Hepatoblastoma

Elizabeth - posted on 10/10/2012

Kelsey, How is your little man doing? How many more treatments does he require? Were you able to make his stay comfortable? I will add you and Carter to our church prayer group. Life sometime seems unfair and dark but remember the Lord is your strength. My daughter was born with hepatoblastoma and we just celebrated her 2nd anniversary in remission. Trust in the Lord.

Elizabeth - posted on 10/10/2012

Summer, I pray your princess is doing well. My daughter was born with hepatoblastoma in 2010. She underwent 4 rounds of chemo, followed by surgery, and finished treatment with two more rounds of chemo. On October 4th we celebrated her 2nd year in remission. We feel blessed for the experience, though difficult, and for her healing. Thank you for sharing your story. GOD bless you and your daughter.

Kelsey - posted on 04/22/2012

Hi my son is 19 mth old he was just diagnosed last month with hepatoblastoma he has had a surgery to remove the tumour and it went very smoothly after further studies he was diagnosed with stage three and will be starting his chemo this comming week. last week he had a 'port o cath inserted. This has been so terrifying for me and its hard to not feel like i cant do anything to help. my son carter is so strong and brave and i know were going to make it threw this. im a single young mom living on welfare his bio father dosnt even pay support...at times this seems to much but then i see carter carrying on his regular self like nothings happening with a big smile and he gives me strength to keep my chin up! He will need the 3 night chemo treatment so i was wondering what kind of atuff i can bring or buy that will take his mind off of everything hoinh on in hospital.

Melissa - posted on 10/19/2010

Hi Summer! I just joined this group, so I'm really late in responding to your post! :) My son had Stage III Hepatoblastoma, dx when he was 10 months old, after 6 months of chemo, an attempted liver resection and full liver transplant, he has now been cancer free/post transplant 3 years now! :) He is a very happy and most of the time healthy 4 year old that can now grow up with his twin brother. Everyday I am so thankful that he is still with us. How is your daughter doing now? Have you noticed any late-term chemo side effects? It's always so rare to meet other moms with that have been thru this same 1 in a million cancer. Feel free to friend me or message me if I can be of any help at all! Big hugs to you! :))

Summer - posted on 07/29/2010

Aimee,

I am so sorry about your daughter! I will pray for her. What is her name? I will certainly keep her in my daily prayers. I pains my heart to hear that that the cancer she has is untreatable. Please let me know if there is any specific prayer needs you have and I will pray... that is one thing I have gotten very good at since Lylah's diagnosis.

Take care Aimee and give love to your daughter!
Summer

Aimee - posted on 07/29/2010

Hi Summer, my soon to be 12 year old daughter has a rare form of ovarian cancer. This type of cancer is untreatable. Right now I'm a bit of a mess and don't think I can be a help to you. But, I wanted to respond with my prayers for your baby and you! I have not been in this group for long, but I have noticed that it is very inactive. No one seems to be responding to the few posts going out. I hope that is just a short faze. I pray that you find the support you need.
Aimee