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Continuous Glucose Monitoring

Rachel - posted on 01/18/2009 ( 2 moms have responded )

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My daughter is 22 months old and diagnosed last April at 13 1/2 months of age. She is on injections (no talk yet from endo about a pump for her). My husband is Type 1 as well (dx'd at age 13 yrs) and both he and dd went on the Dexcom Seven (continuous glucose monitor) in late Sept '08. It works only so-so for both of them. When it's working, it's great, but it's hard to trust it and we have various issues...hard to find a good site (tried upper butt, which worked fairly well but sometimes didn't work at all, and lately switched to thigh, but she's bonking into it a lot there and tonight it just plain fell out). I'm wondering if anyone has experience with CGM, esp. with the Dexcom, and has any advice or insights to share. Also, for CGM or pump users, what do you do to attach the apparatus to your child's body? With my daughter being so young, we've just been carrying around her receiver but she goes out of range fairly often, plus it's tiresome to try to move it with her all the time. If we attach it to her waist on her pants she'll usually just take it off, and/or it falls off, so I need a more reliable way to attach it to her. Any suggestions welcome!

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Karen - posted on 03/01/2009

20

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My son Logan wears an insulin pump and Dexcom CGMS.  Well he use to wear them both but have taken a break from Dexcom.  My son wrestles and it hurt him to wrestle with the CGMS site on his body and plus we weren't too happy with how long the sites lasted or the results.  My son goes through enough already so I didn't want to make him deal with a piece of equipement that was either not accurate or falling off at least 75% of the time and since he wears a pump we were running out of good site spots.



But  what we did find for him to hold his pump and dexi  was a spibelt.  It is great.  It is an elastic belt that he wears around his waste  that has a little pouch.  He wears it at gym class and while playing with his brothers.  It stays in place and works great.  It is small enough that most people dont even notice it. Hope that helps.

Michelle - posted on 02/09/2009

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Hi my daughter Phoebe has had diabeties for the last six years, she is now 8 years old. Phoebe has been one the cgm off & on for the last 4 years. She was having to many highs during the night and wetting the bed. We always got the cgm put into the side of stomach and had it attached to the top of her pants. As your daughter is younger than mine you could try putting it into a little bag to put over her shoulder. When my daughter has a shower she puts hers in a plastic bag around her shoulders. i hope this helps

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