Moms of Epileptic/Seizure Disorder Kids

Joey was diagnosed with Epilepsy/Seizure Disorder in July 1999 at the tender age of 9 months. Just as he was starting to cruise through the house ... holding onto anything he could to get where he wanted to go. Next thing, he was in the hospital fighting for his life. During his 6th brain surgery, where the remaining left side of brain was removed on August 18, 2005, he had a stroke in the right frontal lobe. Joey only has 40% of his brain remaining, yet he is attending school (3rd grade) everyday.

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aussie mums....

hi just wondering if their are any mums in sydney that have little ones with epilepsy.... would love to get together for a chat...... im trying to start a support group for...

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my boy

Justin has tonic clonic seizures. his disorder is called SCHIZENCEPHALY. He is now a 14 year old that just graduated to high school and he was told but Dr.'s that he would...

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partial seizures

My son has has seizures since he was 7 months old and he is almost 13, next month. When he was 9 he was diagnosed with a tumour that was caused from seizures that he had. The...

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VNS

Hi we just seen a new dr for my son's seizures and talked about a few things. We talked about all the meds he has been on/failed I think the count is 12 in 5 years. She...

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EEG and sedatation!!!

Hi My little premmie Bailey has been having seizures since he was 4 months old. He had two really long absent seizures in hospital and then went on to have tonic clonic ones....

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Meds cocktail!

Anybody else's kids on a cocktail of meds? My little one is on 10ml/400mg Epilim/Sodium Valproate twice a day, 6ml/600mg Keppra twice a day, 7.5ml/7.5mg Clobazam twice a day and...

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MRI

my 16 month old is schedualed for an MRI in June. he will be sedated for this. any one been through this? whats it like?

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Help for my daughter!

Hi, I'm pretty new to this site, and was wondering if anyone could tell me how I might be able find a seizure alert dog? My 14 yr. old daughter had been seizure-free for the...

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hi

I have twins and one of them have cortical d on the left side of his brain and he also has West syndrome and we all found this out when he was 3 wks he is on Meds and doing a...

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Help for my daughter!

Hi, I'm pretty new to this site, and was wondering if anyone could tell me how I might be able find a seizure alert dog? My 14 yr. old daughter had been seizure-free for the...

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need advice

so my 5 year old little girl was born with hirschsprungs disease we have pretty much got that taken care of expect for some bathroom issues. well recently we also found out she...

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Screaming fits

Okay does anyone have any advice on how to deal with the screaming fits caused by Keppra? My son will get into fits of screaming that last 30 minuets or more and I'm going nuts.

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Seizures once a month

My 12 year old son has been having seizures once a month ( the same time of the month) for about 3 months now. He has a cluster of them on and off for about 24 hrs. When I...

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Epilim side effects

Started by You (a moment ago) (no moms have responded yet) Hi, i have a son who's nearly 5, who's has other illnesses other then Epilepsy, he was doing great in his...

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Keppra for children?

my daughter has just started on the drug eppra, she is 1 yr n 8 months and was wondering if anyone else using the same drug or a child has had side effects or if it may cause...