ALL

Brandy - posted on 03/14/2010

Hello my name is Brandy and My daughter lexie was just diagnosed with ALL about two months ago and this is a new hard road for us its so new and theres so much info that its very hard to keep up so im hoping this website and meeting other moms will help Im new at this and not to sure what im doing so if anyone has any advice it would be helpful Thanks

Marlene - posted on 01/03/2010

Hello, My son was diagnosed with ALL in July 2009. Its been a bumpy road, in the hospital 3 times so far for a total of a month so far. They said he total treatment will be about 3 1/2 years. was going back and fourth to the doctors two times a week, until recently we moved to every 10 days with every other turn going two days in a row. It gets very tiresome going back and fourth and missing so much work. Hes a strong kid and by looking at him you can't tell hes sick, even when his counts are to low for treatment hes still running around playing with his brothers and sister. Hes the youngest of 6. Hes my hero I don't think I could handle has much has hes been going through if it was me, he is definalty stronger then I am. To all the families out there Stay Strong and my thoughts are with every one of you as we go through these tough times.

Renee - posted on 09/13/2009

our daughter was diagnosed with all in april 08 at age 3yrs. we are currently in her maintenance phase and we will continue on this path until july 2010. she has been cruising (compared to last summer at this time) through her treatment since last january when this phase began. she recently (in august) was hospitalized bcz her counts were too low for treatment and stayed off her chemo for 4 weeks. its just all part of the roller coaster ride....as routine as it all becomes, it is still never really routine. just when you think all is well...wham...your in the hospital looking around and remembering where it all began. my daughter is my hero...ive learned more from her at 4 than i have from most people i've met in my entire life. these children are very special....they are here to teach us our lessons at their very young age. my prayers are with you for your daughter...keep the faith and hold onto all your moments, they pass way too quickly.

renee

Margo - posted on 07/25/2009

Hello Amy - I will be praying for you and your family. Our daughter was diagnosed with ALL in 1990 when she was 6 months old. Today she is 19 years old and considered a walking miracle. I am so sorry your daughter had a relapse and will pray that she completes her treatment this time around...

Lisa - posted on 07/17/2009

My daughter was diagnosed in May 2008 (she was 17 months old at the time) with ALL. She goes to Children's Hospital in Buffalo NY and they have been remarkable. So caring and attentive. The first few months were extremely hard on her (and our family). Its hard to watch your child go through this. She has a mediport and is currently in maintenance treatment. We have been extremely fortunate to only have a few bumps in her road to a cure (so far). Some days, some months are harder than others. Its great to read the encouraging posts from people. Some days are hard on me too :) Her counts are low right now and medication has been changed (its happened before) but it breaks my heart.

Cheryl - posted on 07/08/2009

My son Avery was diagnosed with ALL a week after his 2nd birthday in March 2009. He was in remission after the first month of treatment and is now in the Interim Maintenance phase, which is almost, if not more, strenuous than the first month. Just a couple of weeks ago he had an allergic reaction to one of the chemo drugs (PEG-asparaginase), so now he is having to withstand leg shots (not fun). He has come such a long way already. It is such an emotional and traumatic experience for young ones. My heart and prayers go out to all parents who have children with any sickness or disability.

Joan - posted on 06/29/2009

Hello, my daughter was diagnosed with ALL in October of 1989. She was just 7 years old. She went though 2 years of chemo at Children's hospital in Wash. DC....We had MANY ups and downs....

She is now a lovely 26 year old young lady and has been cancer free for 18 years.

Hang in there!

Melanie - posted on 06/28/2009

My daughter was diagnosed with ALL a few days after her 2nd birthday this year. We are in the middle of the first intensive block of treatment which was delayed a week because her levels were just below the limit for starting. She wasnt so good the first week but we were told it was due to the higher dosage of steroids she was taking. She is such a happy wee girl, to look at her you wouldnt think there was anything wrong. We've still got a long way to go before reaching the maintenance year so we are keeping everything crossed.

Nicole - posted on 06/01/2009

My son as diagnosed 12 days after his second birthday, in 2004. Hopefully he'll be done in November with all his treatment!

Nicole - posted on 06/01/2009

My son as diagnosed 12 days after his second birthday, in 2004. Hopefully he'll be done in November with all his treatment!

