Do you ever wish you weren't the mom of a diabetic child for ONE day?

Sarah - posted on 01/09/2013 ( 10 moms have responded )

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As much as I love my daughter and know that her end of this disease is much worse then mine, I can't help but feel like I want to scream and hide! One meal without BG testing, one meal without counting carbs, one day without trying to flush ketones, one day to just be "a normal mom" again.
Something as small as grocery shopping can be down right depressing. Making a list of healthy meal and snacks full of protein, low on carbs. Reading EVERY set of nutritional facts. Watching parents let their kids choose whichever cereal they want off the shelf without worrying about what that particular cereal might do to their blood sugar. Are these feelings normal?

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Kelly - posted on 03/27/2013

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I am certainly with you. My son will be 17 this summer and I don't think we have had one good A1C. I cry everytime we go to his diabetic doctor. Teens are tough. Tristan was diagnosed at the age of 10. His godfather took him to see a young guy in his 20's on a kidney dialysis machine 4 x's per week and after that my son asked if we could go get ice cream. Luckily we have had no hospital incidents (knock on wood) but trying to tell him what he is doing to his body and his future is pointless. Everyone has told him but they think they are invincible during these years. I have a 7 year old son and 3 year old daughter and we do not have "junk" food in the house because it is the first thing my son will go for so it's hard with the other 2 that don't have the disease. He even stopped giving his insulin because "he didn't feel like it". They reach a point where they don't care and they are our children and it hurts us as parents. I have told him a million times I would take the disease from him if I could but he has to grow up and take better care of himself. I think everyone who has a child with Type 1 goes through this. You are definitely not alone!!

Jaylee - posted on 03/21/2013

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Hi everyone
I certainly do wish that sometimes, for him and for me. My son is almost 16 and diagnosed two years ago. I can handle the counting of food etc but the constant battle with him to test and eat on time and not sneak food can be so draining at time. His attitude to diabetes lately is i don't care which really worries me. Its not an easy disease that affects every part of your childs life and most people on the outside don't understand it, so im with your on that frustration too.

We have a AC1 test today and i know it will be shocker. Knowing your not alone has helped me alot too. I have met one friend who is also a type 1 mum and would love to meet some people online too talk to as well :-)

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Ericca - posted on 02/02/2014

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Hi everyone. I'm certainly in the same boat. My son is 12, diagnosed 2 years ago. I thought after some time went by it would get better, it hasn't. His A1C is up and down, mostly up because he sneaks foods, wont check when he's supposed to especially at school or when Im not around to make him. I struggle with should I just work part time to monitor him more, which I really cant afford that. And on top of that how will he ever learn if I have monitor him 24/7. At the same time I know the dangers of prolonged high blood sugars, that terrifies me! I've been up since 5am worried about this and ran across this site. I'm somewhat relieved that it's not just us. Then I ran across a post , the kid is 17 and has similar behaviors of my son. Does it ever end? How do I get through to him to make him understand the seriousness? Has anyone sought professional help for this? Any advice is appreciated

Gena - posted on 02/14/2013

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Pumping does help a lot!!!!! However, it is dangerous if they won't check BG or bolus for their meals/snacks . . . My daughter is up for replacement (every four years for a pump) but her drs. will not recommend it and the insurance would never authorize with her track record! I fear things will be worse w/o the pump . . . anyone been through this with their teen?

Pamila - posted on 02/14/2013

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My son is 5 he was diagnosed about 7 months ago and i kept saying the same thing but about a month ago we got my son the minimed insulin pump and it has made everything so much easier especially for him. You still have to do the test and count the carbs but he doesn't have to have 4-5 shots a day the pump does all the calculation for you you just put in his bg and then the amount of carbs he eats and the pump does the calculations for you. The infusion sets get changed every three day. I can see the difference in him sense we got the pump for him he is so much happier and less moody, and my husband and i are a lot less stressed. we don't worry as much when he is at school or if he wants to go to his grandparents.

Gena - posted on 02/07/2013

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My daughter will be 15 in April. Dx right after her 10 th bday. She is hostile and defiant. It is a daily struggle :( It's goin on 2 yrs of high bs. Plus other autoimmune conditions goin on. im right there with u ladies, just trying to cope :)

Stacey - posted on 01/25/2013

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Don't suppose you live in New Hampshire or Massachusetts? I'm actually getting a little time off tonight!!! Going on a date with my husband and my daughter is sleeping over at a friends! As long as I don't get a call relating to diabetes tonight I will consider it a break. Teens are tough cause the hormones alone will mess with their sugars and that is totally out of our control. I can't imagine dealing with a five year old though, I have two boys, ages 8 and 4 and I think it would be a nightmare to have to check them AND give them shots! I don't know how you do it. I'm going to look for you on FB and maybe I could hook up with the other mom too. Okay, now I sound desperate. Probably because I am.

Sarah - posted on 01/22/2013

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Hi Stacey! Good to hear from you.
Glad to hear I am not alone in my thoughts of wanting a "day off."
I have a facebook "friend" whom I've never met & she has a pre-teen and often posts about the misery of how hormones are really playing a HUGE role in her daughters diabetes and I know its coming soon. My daughter is already setting in on the super sassiness, 5 going on 15 is what I say.
Punching in the throat may sound harsh but its what I feel when people are constantly judging me for not having the best outlook on life. "It could be worse" "some people have it worse" "diabetes is completely manageable these days" "try to see the good in life"
This is not an easy life for anyone immediatley involved in a T1's life. And I get so tired of hearing how I am supposed to feel! I am optimistic and happy most days and deal well but I have days where I just need a break! All day long I get texts and calls from daycare about her BG's and of course there is the constant emailing and communicating with her diabetic team. I feel like my mind is always racing, always going, always consumed with diabetes and its mentally and physically exausting!
I wish for the same face to face connection with another parent of a diabetic!

Stacey - posted on 01/22/2013

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YES! I would love a day off. Too bad diabetes doesn't take the weekends off. We are not even one year into my dd's dx and already I'm tired of counting carbs and weighing food. Sigh. I'm also tired of fighting with my daughter all the time. Bugging her to test or figure out what she wants to eat. My dd is 13. As if dealing with a 13yr old girl isn't bad enough? When others complain to me about their hormonal teen girls I feel like punching them in the throat. Okay, that's harsh. BUT it just shows the level of frustration and anger that type1 can give a person. I wish I had another mom of a type1 that could come over for coffee, not just online.

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