I would love to talk to other moms w/ a child who is dyspraxic

Stephanie - posted on 02/21/2010 ( 15 moms have responded )

6

1

0

My name is Stephanie. My husband Jon and I have a beautiful soon to be 3 year old daughter named Aleksia. She is incredibly sweet and socialable. She is happy all the time and loves being around people. She has always been very good natured and easy going. We noticed that something wasn't right when Leksi didn't meet her milestone of crawling on time. She didn't crawl until she was 18 months old and didn't take her first steps until she was 22 months. She was diagnosed w/ hypotonia (low muscle tone) @ 12 months but I felt there was more going on. She has had every test under the sun and thankfully everything has come back normal. Her current diagnosis is developmental delay, dyspraxia, and slight ataxia. She is going to the special needs preschool in our area and making HUGE progress but she is still not talking and falls due to being unbalanced. My mom's group is wonderful but I would LOVE to talk to someone who has a child w/ special needs like mine.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

15 Comments

View replies by

Jami - posted on 12/11/2013

12

22

0

I have a 6 year old and am still awaiting a diagnosis. So far, developmental delays, speech delays, but I have known since she was 3 years old she has Dyspraxia. It affects all her motor skills, she was late in gaining new skills and a late talker. She is making progress, but continues to have delays. She has received Early Intervention therapy, then through the public school district and is now repeating kindergarten. This was her teacher's recommendation with our support as she is also socially delayed, and hesitant with her peers. We have her on a gluten free diet to improve her attention and task focus. She loves being around her peers, but now struggles to verbally problem solve, and likes to be in control, therefore causing some issues. Her little brother has become such a good role model for her, but loses patience with her as do I. It's a daily battle and consistency between parents is key. I would love to chat. Feel free to reach out. My name is Jami and I live in NJ. Where are you?

Kim - posted on 06/10/2012

8

74

0

Good morning! a dear friend of mine has just written a book about her journey with her now 14 year old daughter and their experience with dyspraxia and SPD. Here is the facebook page, which includes links to several support groups and resources, including Michele's book. https://www.facebook.com/pages/I-Believe-in-You-A-Mother-and-Daughters-Special-Journey/303640969660039
I invite everyone here who is learning about their child's special needs to join our discussion led by a mother who has raised such a child into her teens. She discusses advocacy, therapies, how to deal with doctors and schools. You'll learn so much from their journey.

Tanya - posted on 05/11/2011

186

214

5

Hi Amanda

My 2 boys do not like the noise of the shears being used , my youngest son is frightened of the hoover , toilet flushing , bright lights , cars, motor bikes ,lorries going past him when we are walking , he does not like the noise of the hair dryers either , my hair dressers are really good they cut his hair with the scissors , I explained to them the problem & she gets me an appointment when it is really quiet where do you live ? My younger son has soiling problems too we have to take him to the toilet regularly as does the school but he still soils yesterday for the first time at school he did a wee , pumped & did a poo on the toilet , he was proud of himself , but he does not feel when he needs to go to the toilet he has been on laxatives since he was 3 months old , he has been in & out of hospital because of his bowels for clearouts ,if you need to chat , I am hear for you , do you think your son is autistic too ? , loud noises , bright lights , not being able to cope well with change etc, phobias. my OT for my 2 boys has finished her assessments & says both my boys are dyspraxic & my younger son has alot of traits of autism & says he is autistic too ,it was a huge relief as I knew something was different .

Tanya - posted on 05/11/2011

186

214

5

Hi Stephanie
Well my 2 boys have had their assessments & their OT came out to my house yesterday to give me the diagnosis , they both are dyspraxic , my younger son also has alot of autistic traits too , so she says he is autistic , I felt a great weight being lifted off my shoulder ,I knew something was wrong with him ,parents know a child better than any one , my younger son also sees a Physiotherapist she says he has short hamstrings & his akylies ( ankle joints) are very tight too she is going to see him in school this week & will get in touch with me then .If you ever want to chat or want a pen friend , I will be more than happy it is nice to know I am not alone , the boys OT gave me special knives & forks for my children , they have to use them , for the first time they used them it was hard for them , but I think they will get the hang of it.

