Carol-lee - posted on 09/18/2010 ( 1 mom has responded )
Hi, My boy Jack has a complete non repierable AVSD. Jack was 4 weeks prem and spent the first 12 months in hospital. He has had heart surgery with more to come in the future, he almost died after contracting golden staf. His hospital stay was torture for him. Jack is now 3 1/2 yrs old we work closely with therapists, he swims goes to day care and early intervention classes. But I feel there is no progress. I know he has health issues that stop him from growing and make him weak but mentally I dont see much improvement, though I give it everything Ive got he only will use a few signs, he cant walk or talk at all. he wont hold his own bottle though that seems to be a choice and he has bad gag reflex so he only eats soft food. he has never put anything in his mouth other then his thumb. He knows everything im saying but is limited in wanting to communicate, he loves the wiggles goes crazy for music and is very affectionate. I just see other kids with Downs that are so far ahead. I know i should not compare. But I cant help it.