Moms of Epileptic/Seizure Disorder Kids

Joey was diagnosed with Epilepsy/Seizure Disorder in July 1999 at the tender age of 9 months. Just as he was starting to cruise through the house ... holding onto anything he could to get where he wanted to go. Next thing, he was in the hospital fighting for his life. During his 6th brain surgery, where the remaining left side of brain was removed on August 18, 2005, he had a stroke in the right frontal lobe. Joey only has 40% of his brain remaining, yet he is attending school (3rd grade) everyday.

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gefs+

Does anyone have a child with generalized epilisey with febrile seizure plus? If so how has it affected them?

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Dravet Syndrome

I have a 2 1/2 year old that has dravet syndrome a very rare form of epilepsy that is caused from an scn1a gene mutation. We started seizing at 6 months old.

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New Challenge

Can you be kind to yourself for 30 days? We want to empower mothers to practice better self-care by doing something nice for themselves everyday for 30 days. Simple acts of...

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support groups

Any body know of support groups in the Tampa Bay Area (FL) for parents of children with Infantile Spasm or even just seizure disorders in general?

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SEIZURE FOR 1HOUR

does anybody know.. what the damage is in your brain for a child to have a seizure for 1 hour.. is anybody out there who has a child who has DRAVET'S SYNDROME?? ALSO CALLED...

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siezures

It is actually me that has the siezures. I had epilepsy until I was 18yrs old, and had learned to control them somewhat. Then they were dormant for 15 yrs, until I had my 3rd...

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Welcome -- New here too

Please, if you're a parent, take a moment and sign up to connect with other parents who are just trying to keep some sanity in their daily lives. No spam - no BS - and she has...

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Medicade and Medications

I have a 6 yr old son with Epilepsy For several months my son has not been getting his full dose after contacting the doctors and the pharmacy, I found out Medicaid only pays...

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epilepsy and driving

My daughter is turning 16 in a week. She has been seizure-free for over a year now because of her medication but I am SCARED to death for her to start driving. I want her to...

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MRI Scan

My 2 year old son has epilepsy and is undergoing an MRI scan at the end of the month to check for brain damage, what happens and how long does it take? Is MRI scan harmful?

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VIMPAT AND DEPAKOTE

MY 3 year old has been on just about ever seizure med out there. currently on Depakote 6ml twice and day and Vimpat 1 1/2 ML twice a day. any other moms have their children on...

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migraine med

Hello Everyone. My son is 12 years old , going thru very rough time. He is having migraine since last year Nov. 2013. The pain is 24/7. very horrible. He is on TOPAMAX 100 mg...

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Help for my daughter!

Hi, I'm pretty new to this site, and was wondering if anyone could tell me how I might be able find a seizure alert dog? My 14 yr. old daughter had been seizure-free for the...

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Epilim side effects

Started by You (a moment ago) (no moms have responded yet) Hi, i have a son who's nearly 5, who's has other illnesses other then Epilepsy, he was doing great in his...

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Keppra for children?

my daughter has just started on the drug eppra, she is 1 yr n 8 months and was wondering if anyone else using the same drug or a child has had side effects or if it may cause...