, I found out that the hospital where he was born, intubated him a total of 4 times in 39 minutes and until the last time, did not get it right. So he went a total of 66 minutes without pure oxygenation of the blood. He was satting at 27% for 35 miutes.
He has severe extrapyramidal CP, intractable seizures, CVI, HTN, asthma, Trach and G-tube ddependant, sensory integration disorder, pervasive primitive reflux disorder, VNS patient, Keto kid and all around goofy kid.
I joined this group because had the doctor come in to see me during those 12 hours, and done a C-section, my son would be walking and talking and live a long life.
As it is now, I am blessed that he has made it 5 years, but I am told at every appointment that we are living on borrowed time. I know that my angel is a fighter and I won't believe that he is going to die until he tells me it is time for him.
Until then, I am fighting every day of my life for him.
Thanks for reading