Janalee - posted on 11/21/2008 ( 15 moms have responded )
I am reading all the posts and I am so happy that the majority of your children are in remission and doing well. I also see many of the children having leukemia, this is a great site to be able to connect with each other. However, My 9 year old daughter doesn't have leukemia and is not a canidate for chemo or radiation and has less than 2 years to live. She has several rare abdominal tumors that are not safe to remove. So she is on experimental medication. Regardless, her life expectancy is very short. Maybe there is not a group for me? The mothers with a death of a child group is another one that I have joined. But my baby is still alive. I need a group for moms that are dealing with terminal children and how to talk to them about it and preparing for things... Can someone relate to me?? or know of a group for me??? please and thanks.