Karin - posted on 12/29/2009 ( 6 moms have responded )
Hi, my name is karin and i have a son named Ryan who has a blood clot in his brain. When he was 17 months he developed a blood clot with a bleed. he is now 6 and he still has it and probably always will. He has a clotting disorder known as a prothrombin gene mutation factor II. My daughter also has the clotting disorder. I have an older son who does not, because both the blood clot and clotting disorder are rare finding other parents who have gone through this is hard to find. Does your child have to take any kind of meds for the clot or clotting disorder? My son Ryan gets two injections of Lovenox (blood thinner) a day. I would love to talk to anyone who has gone through this.