Newly diagnosed with Type 1

Vandy - posted on 11/16/2008 ( 9 moms have responded )

4

21

0

My son was diagnosed with Type 1 just a month ago. He was loosing weight and started wetting the bed. I was scared when our doctor stated that he needs to admit Tyler into the hospital, there I found out that he had Diabetic Ketoacidosis. We are still learning how to do the carb counting and have been asked if we want to put Tyler on the pump. Anyone out there that has a child on the pump? What are the pros and cons of the pump?

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

9 Comments

View replies by

Laurie - posted on 12/26/2008

5

16

1

How old is your son? I have a four year old who was diagnosed fifteen mos. ago. The docs want to wait until we have a good grasp on his control. I have heard of two year olds on the pump though. My only concern is that there could be a risk of scarring. If you have any history of scarring or you know if you child scars easily, it could be a complication that a pump would accelerate. It is a great tool, but one to do alot of research on first. I am absolutely not discouraging you, just don't jump to quickly on it. You are so new to it, and there is alot to learn still. I am personally type I diabetic (diagnosed at age 9) and have to say, I am learning all over again. Things have changed alot since I was diagnosed, and a child diabetic is whole new territory for me. Hang in there though. You'll make it. How is he emotionally about all of it? My son is just now starting to take an active role and accepting his diagnosis. It was a loooong time of fighting every shot, and being told I was a "bad mommy" with every prick and poke. Pretty hard. I feel for you. If you have any questions, just ask. I will do what I can to help you. Us moms gotta stick together! lol

[deleted account]

Vandy,
We have two diabetic daughters, one diagnosed just last year, one doing this for 8 years. We did use the pump for several years. What we found was that as our daughter hit the teen years she was more and more careless. She became very casual with it. She would leave it at school in her locker when she took it off for PE. She didn't like having to contend with the tube and the device when wearing summer clothes. She didn't like changing the sites, because some were more obvious than others. And we didn't see the improvement in A1Cs. We also found it to be an expensive process, as the supplies were pricey. She is back on shots, and is happy with it, though she continues to struggle with compliance. I don't mean to be negative, but those were the cons we ran into. SO!! My best wishes to you and your family. I'm sure whatever you devote yourselves to will be the very best thing for your boy!

Vandy - posted on 12/07/2008

4

21

0

Tyler is an active 7yr old. I also have a cousin that is 14yrs old and also was diagnosed with type 1 two weeks before my son. She is going on the pump in Jan. We have gone through the honeymoon phase already, and his insulin levels are 7units each morning with Lantus and then sliding scale for Humalog with his meals. Thankfully we haven't had any highs, but he has had a few lows, expecially after P.E in school. The school knows what to do for they have three other children with type 1.



The other thing I forgot to mention earlier is that his dad was diagnosed with type 1 two years ago. At first we thought it was type 2 but when he was put on insulin injections we were told Tyler's dad had type 1.

Kimberly - posted on 11/20/2008

14

8

2

Thank you everyone for responding! My story is under the "Introductions" section of this link but my daughter Avery was 3 years old and diagnosed recently on 9/11/08. We have been giving her 5 shots a day and her honeymoon phase we VERY brief - like only a few weeks. We just received the box with the Ping Pump yesterday and have scheduled classes to learn how to use it in the next few weeks. We are very excited about not having to give Avery shots but facing another transition so we are still scared and nervous. My husband is a Type 1 and after 20 years of shots he finally went on the pump about 2 years ago - and it has been LIFE CHANGING for us. We are hoping that it will be the same way for Avery..... it helps to have all of you here to talk about it. THANKS!!!

Susan - posted on 11/20/2008

4

12

0

My daughter, Katie, was diagnosed at the age of 11. She is now 14 and has been on the pump (Minimed Paradigm 722 ) for 2 years. She will tell you that the best part of being on the pump is not having to take shots anymore. I say the best part is the tighter blood sugar control and lower A1C levels. An essential part of getting good results from the pump is accurate carb counting. Your son and you are newbies when it comes to everything. Give yourself time to adjust to the change in lifestyle...because it truly takes just that to see your child succeed in controlling his diabetes.



