Amanda - posted on 05/20/2009 ( 16 moms have responded )
I have a 5-yr-old son with dyspraxia. When he was 1 he didn't say anything but babble. When he was 2 he still wasn't talking much. By 2-1/2 he said 2 words but left off the first syllable. He started taking food out of his diet around the age of 1 but wouldn't replace it with anything else. He was losing weight. When all of these concerns were repeatedly brought up to his dr. we were told he's a picking eater, he'll eat when he's hungry and he'll talk when he's ready. Finally we got a social worker to listen to us. They set him up with early intervention right before his 3rd b-day. He had the language skills of an 8-12 month old. Speech was started right away but with major setbacks. Shortly after he started speech he got a bad ear infection which led to many more. He finally had tubes placed in both ears after this went on for more than 6 months.
The eating has been slower coming. Funding keeps getting dropped for the nutritionists who deal specifically with his problems. His is stretched so thin and has so many kids to see that my son is lucky if he sees her once a year. He's still eating baby food which is becoming very frustrating as his stomach and body require much more food.
As he's supposed to enter kindergarten in the fall I've opted to keep him home. Kids make fun of him or don't want to be his friend because they can't understand him. He's still pooping his pants because he's so delayed with potty training (which is common with dypraxia.) And too much noise or stimulation gives him sensory overload. Some days can be very challenging for all of us. I see kids his age doing what kids his age are supposed to do developmentally and mine isn't doing it. I try not to compare him but sometimes it's just human nature. Tell me your story, I'd love to hear it.