Moms of Epileptic/Seizure Disorder Kids

For all those moms caring for children with Epilepsy.

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My son nicholas

Hi i am having difficulty sending a reply. My son Nic was a global polymicroggyria. His whole brain was affected. He could only move his left hand. He was severely disabled....

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My son nicholas

Hi i am having difficulty sending a reply. My son Nic was a global polymicroggyria. His whole brain was affected. He could only move his left hand. He was severely disabled....

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support

My 16 year daughter has been diagnosed with epilepsy in the last week. She had a seizure (tonic clonic- grand mal) a week ago on Monday and then another (same) on on Sunday a...

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Cortical Dysplasia

Anyone with a child with cortical dysplasia? My daughter's seizures are drug resistant and she already had surgery. Nothing seem to work. There was great improvement after...

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hair loss, weight gain

I have a 9 yr old who has had seizures since he was 6. He usually gets them in sleep. He's been on trileptal since. Ive noticed change in behavior, balance, studies, and worst...

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SIDE EFFECTS OF KEPRA

I have a 14 yr old son who was recently diagnosed with Epilepsy. He started out on Trileptal and has since been switched to Kepra. His dr says there should be no side effects...

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depakote

my daughter was taken off depakote after years for of seizures we have been seizure free since 2010 but its been about 7 months of being off depakote and no other meds and her...

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  4. 4
  5. 5
  6. 6
  7. ...
  8. 94
0

My son nicholas

Hi i am having difficulty sending a reply. My son Nic was a global polymicroggyria. His whole brain was affected. He could only move his left hand. He was severely disabled....

0

My son nicholas

Hi i am having difficulty sending a reply. My son Nic was a global polymicroggyria. His whole brain was affected. He could only move his left hand. He was severely disabled....

0

support

My 16 year daughter has been diagnosed with epilepsy in the last week. She had a seizure (tonic clonic- grand mal) a week ago on Monday and then another (same) on on Sunday a...

0

My son nicholas

Hi i am having difficulty sending a reply. My son Nic was a global polymicroggyria. His whole brain was affected. He could only move his left hand. He was severely disabled....

0

My son nicholas

Hi i am having difficulty sending a reply. My son Nic was a global polymicroggyria. His whole brain was affected. He could only move his left hand. He was severely disabled....

1

Seizure medication

My daughter is 7 months old and is on keppra, topamax, and phenobarbital 2x/day. I am worried about her health and development while on these drugs.. has anyone experienced...

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Infantile Spasms

Anyone have a baby with infantile spasms? We suspected she has it, I have videos I would love for someone to see. She started off with little twitches. Now she has them multiple...

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absent seizures

My son was diagnosed with absence seizures when he was 5, he is now 17 and still has not grown out of them. I'm praying he does grow out of them and he has had a total of 3...

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Upcoming EMU visit

My 14 year old daughter was diagnosed a little over a year ago. She is scheduled in a couple of weeks to stay in the Epilepsy Monitoring Unit for testing. She is currently on...

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Epilim side effects

Started by You (a moment ago) (no moms have responded yet) Hi, i have a son who's nearly 5, who's has other illnesses other then Epilepsy, he was doing great in his...

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Keppra for children?

my daughter has just started on the drug eppra, she is 1 yr n 8 months and was wondering if anyone else using the same drug or a child has had side effects or if it may cause...