When Katie was first diagnosed, the hospital had the Diabetic Educator come to the hospital room before we were discharged and explain carb counting to us. It was very overwhelming at first. I wasn't sure just how we were going to handle everything once we left the hospital. But, we did make it through quite well. The most important thing to remember when carb counting is the portion or size amount that your son is eating. Nowadays, all packaged food products must contain a carb count on the nutrition label. You just have to make sure of the serving size and adjust the carb count to the serving size your son will be eating. As for my daughter, the one book that has been a lifesaver for us is the Calorie King book. It contains calorie, fat, and carb count of almost every food you can think of AND it has a section with up to date nutritional information of numerous restaurants and fast food places. This book has been wonderful and she carries it with her wherever she goes.



Katie was so successful in carb counting while taking the daily insulin shots that she became an early candidate for the insulin pump. Our endocrinologist will not put anyone on the pump until they have a good base knowledge of carb counting. And we have been extremely happy with our decision to get her on the pump. I do believe you and your son will benefit greatly from the pump once you (and he if he is old enough) understand carb counting. In order to use the pump, you must input the amount of carbs and the blood glucose level (of which Katie's meter is linked directly to the pump and automatically transmits the result to the pump)...the pump does all the calculating of insulin to be delivered and you press the button to deliver. (The pump is sooooo much more accurate than shots which I think accounts for the tighter blood glucose control.)



Good luck with everything and I hope that this helps. If you need someone to chat with, feel free to email me anytime at katydid894@centurytel.net. I am no expert, but we have been through a lot in the last 3 years and I have a lot of experiences to draw off of!!! I find it makes it easier to talk to someone who knows exactly what you are going through! Take care.

Amy - posted on 11/19/2008

7

53

2

My 17 month old daughter was diagnosed with type 1 in june. We put her on the pump right away. We love it. It takes away all the shots you have to do unless the pump fails but them you have the back up shot you can give them. It is truely a life changing experience as our little nadia was hospitalized also for a week with ketoacidosis and high blood sugars we almost lost her. It was the scarest thing inthe world watching her fight and hooked up to all these IVs. Dont be scared of the pump shes does great with it and its less stress when you just grab her pump enter the carbs of bg number andthe pump does the rest. I understand how the carb thing is challenging. I love the pump and would recomend it to anyone.

Carole - posted on 11/19/2008

12

0

3

DO IT!! I'm not sure how old your son is, but it will be life altering in a positive way. My husband was diagnosed when he was 9 and used injections until 5 years ago. The transition was AMAZING just in the A!C results, convenience and even discretion of the disease. Our 3 year old was diagnosed last February and we are miserable with him not on the pump. He is honeymooning right now, and even though he has 5 shots a day, he needs to be on 10 units of insulin before the doctor will pump him. Because of the shots, we have had a rough time with preschool and snack, and also with getting babysitters that are comfortable with everything. When he goes on the pump, we will just need to teach babysitters and teachers how to work the pump and deal with carbs and sugar levels. Hope this helps!

Michelle - posted on 11/19/2008

2

0

0

Hang in there - My 8 year old son was diagnosed two years ago and within 9 months we started him on a pump. It was the best thing for him. The greatest pro was the flexibility of eating when he wanted or needed to. Of course, it's another adjustment and learning curve but for our family and our son's schedule, the pro's far outweigh the cons. Hope that helps!

June - posted on 11/16/2008

3

16

2

sorry, my daughter is now 17 yrs and still on her original menu counting and insulin patterns, i'd be interested in hearing more about the pump also, sure hope your son is doing better, and give yourself time to adjust and really enjoy the experience i did, i live a healthier life and so aware because of rachel who is a type 1 and celiac, allergic to any type of food with flour, good luck

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms