24 Hour Video EEG?

Melissa - posted on 06/06/2009 ( 10 moms have responded )

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My 4 month old has been having Tonic-Clonic Seizures and Absent seizures since about 2 months. She is on 150mg of Keppra 2x a day. They have decided to do a Video EEG. What if she doesnt have one on the machine? what do they do? she's had 2 1 hour eegs. i'm just confused they didnt really tell me what happens... has anyone been through this? does anyone have kids whose seizures dont show up on EEGs? her's dont. but she's still been diagnosed Epileptic.

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Samantha - posted on 02/05/2013

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Oh I remember now also that they reduced meds slightly to ensure seizure activity was captured, that of course was not particularly fun.

Samantha - posted on 02/05/2013

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EEG are fairly simple to deal with really, a heap of wires pasted to her head and hooked up to a machine that makes 'pictures' of her brain waves.She will most probably have to stay in the bed most of the time because of this.She'll be able to eat normally, just make sure you take lots of stuff to keep her amused!

Erin - posted on 02/05/2013

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My daughter is five years old and she has been on three differemt kinds of medicine. None of them seem to work. Now they want her to have a five day EEG done, will she still be able to eat or will she go hungry for five days? What does that entail?

Laura - posted on 06/30/2009

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My daughter, who is now 20 years old, started having seizures when she was 18 months old. She just has a prolonged EEG and never had a seizure, but they said that is common, due to taking better care of self. They also can take them off all meds and induced seizures. She ended up in the hospital for a week.

Michelle - posted on 06/12/2009

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hello my name is michelle i been having grammar seizures since i been 15 years of age and my first couple of eeg's didnt show up and on cat scans nothing as i got older it started to show up on the eeg's it can be cause she's moving around to much or anything just give it time as she gets older she can one grow out of them by the age 5 years old or the seizure activety will show up and if she dosent grow out of them by 5 years of age thats ok she still can grow out of them by21 years of age...tell your doctor you want a mri done if you havent already that shows seizure activety also thats what showed mine i hope i haved helped you any more questions please ask....

Elspeth - posted on 06/12/2009

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A seizure will only show up if she is having it when she is hooked up to the machine at the time. We did a 24hr EEG on my son when he was 5. It is heartbreaking to watch (even more so with an infant I'm sure). This is what happened to my son: They will admit her to the hosp. hook her up with I think 17 wires glued to her head. They will then cut her meds abruptly to kind of force her to have an episode while being monitored. I won't sugarcoat, it is all quite horrible. However, the thing to keep in mind is that it is helpful. They will get a lot of info. I will tell you something the Epilepsy Foundation told me before my sons seizures were controlled by meds. It is absolutely horrible right now. Soon they will find the right medicine or combination. After that, It will be like a brand new day. Just keep the faith!

Melissa - posted on 06/07/2009

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She has them mostly when waking up and going to sleep, so early morning and during the night.

Samantha - posted on 06/06/2009

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Hi Melissa, we have been through several video eegs with my little one, some were successful but one wasnt! Maybe you could have a chat to your doc about reducing her meds slightly for a couple of days beforehand. When does your little one have seizures the most? Does tiredness bring them on? My little one has them mainly at night now (altho it was any time a few years back), so i used to miss quite a few before I got a video baby monitor. Tiredness seems to bring them on a bit more also, so speak to the doc about a bit of sleep deprivation the day before.
Hope this helps a little, it can be a bit hit-and-miss with things like this, and meds as well! I can remember my little ones second birthday, head swathed in bandages for a video eeg in hospital! Needless to say they became a bit chocolate cakey! All the best, Sam

Melissa - posted on 06/06/2009

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it will be in the hospital. and they are saying 24 hours at this point. what happens if she doesnt have one? i'm scared she will go through this for naught.

Heather - posted on 06/06/2009

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We did long term monitoring- are you doing this at home or in a hospital? We did it in the hospital. They attach the electrodes to the head, and there's a videocamera in the room on your child 24/7 so they can see what the sz look like, and compare them to the EEG at the same time. We had to take our son off his meds for this, but didn't do it until he was in the hospital- physician supervision only. We discovered that he had 23 seizure like/seizure events in a 24 hr period, many of which were not observable events. I don't think anything really showed up on his 1 hr EEG's either. We're on Keppra and Topamax

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