Sylvia - posted on 04/30/2009

My son, who had just turned 3, was diagnosed with ALL on Easter 2008. He was in remission after a month of treatment. Now we're in the maintenance phase for another two years. There are delays because his ANC goes down and he becomes neutropenic at times but this is normal because of the chemo. He's doing great but as a mom I still worry what problems (if any) he'll have to deal with in the future because of the chemo he's taking now. He's my little fighter and I'm amazed at how resilient and strong he is. I admire all you moms out there who are going through these hard times and staying strong for their children. Hugs & prayers to these wonderful kids dealing with cancer.

Michelle - posted on 04/19/2009

Amy, my heart is full of joy for you. The long and very difficult travel is about to end. This chapter in your life was so meaningful and painful yet the reward and blessings to come is without compare! Congratulations and I salute you for your strong will and strength. With messages like yours keeps my hopes up, my determination strong and my heart to be filled with hope. I know soon my son will be better more stronger thhaan ever! Hugs to you and to your beautiful daughter. You are amongst the many moms that I admire! God Bless you!

Michelle - posted on 04/19/2009

Hello Kelli... My son was diagnosed with ALL just Oct 23, 2008. We just finishe intense chemo on him and yes his LP got delayed because his wbc is very low. It is normal for them to get low counts because of chemo. I hope your baby good health always... stay strong!

Tracey - posted on 04/02/2009

My son was diagosed with ALL on July 4th 2008 aged 16.Several months of intense chemo a TBI at the start of this year and a Bone Marrow Transplant on the 14th of Jan 2009.The donor was cord blood,he is now 78 days post transplant & doing as well ,as what they hoped for.But i can't wait for that green light from the doctors,so our lives can go back to some kind of normality....

Marina - posted on 03/26/2009

Hello Kelli,

I dont think that you have to worrie, its happen to lots of children with ALL. It goes with the sicknes. Some more than others.

Im wishing you and your family the best.



>>Marina

Kelli - posted on 03/25/2009

My daughter was diagnosed in Nov. 2008, two days after her 4th birthday. We are still in the initial phases and are looking toward maintenance in July. It is very frustrating because it seems each time she goes to start a new phase we are delayed because her counts are too low. We just went today to get her second dose of methotrexate and her counts are still too low. Does this happen with other kids too?

Wanda - posted on 03/16/2009

my name is wanda and my son was diagnoised w/ALL in nov.07,we have been in remission since nov.08.austin is my baby and i just got custody of him from his dad just ayear before he was diagnoised. im just mad because i feel that his dad got his good years and im getting the bad years.



sorry to just be pouring my buss.out to you like this ,but i just hate watching my baby go through things that they do.he hates spinal taps the most. he gets one once a mo.

Tanis - posted on 01/21/2009

Our son was diagnosed with ALL in Oct. 2007 at 3 yrs old. He's doing well right now, and on the maintenance phase for the next two years. Last week we found a break in his Broviac, so it was replaced with a port yesterday.

Amy - posted on 01/20/2009

My daughters treatment was 2 years.. she relapsed 9 months after completeing treatment so we have been going through it all over again.....  Hopefully we are done this july

Marina - posted on 01/17/2009

My soon´s treatment was for two yaers. The first half mounth we lived (it feels like) at the hospital. We went back anf forwards from our home to the treatment at the hospital during the first year. Sometimes it was done during the day, and sometimes we spent severel nights at the hospital. Lots of medicin we could give him at home the last year.

Best good luck whises to your sonn, lets bee in touh so i can hear how it went. Love from Marina

Allison - posted on 01/16/2009

I forgot that he had ALL also

Allison - posted on 01/16/2009

Hey...My son was diagnosed when he was 15 mo. old in Dec. of 2005...We have 3 weeks of treatment left and I am so excited but so scared at the same time...Where did y'all have treatment and how long was it?

Lisa - posted on 01/15/2009

My son was diagnosed with ALL at age 6 in 2004. He completed the first round of treatment and was in remission then relapsed in Feb 2007. We are hopeful that the treatment will be finished by this time next year.

Amy - posted on 01/08/2009

It has been such a long road and we have been through so much. She needed a bone marrow transplant but there was no match until we had our son. she calls him her hero. Im glad your son is well it gives us jope knowing kids are doing well after all of this

Marina - posted on 01/05/2009

Hello, my soon was diagnosed whit ALL two weeks before his 2nd birthday in 2000. I´m sorry to here that your daughter had a relapsed, i hope she will get better soon and respons good to the treatment.

My son just celebrated his 10 birthday, and is free from cancer and has been sense 2002. I wish you and your family a happy new year and best whises in 2009. Whit love from Marina (from Sweden)