mom's of children with Neurofibromatosis

Does any mom have a child or children out there that has this?

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cafe au lait

My 4 month old daughter has 3 cal marks one that cover her arm e goes to her chest and her back. On the left side. One small one in her back on her right side and one in her...

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cafe' au lait spots

My doctor has just refered me to a neurologist for the growing # of spots on my 10 month old daughter that she has had since she was born. I am scared to death. He told me she...

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My Son has NF 1

Hello all. My son was diagnosed at 3 months with NF1. He has a speech problem which is be corrected by a speech teacher. He is 5 soon to be 6. He had a spinal MRI on Oct 18 to...

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NF and brain tumors?

i have NF as well as my son who is 21 months.he was diagnosed at 4 months with infantile spasms but dont know for sure if NF is a cause.as of right now he is seizure free and...

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My son...

has confirmed NF1 and suspected Watson's Syndrome. He was genetically diagnosed with NF1 and we are now waiting on an EKG to confirm pulmonary valve stenosis. Does anyone out...

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Introduction

Hello all. My name is Amanda, my son who will be 6 months on saturday was diagnosed with NF1 at 2 months. Due to my father having this I had him diagnosed as soon as the cafe au...

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My son has NF1

My son was born with bone missing in his right leg. He has had 16 operations to save his leg, with many more to come. I would like to hear from other parents or people with...