Moms of Epileptic/Seizure Disorder Kids

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Joey was diagnosed with Epilepsy/Seizure Disorder in July 1999 at the tender age of 9 months. Just as he was starting to cruise through the house ... holding onto anything he could to get where he wanted to go. Next thing, he was in the hospital fighting for his life. During his 6th brain surgery, where the remaining left side of brain was removed on August 18, 2005, he had a stroke in the right frontal lobe. Joey only has 40% of his brain remaining, yet he is attending school (3rd grade) everyday.

Website: http://www.joeylora.com

Category: Health, Disease & Special Needs

Privacy: Open

View all 803 Conversations

Title, Starter, & Date Replies Last Reply
Smarty Pants

Natural seizure help...

by Penny Hardy March 4, 12:38 pm
6 7:56 am
by Patty view last post

Has anyone used the Medication Keppra!

by Kaydee 14 Dec. 2009, 9:15 am
294 7:53 am
by Tammie view last post

my 1 month olds seizures

by Shannon 5:36 am
0 Be the first to reply >>

has anyone gave their child depakote?

by Jennifer January 6, 5:37 am
37 1:27 am
by Teona view last post

my 22 month old son is not talking yet, what should i do?

by LaTisha yesterday, 1:25 pm
2 yesterday, 6:16 pm
by LaTisha view last post

Seizures 8 nearly 9 years old boy

by Debbie March 11, 5:18 pm
1 yesterday, 4:37 pm
by Dawn view last post
Smarty Pants

Mums with epilepsy

by Laura March 1, 5:16 pm
3 yesterday, 4:16 pm
by Dawn view last post

I am a mom who is an epileptic.

by Jean February 13, 9:52 am
7 yesterday, 3:49 pm
by Dawn view last post
Smarty Pants

Not a happy Momma here! Any ideas of what I should and can do???

by Tonia January 18, 3:02 pm
17 yesterday, 10:44 am
by Tonia view last post
Smarty Pants

Frustrated - looking for Mom's with experience at Boston Children's Hospital

by Annette March 11, 5:53 pm
2 March 11, 7:49 pm
by Annette view last post

IT IS A SAD DAY FOR YOUR GROWN SON TO HAVE SEIZURES

by SHARON ASH March 11, 6:23 pm
0 Be the first to reply >>

ASD and Seizure Disorders

by Kristin March 11, 4:16 pm
1 March 11, 5:57 pm
by Annette view last post

If they grow out of the seizures, is there a certain age range or milestone that it stops?

by Carla February 16, 2:36 am
9 March 11, 5:41 pm
by Annette view last post

Infantile spasms

by Misty 10 Feb. 2009, 4:48 pm
12 March 11, 1:34 am
by Mindy view last post
Smarty Pants

should I let the doctors ween my daughter off of her seizure medication?

by ANGEL February 25, 5:16 pm
21 March 10, 9:34 pm
by Keena view last post

MRI, the wait is very frustrating

by Keli March 9, 10:38 pm
1 March 10, 1:10 pm
by Tanya view last post

ella is still not standing on her own yet should i b worried

by Andrea March 2, 7:31 pm
6 March 9, 11:16 pm
by Barbara view last post

Cod liver oil..... used and his absent & partial seizures reduced drastically

by Heather February 25, 6:21 pm
7 March 9, 10:48 pm
by Heather view last post
Smarty Pants

Atonic Seizure and what medicines have worked for their kids?

by Holly February 23, 10:52 pm
5 March 9, 10:19 pm
by Holly view last post

Pediatric Epilepsy Support Group Saint Claire's Hospital NJ March 11 at 6:30

by Dawn March 9, 8:50 pm
0 Be the first to reply >>

View all 43 Photos

Happy Smiles

Happy Smiles

Posted by Kimberley (19 Nov. 2009, 6:58 pm) (2 moms have responded)
Newest Post by Angela (4:58 am) What a beautiful...
Our gorgeous ballerina

Our gorgeous...

Posted by Angela (January 21, 2:23 am) (3 moms have responded)
Newest Post by Janice (March 6, 1:27 am) She is beautiful. ...
Bug and his ABR

Bug and his ABR

Posted by Annette (February 28, 9:16 pm) (no moms have responded yet)
my little princess

my little princess

Posted by Catherine (January 25, 3:13 am) (no moms have responded yet)

Links

Safe and Healthy home and family

http://www.ziems.momsmakemore.com You can make more working at home while enjoying more time for...
Started by Polly (January 12, 6:44 am) (no moms have responded yet)

Brainy Baby DVD Giveaway

http://www.myfreebrainybaby.com I posted a few months ago that my son who has had a seizure...
Started by Tracey (21 Jul. 2009, 12:59 pm) (1 mom has responded)
Newest Post by Tracey (11 Nov. 2009, 11:49 am) Hi Tracey, I...

Protect your kids from online preditors, bullying, sexting and texting while driving!

http://www.websafety.com/911 My brother in-law just introduced me to a new software program that...
Started by Dorlisa (10 Sep. 2009, 6:33 pm) (no moms have responded yet)

Do you pay over a $100.00 a month in medicine?

Started by Tiffay (2 Jun. 2009, 6:28 pm) (no moms have responded yet)

IDEA League Family Network

http://www.idea-league.org/famnet/index.... This group is for parents and caregivers of children...
Started by Rachael (11 Nov. 2008, 5:34 pm) (2 moms have responded)
Newest Post by Tina (21 Mar. 2009, 7:47 am) The IDEA League now...

Hypothalamic Hamartoma

http://www.hhugs.com This page tells more about Summers' brain tumor and some other children that...
Started by Gina (25 Dec. 2008, 12:15 pm) (1 mom has responded)
Newest Post by Jennifer (10 Feb. 2009, 8:40 pm) I am so happy to...

Protect your child's head with cute "safety" hat

http://ohbabyproducts.ca I used this protective hat for my son after a fall in the home. Protects...
Started by Stephanie (15 Jan. 2009, 2:39 pm) (no moms have responded yet)

Provide A Safer Home Environment For Your Family

http://www.safer4u9001.fourpointwellness... Anyone interested in keeping your children safe from...
Started by Angela (7 Jan. 2009, 5:31 pm) (no moms have responded yet)

Videos

thumbnail - neurofeedback for sezures

neurofeedback for...

Posted by Nanci (9 Aug. 2009, 11:35 am) (no moms have responded yet)