Mom's of Children with hydrocephalus

Hydrocephalus affects one in every 500 live births. An estimated 50% of all shunts fail within two years, requiring further surgery to replace the shunts. Although hydrocephalus was once known as "water on the brain," the "water" is actually cerebrospinal fluid (CSF) - a clear fluid that surrounds the brain and spinal cord.

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hello.

im wondering if the people in this group, can share their stories about hydrocephalus. Where i live i feel as if iam the only on going thru this. Although you i knew meny...

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Hydrocephalus ETV

Hi. I know this is a random post but wondering if anybody can help answer my question. My daughter, Eva (3.5years) has secondary hydro caused by a cyst and had an ETV last week...

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Hydrocephalus ETV

Hi. I know this is a random post but wondering if anybody can help answer my question. My daughter, Eva (3.5years) has secondary hydro caused by a cyst and had an ETV last week...

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Hope this is normal

I just noticed the reservoir on my sons vp shunt is not puffed up like it normally is.... I have never seen it like this before! He is acting normal, and everything else is the...

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Developmental delays

Hi my little girl was born at 24 weeks and has hydrocephalus and a vp shunt. She is now 19 months corrected and is very developmentally delayed I was just wondering when others...

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Hope this is normal

I just noticed the reservoir on my sons vp shunt is not puffed up like it normally is.... I have never seen it like this before! He is acting normal, and everything else is the...

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Obesity

Until recently, I've thought of my son's hydrocephalus as a fluke. I'm very involved with his care, I've participated in studies. I've done tons of research. But what if it was...

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x linked hydrocephalus

im a mom to two sons with this rare case of x linked hydrocephalus. I am looking to talk to other moms that have boys with the samething my oldest son is 10 years old and my...