Chandra - posted on 01/05/2012 ( 3 moms have responded )
My son was born without his ring and pinky fingers on his right hand and his radius of that arm is dislocated. It is a birth defect and he will have to have surgeries this year. I am really concerned though because he seems to be having seizures. I thought they were tremors (nerve damage) when I first saw them in may. When I talked to the specialist he immediately said they were seizures and sent us to a neurologist.
Here's what happens. He will be playing or singing or laughing and all the sudden he stops and holds his right arm. Now I just thought it was hurting him because of his other problems but when I looked closer I could see his muscles were spasmodic.I realized then that all those times he has been upset and holding his arm and all the nights he'd wake up 5-6 times crying and then right back to sleep that it was his "seizures".
The neurologist says it could be seizures or it could be that he had a stroke in the womb and that's what's causing the seizures or it could be nerve/ brain damage.
I am so scared. I know we will know soon what it is that is causing him to be in a pain and that once we do we will be able to help him but the neurologist really didn't go over what would happen in those scenarios and I am so worried about what to expect!
If anyone has gone through anything like this please share your story even if you don't have any advice a kindred spirit is always welcome.