Found out today my daighter needs a helmet

Jennifer - posted on 08/27/2009 ( 4 moms have responded )

3

25

0

So we took our daughter, Payton, to the specialist today and it has been determined she needs a helmet for her Plagiocephaly...so sad. She will be 5 months on Monday and I so did not want her to spend the rest of her first year in one of these things. We tried alot to get it to shape out ourselves but no luck.



Moms, please share your experiences. Will she have to wear it 23 hours a day until she is 12 months old like the doctor says??

How does the first couple days/weeks go? She is such a happy baby and sleeps so well for us. I really hope this doesn't effect her too much.



My poor Payton. I know, I know I need to think long term. I keep telling myself that.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

4 Comments

View replies by

Jennifer - posted on 08/29/2009

3

25

0

Thanks for your advice Melanie!

I wish we were getting the helmet now, however, we have to wait until insurance approves it then the molding and fitting. So they are saying it will take almost 2 months before she even gets it. We will be at that 7 month mark. Good thing about that, we will be into fall so we won't have to deal with the heat.

I think they are setting us up with a band from the local company out here.



Thanks again for the info!

Jennifer - posted on 08/29/2009

3

25

0

Good luck to you and your son Jenner!! Keep me posted on how he is doing. knocking on wood for you and for me both. :) My daughter has been sleeping through the night since she was 6 weeks. We have been so fortunate with her. She is truly a very happy baby.

Melanie - posted on 08/29/2009

9

0

0

If your daughter is only 5 months old, she will not need to wear it that long unless it is super severe or you don't get in with someone who knows what they are doing. I've corresponded with lots of moms and the ones who have gotten their babies treated this young have typically not worn it longer than 3 months. I even know one baby who only had to wear it six weeks. If you wait until 7 or 8 months, then it will probably be more like 4 to 6 months.

I would give anything to go back in time and get my daughter banded at that age. We got treatment at almost 15 months and she did wear it for 6 months without full correction.

And, yes, the wear is for 23 hours a day, but you'll soon get used to it. My daughter looked beautiful in her helmet and she got lots of compliments from others and a lot more attention than she gets without it. Since it is still summer, you may be dealing with sweating and possiblity heat rash, but it will all be worth it. Although my daughter didn't get full correction, she looks so much better than she did before her treatment.

Most babies adjust really well to the helmet/band, but a few have difficulty the first couple of weeks.

Will you be getting a STARband, DOC band, Hanger band or a band from a local company?

Good luck - hope it all goes well.

Jenner - posted on 08/27/2009

36

28

7

hey, i feel for u i have a 7mth old son and just found out he needs a helmet and he too will have to wear it iill 12mths at least, but riet now we are going tho the fitting and casting stages but i am soo anxious about how the adjustment will go, he is a happy baby and a great sleeper, has been sleeping tho the nite since 4wks, so touch wood, hoping it doesn't disrupt him too much. goodluck with ur daugheter.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms