I would like to get on MOMS whose children who have cancer

Audrey - posted on 12/23/2008 ( 19 moms have responded )

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My son was 12 yrs old when he died of brain cancer. That was 30 years ago but I am still affected deeply. I would like to help other moms whose kids have cancer.

Audrey

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19 Comments

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Seki - posted on 02/06/2013

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Prayers

Seki - posted on 02/06/2013

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I have a son who was diagnosed with brain cancer in 2012 and would love to talk to you.
6157794934
Seki

Seki - posted on 02/06/2013

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My son had brain cancer and is currently in remission. We started Joshua Cares and we take donations all year long. We see so many kids that need help with basic needs. We have helped 200 kids to date and would love to bless even more. Our website is www.joshuacares.weebly.com
I can also be reached at 6157794934
Thanks

Wendy - posted on 08/15/2012

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my 23 yr old son has been fighting brain cancer since Aug 15, 2009. June 1, 2012 we were given the news that he had the choice of treatments that would NOT cure it or Quality of Life. He chose quality of life. I am watching my child, everyday come closer to leaving this earth. I couldn't imagine ever being in such unusual circumstances. He is every mother's dream child from birth to even now. He had always been healthy, not even the common cold. Big hearted, very smart, handsome, always willing to help someone else before himself. I am deeply saddened to know that one day he will be gone. I won't be able to hug or kiss his sweet face. I am holding onto my faith as best as I can. Condolences to all of you women that have lost that special gift from God. I am finding out just how hard it is, especially since all I can do is watch and can't do a damn thing for him. That's the part that sucks most!!! Friends don't know what to say or how to act. My employer is pushing me into the unemployment world because they don't want to see me to be reminded of my sons diagnosis. I find those kinds of people weak and really no one should be around people that are like that in these types of situations. They pull you down when we need all of the strength, encouragement and wisdom we can get during these difficult times. Look for positive and inspirational people to surround yourself with. They are the one's that help get you through!!!

Sherise - posted on 07/31/2012

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my 7 yr old son was diagnosis with wilms tumor (kidney cancer) stage 4 on june 29 2012 so im new to this still im so scared for my son the tumor was 6-8 pounds he went from being chuckie to bones in a matter of three weeks or we may have still not know about this tumor i would love to find more mothers i could talk to who had/have children with childhood cancer since this came down i feel as if i lost friends because they dont understand how i feel

Meltem - posted on 07/19/2011

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I have been a grieving mother for the last 5 years. In the meantime, I have built my trust/charity foundation to conduct research on childhood cancers and also fund students who wish to do Masters or PHD in Epidemiology and Public Health in relation to causes of childhood cancers. Trust website is www.cce-researchalliance.com. The community project site is www.montyscorner.org.

I recently had the courage to cry out my pain publicly and launced a tribute balloon in memory of my beloved daughter Melanie - http://tributeballoon.com/balloon/show/1...

Melanie's tribute balloon is not only for Melanie but for all those beloved ones who have left us too early.

Gillian - posted on 03/10/2010

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my daughter was 5 when she died of ovarian cancer she was diagnosed with it when she was 12 months old at 12 months old she had one of her ovaries removed

Josee - posted on 03/10/2010

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Hi Audry. Thank you for this. My son has 25 tumors through out his body but the ones that are affecting him the most is his optic glyomas and the tumor on his brain stem. I am sorry about your son. The doctors told me they do not know how long my son has to live and every day is a blessing. Caleb was diagnosed at the age of three and is now 10. He is a fighter and constantly tells me he is not ready to die. These children are amazing and every one could learn alot from them. I just want to tell anyone out there that I am always happy to help even if it is just an ear to listen. We are connected by this I truley believe that.

Gillian - posted on 01/28/2010

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my daughter was 5 when she died from ovarian cancer in 1990 im afffected deeply the same as you audrey i still have good and bad days

Mariann - posted on 01/27/2010

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my daughter has a nephroblastoma(Wilms Tumor) she lost her right kidney part of the liver & adrenal gland plus it has spread to the lymph nodes but they have sustained it there we have finally reached maintanence mode but CT & Ultrasounds every 6 weeks are a must, I am so sad to see & hear how many children are affected by this dreaded desease and prey one day they find a cure so no one has to suffer the treatments and loss that can come from it ♥ thinking of you all that has lost a child {{hugs}}

I am In australia

Teena - posted on 01/22/2010

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hi there Audrey i am sorry to hear bout your son. My son is 19 and was diagnosed at 6 with a brain tumour he was given 6 mths with or without treatment.He is still alive today i am very lucky to have my son with me and it breaks my heart to hear of other parents whom have lost there child. My sons tumour was called ependymoma on his brain stem he has a shunt he has been in remmission for nearly 13 years now..he fought and he has won so far i am very proud of him...i do sometimes feel guilty that my child survived and others didnt..i am here to help other parent through this as i feel we all have a special cancer bond.my son is an inspiration to all children and adults with a brain tumour and cancer...from teena

Gillian - posted on 01/19/2010

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hi audrey i lost my daughter in 1990 age 5 with cancer im still affected i still have good and bad days i also got a son that had cancer of throat age of 13 but luckly he fine now he 27 and got a 4 month old son

Gillian - posted on 01/19/2010

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hi i like to get on moms with children with cancer my daughter died in 1990 age 5 years she had rare form of cancer but the cancer was on ovaries cancer of ovaries but rare form she was 12 months old when she was diagnosed. im still affected deeply like audrey says. i would like to help other moms if i can and speak to moms like me that have lost a child Gillian

Jennifer - posted on 10/16/2009

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My Caleb would be 12. He passed away 3 years ago at the age of 9 after he battled a primary sarcoma of the brain for 9 months. He went through 5 rounds of very extensive chemo. He got a virus, a bacteria, and a fungus all at the same time while having no immune system to fight them off. You can read about our journey on our blog: caringbridge.org/calebanderson



I am a deeply Christian woman myself. Yes, your worldly side wants to keep your child with you. After all, you are the mom. But knowing that God created each of us for an eternal purpose and trusting that His plan is Sovreign, we must let go. Children are simply entrusted into our care, but they are never truly "ours." They are a tremendous gift on loan from the Father above.



After three years, is it easier? Not really, just different. I think part of the mourning process is to realize we had certain expectations of raising children, and those simply were not met. However, we are not in control. We must treasure the memories we have and work to make new ones. I give my immediate family snowflake ornaments every year for Christmas. To me they represent my Caleb. Snowflakes are all unique, and they are all temporary. Here for a season, and then gone. So delicate and precious, yet fragile. Handle your children with great care, and be so thankful for the moments you had/will have together.

Juanita - posted on 04/01/2009

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My name is Juanita I have a on who us currently a cancer patient and he is diagnosed with stage 4 neuroblastoma, the prognosis is not good. We were told about a month a go that he was not curable. The chemo treatment he is on right now is pretty much just to prolong his life. I am a Christian woman, but the worldly side of me does not want to let go of my son that soon. So please pray for my family and my son noah.

Kelley - posted on 03/15/2009

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my son was diagnosed with OMS 2 yrs ago. He is now 4yrs old,still on the acth steroid shots every other night,IVIG every 4 wks plus sleeping meds,blood pressure,and a few others. He is doing well but dont know when he will be off any of the meds at this time. we just take it one day at a time and enjoy the family! Kelley& little man Tyler

Christa - posted on 02/21/2009

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Hi, My name is Christa Steyn, from South Africa.  My son passed away on the 7th October 2008.  He had Globlastome Mutiforme (grade 4 brain cancer)  This is such a horrible cancer. I cannot believe JC is gone. It is only 4 months but it seems to be so long.  I took care of him till the end.



We did everything we could to cure this cancer, even took him to Houston, Texas. We had faith, pray and believe but nothing.



Who believes more than the sick one himself or a parent of a sick child that he will be cured? I do not understand life.



On JC memorial website a parent wrote:



 How long will the pain last?
All the rest of your life.

But the thing to remember is that
not only the pain will last,
but the blessed memories as well.

Tears are the proof of love.
The more love, the more tears.

If this be true,
then how could we ever ask
that the pain cease altogether?

For then the memory of love would go with it.

The pain of grief is the price we pay for love.”



This sms we got: You never get over the death of someone you love, you get through it.  It becames part of the fabric of your life. 

Doreen - posted on 12/24/2008

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My 6 year old was diagnosed with Leukemia over a year ago. We are in the Maintenance Phase which lasts 3 years from January 2008.

Audrey - posted on 12/23/2008

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I want to hear from parents whose children have died from the dreaded disease or from Moms whose kids are living with cancer.
Thanks, Audrey Katz