Mom's of children with limb differences.

My daughter is 19 and was born with fibular hemimelia resulting in amputation of her left foot at 11 months and subsequent 7 other surgerys to the most resent this year to shorten her residual limb for better fitting prosthesis. I didn't know what to do or where to go 19 years ago, but throughout this journey, I've learned a few things. You, too, may have some lessons to share that will help me and others who have watched their children adapt to this diffence. I hope to hear from you.

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Our sweet boy

I was just wondering if there was anyone out there who might have something similar. Our sweet boy was born without his left hand and both feet. They do not have a name for what...

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Bilateral PFFD

My son is 4 months old and has Bilateral PFFD. Are there any moms out there that have a kid(s) with the same medical issue? I have some questions. Thank you.

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Radial Dysplasia

Hi I'm new and wondered if there was anyone out there like us??? My 2 year old has both radius bones missing so his hands are at a right angle to his wrist...he also has shorter...

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Fibular Hemimelia

Hi, My son Nat has fibular Hemimelia right side. He is missing his second toe the next two toes are co-joined. He has no ankle and except for the the toe rays all of his right...

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Club hand

I am 27 weeks pregnant and doctors told us that the 4D ultrasound shows that my son has a club hand. I cannot stop crying! Please help me! Please!

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Lucky Fin Project

I believe everybody is different. Some peoples differences are on the outside and easier to see then the differences others have on the inside. But EVERYBODY has got something...

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Talipies

My son is 4years old he was born with a condition called talapies otherwise known as club foot. He has had 3 operations, we have tried the ponseti method special shoes splints...