Anedoids & Tonsils being removed

Jamie - posted on 07/07/2010 ( 7 moms have responded )

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Hi everyone,
my son Drake has had a sleep study done which shows that he has Sleep Apnea. The doctor wants to do surgery and remove his adenoids, and possibly his tonsils as well because they are enlarged. Drake is 3 and a half years old. I was wondering if anyone knows if there are any other options that would help or if surgery would be the best thing for him. I'm just looking for a second opinion because I remember how he was when he had his g- tube put in and it took him a long time to recover from the anesthesia. Thanks for your help!

Jamie

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Andrea - posted on 12/11/2010

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Once upon a time, a long time ago (about 30 years ago) they absolutely refused to remove tonsils and adenoids. It was the new thing, as it was thought they were to help with infections and the immune system. Sadly, I am a consequence of this fad. I lost all hearing at a young age. I require tubes in my ears every year of my life. I was on antibiotics for "tonsillitis" for 16 years straight. A doctor decided to take my tonsils and adenoids out when I was 16, but sadly, the damage was done. I have a genetic disposition for dysfunctional eustachian tubes. My mother, born deaf as well, had her tonsils and adnoids out at the age of three, and had no lasting effects. By the time I was 16, I had extreme scarring, and permanent hearing loss. I would/still need tubes placed in my ears every year. I developed an infectious tumor in my left ear, requiring extensive surgery, prosthetic bones, and a hearing aid at 18. I am 32, and this year, I will have 2 surgeries. I continue to have hearing loss, and told, I will be deaf by 40.
My son was born with the same problems. First ear surgery, 7 months old, then 13 months, then 18 months and then 24 months. I was told he needs his tonsils and adenoids out. The insurance company would not approve the procedure, even tho I had 4 specialists say he needed it. Not only did he snore, he had recurrent, persistent infections related to over sized tonsils and adenoids. I fought the insurance company, appealing to the state board of medicine. His procedure was approved, and the insurance company had to pay. He was 3 years old. He has never had another infection in his ears or throat. He is 14 now, with great hearing and no long lasting problems. He was a healthy 3 year old, and recovered just fine. Acted like nothing happened at all. Discuss your concerns of anesthesia with the anesthesiologist. There are many different kinds. A few days of hard recovery tho is well worth it in the long run.

Debbie - posted on 07/19/2010

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It was the best thing we did for my CJ. He is now able to fight of infections easier so not so sick all the time. It is not a cure all, but it did make a world of difference. Be sure to let the doctors know your concern about the Anesthesia, maybe they could use a different kind then what they used the last time. Now it was not all that easy with CJ, what was suppose to be over night, turned into a week. He would not drink anything so they could not take him off the IV. He was three. He just did not understand what was going on.
But again, it was the best thing for him to have them removed.
Good luck!

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Rita - posted on 08/29/2010

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Erik had the same diagnosis. Getting his tonsil & adenoids as well as ear tubes in has been the best thing for him. He sleeps better, works at school better, is less tired and has less sickness.
Erik seemed to recover well from the anesthaesia, but he has never had a problem with that. The only surgeries he has had are ear tubes and the the tonsils & adenoids removed.
Good luck to you and hope things go well.

Jamie - posted on 07/23/2010

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Thanks everyone for sharing your experiences :) I definitely feel better about it getting done now.

Dena' - posted on 07/18/2010

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The best thing we ever had done for Charlie was to have them removed. He sleeps better and not sick as often

Jdoy - posted on 07/16/2010

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all i can say is that my daughter had hers out this year. it was done due to illness and snoring and it has made a world of a difference. she does not snore anymore and sleeps through the night. her bad breath is gone from the infection that was building in her adnoids. her tonsils were enlarged to having strp throat so many times and now she has not had strep in about 4 months. the surgery didnt take very long but the recovery was horrible. it seemed to take for ever. we are glad we did it and we would do it all over again. if you ask my 11 yr old daughter she would say why did you wait so long mom i feel so much better. sence having the surgery done my daughter has not been sick once

Florence - posted on 07/08/2010

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We did a sleep study, because our son was having sleep issues. It turned out that he did not have apnea, but I remember asking why they couldn't just give him a CPAP. That's what they do for adults. Doctors seem to find that more intrusive for kids. We did see a specialist in Osteopathic Manual Manipulation and found that it helped dramatically with Lev's sleep and middle ear drainage, but I don't know if that would help in your case. Even a second opinion from another ENT might be good. Good luck!

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