My 5 year old was diagnosed with a Stage 4 Wilm's Tumor

Tiffany - posted on 05/08/2013

Yes, i am a mother of a 6 year old boy with a Wilms Tumor. His was a stage two, meaning he has a different treatment plan then your family has ahead of them. We discovered it on April 19th, we were sent to Childrens immidately. He had surgery three days later, by then the Tumor had grown three times the size it was on the first night. I am staying at the Ronald Mc donald house for now, and we will be living with family soon, he has a cousin who is in his grade for company on the down days. Our children are stronger than we even realize. ;)

Sherise - posted on 11/16/2012

Jacob just finished week 19 of a 31 week plan so far everything has been going good for the most part. been talking to a lot of other mom whos children have cancer one mom her son has had cancer for the last eight yrs it is so scary hearing some of the stories but at the same time it helps getting to know others parents that are going though the same thing even if it maybe a different kind of childhood cancer in each case we are all going though the same thing are children are fighting cancer why,where did this nasty thing come from and why cant we find a cure for it so no other child has to go though what are children are going though i pray for each and every child to be cured from cancer each and every night may one day this wish come true

Sherise - posted on 10/16/2012

my son is now on week 14 Jacobs chemo treatments are now 3 weeks apart from each other but he does have two more 5 days stays/chemo intil week 31 when he will be done with chemo and i was wrong on the lumps in the lungs we thought it was 4 come to find out he had 8 the 6 weeks of chemo got rid of all but 1 so Jacob ended up going though 6 days of radiation on the lung area at are last scans it showed the lungs clear and also the abdimon area so things are looking good but im still so worried about my little boy i love him so much as we all love are kids

Tana - posted on 10/15/2012

My son is 3 an was diagnosed with wilms disease he has a large tumor on his left kidney an a small tumor on his right kidney, he will start his second week of chemo friday je has 6to weeks total befor they remove his left kidney an the tumor an hope that the chemo killed the cancer cells on the right kidney, after his surgery they said more chemo! I was told its stage 5 since its in both kidneys but its not in his lungs or any where else! !

Bella - posted on 09/15/2012

Hi moms, i hold you in my hearts...have faith and peace... I know this is a parents worst nightmare, but you can and WILL get through this. My son Luke was dx at 2 1/2 with stage 4 Wilms favorable in December of 2010. He had his left kidney removed, had radiation to his abdomen and lungs (both had nodules) and did 26 weeks of chemo. He is still in remission and doing fantastic, praise God and it's been over a year since we ended treatment. He will be playing peewee flag football this week--he is now 4. The road will be tough and there will be scary times, but you can do this...stay strong! I'm here for you if you need to talk! May God grant you and your babies courage and healing...

Kristie - posted on 09/08/2012

My four year old son was diagnosed in April 2012 with Stage IV Wilm's tumor (favorable histology). He has nodules on his lungs. He had his left kidney removed and he's had 8 radiation and 13 chemo treatments so far. He had to have another surgery in July to remove scar tissue from his intestines. He has 2 more chemo treatments left until we have another CT scan in November. I try to stay positive. He's handled everything like a trooper. Reading the stories about reoccurances is very scary to me.

Sherise - posted on 07/31/2012

on June 29 2012 my 7 yr old son was diagnosed with stage 4 Wilms tumor my son also lost the left kidney his tumor was 6-8 pounds he has 4 lumps in his lungs we did 7 sessions of Radiation and doing 6 sessions of chemo treatments after the 6 weeks we look to see how everything looks and that will decide if the treatment plan we r on will work or not if it aint working my son will have to have Radiation done on his lungs and harder chemo so i would love to start to write to you when we have time i will keep you son in my prayers

Emma - posted on 07/24/2012

Yes - My son (4 1/2 at the time) was diagnosed with stage 2 wilms tumor in January this year. He had 4 weekly hits of chemo then surgery in february to remove the kidney and tumour and then 18 weeks of chemo. We have just finished and he has just had his final ct scan and the original site of cancer is clear but he has a lump in his throat and we will start investigating this next week.
Fingers crossed its only a cyst or gland.
I feel for you, i've been there and its hard - do you have any other children. I have a 10 year old girl and an 8 year old girl?

Jennifer - posted on 05/14/2012

My heart goes out to you and your daughter. Cancer is scary, and the little ones seem to be such troopers in all of this. I live in Wisconsin and trying to find some support groups to join.

Linda - posted on 05/13/2012

My 4 year old daughter was just diagnosed with acute lymphoblastic leukemia on May 1st. I know it's not the exact same thing but I can relate to the situation you are going through. Kyli has had 2 spinal taps and a bone marrow biopsy done since she was diagnosed. I joined this site in hopes of finding moms that are going through the similar situation.