Tasha - posted on 02/25/2010 ( 6 moms have responded )
My daughter was born with bilateral PFFD and she is also missing her fibula! I was just curious to see if there was anyone else here that has a child with the same thing! She is 17m old & is an amazing little girl! She is missing the top part of her femur bone so has no hip joints and her knees also don't bend that much at all, from the waist down she is extremely short. She was 15" long when she was born and is 24" long now! It is very rare so I am having trouble finding anyone that has the same thing as her! If there is anyone on her who is familiar with this I would love to to talk with ya, or if anyone has any questions I would be happy to answer those as well! I look forward to visiting with all you other moms!!