Izzy - posted on 11/09/2010

9

7

0

Sounds like my daughter with dyspraxia! would love to talk anytime:) Izzy, mom to Jordan age 6

Tanya - posted on 10/03/2010

186

214

5

my 2 sons always falls over 2 my youngest broke the same leg twice in6 months the first time he broke his lower leg , the second time he broke his thigh bone ,

Neither of my sons are good at pe there balance is not too good , my son who is nearly 8 is not a good writer or drawer but tries his best , he is now getting upset because other children are teasing him about his writing & drawing . my younger son has major problems with writing , neither can ride a bike with out stabilisers , neither of my sons can tie laces , I would love to chat with other mams , my doctor says he reckons 99% they have dyspraxia , but needs a letter from the school . I am at my wits end as my older son does not want to go to school in case they make fun of him as he is really slow at writing & he does not want them to make fun of his writing or drawing it is getting him down . from Tanya

Tami - posted on 05/27/2010

1

4

0

My son is 4 With dyspraxia, mild sensory process, motor delays. First time on here.Kinda cool this is nice to chat with someone who knows what im talking about. recently sons started to do this funny eye brow raising do you know if thats to do with some kinda of sensory processing?? And just started him on fish oil speak..with in 1 week of taking his out of control behavior is wearing me down.he.is normay al sweet natured and loving.little man. he is speaking much better allthough what to do hmm..

Emma - posted on 04/29/2010

6

50

1

hello i have a son who is 9 years with dyspraxic. my son was the same with learning to walk. he could not craw at all he just went in to walking. my son alway at the hospital dew to falls. he is very good with maths and experments. my son is also easy going and very good and is willing to learn new things. he cant ride a bike. and sport is hard for him but he enjoyes it. looking forwards to getting to know you. hugs if ok em x

Stephanie - posted on 03/01/2010

6

1

0

Thanks so much Tina. You are very kind and I think I will take you up on it.

Tina-Maria - posted on 02/28/2010

16

41

1

thats good to hear Stephanie, I hope you have a great support system with your OT and Speechy and that they understand her, keep an eye on anything else that may pop up that she may need help with even if it seems small... I wish I had of gotten speech therapy earlier than I did as its hard on everyone involved when the communication just isnt there. Any thing else that you want to talk about concerning dyspraxia I'm only a computer click away.

Stephanie - posted on 02/27/2010

6

1

0

Hi Tina. It doesn't sound silly at all. Thanks for the advice. Leksi is getting private OT, PT, and Speech. She also gets these services through school. I know it's helping. Thanks for writing.

Tina-Maria - posted on 02/27/2010

16

41

1

Hi Stephanie, I live in Australia but I have a 5 yr old daughter who has speech dyspraxia, but also suffers with mild pysical dyspraxia. She has been going to speech therapy for a year and behaviour therapy for about four mths. She has also been given exercises for her inbalance and clumsyness, so if you have ocupational therapist where you live I sugest seeing them as there co-ordination problems with dyspraxia can give them problems when they go to school, from fitness classes to reading and writing, I know it sounds silly but it can make it hard for them to do simple things like hold a pencil, scissors and even have trouble reading from a blackboard. early intervention is best because they need all the practice they can, my daughter still has trouble using scissors at 5 and I have been working with her since she was just over 2 yrs old

Stephanie - posted on 02/24/2010

6

1

0

Hi Amanda. Thank you for getting back to me and sharing your story. I wish you and your family the very best! Do you live in VA?

Amanda - posted on 02/23/2010

44

16

13

Hi, Stephanie. I actually have 3 children with special needs so I know what it is like to just need someone to talk to. I have a 10-yr-old son who was diagnosed with Type 1 diabetes when he was 7. I also have a 6-yr-old son with dyspraxia and a 3-yr-old son who also has dyspraxia, though not as severe. Our 6-yr-old had the speech equivalancy of an 8-12 month old when he was 3. He still couldn't say "Mama". He has severe difficulty with eating and is very limited to variety as well as texture. Like your daughter he has difficulty with his legs and will just fall down for no apparent reason. He is now suffering from encopresis, which means that he can no longer feel the urge for bowel movements so we've had to put him back in diapers. He is highly sensitive to everything. Fireworks shows require being far away with sunglasses and ear plugs. He hates the feel of band-aids and I've had to start cutting his hair myself because I can't find a salon that can deal with his sensitivity to getting his hair cut. I thought at first that he had PDD-NOS but the neurologist said that it was in fact dyspraxia. He also attended special needs preschool at our local school district but now that he's 6 he is only able to receive speech therapy. We are now trying to look into other programs to help with his other physical and sensory needs.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms