Moms of Epileptic/Seizure Disorder Kids

Joey was diagnosed with Epilepsy/Seizure Disorder in July 1999 at the tender age of 9 months. Just as he was starting to cruise through the house ... holding onto anything he could to get where he wanted to go. Next thing, he was in the hospital fighting for his life. During his 6th brain surgery, where the remaining left side of brain was removed on August 18, 2005, he had a stroke in the right frontal lobe. Joey only has 40% of his brain remaining, yet he is attending school (3rd grade) everyday.

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Epilesy after a virus

Hi i'm new to all of this, my daughter was 5 when her first siezure occured, after all the EEG's MRI's and a lumberpuncher my daughter was diagnosed as having Herpis Symplex...

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epelim?

my son has just seen a specialised epilepsy doctor who is changing his medication from carbamazapine to epilim. do any other mums have any advice on this medication, what bad...

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travel insurance

hi just wondering if anybody has ever got travel insurance for their child im hoping on going abroad with my son next year i saw this advert on tv and thought i would check it...

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my boy

My boy is 20 now , been epileptic since he was 16 what a tough few years this has been, emotionally and physically.my sons seizures are always whilst he sleeps, he no longer...

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i am so happy

my 3 1/2 yo has epilepsy he was diagnosed at 11months.... i am so happy as he hasnt had a siezure since february..... he has been really sick twice with high temps between then...

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Speech Delays

I know I'm a lot older than many of you and my child is older than most of your children...so I speak from experience. For those of you whose children are speech impaired, my...

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Nero appt Tomorrow

Hello, I hope that everyone is doing well. Phoebe has a follow up appt with her Nero's Nurse P. We have to be their at 8:15 what a long day that is going to be. I have a few...

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Lissencephaly

I have been meaning to chat with other parents who have children with seizure disorders & this is my 1st time ever reading similar stories & I'm already at a loss for words...

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Hello, I am new here!

Hi my name is Amber and I am the mother of 2 beautiful children! My little girl Kaylee is 4.5 and starting pre-k this fall! My son Logan is 2.5 and he has complex partial...

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new type of seizure?

My daughter Morgan is almost 4 months old. She has been having Grand Mal seizures since she was 2 months old. They put her on Keppra 100mg 2x a day. She has started having...

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Unexpected Seizures

My 2 1/2 year old just started having seizures last week. They were unexpected, we have no history in either side of the family and my child has no history of previous...

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MRI Scan

My 2 year old son has epilepsy and is undergoing an MRI scan at the end of the month to check for brain damage, what happens and how long does it take? Is MRI scan harmful?

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VIMPAT AND DEPAKOTE

MY 3 year old has been on just about ever seizure med out there. currently on Depakote 6ml twice and day and Vimpat 1 1/2 ML twice a day. any other moms have their children on...

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migraine med

Hello Everyone. My son is 12 years old , going thru very rough time. He is having migraine since last year Nov. 2013. The pain is 24/7. very horrible. He is on TOPAMAX 100 mg...

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Help for my daughter!

Hi, I'm pretty new to this site, and was wondering if anyone could tell me how I might be able find a seizure alert dog? My 14 yr. old daughter had been seizure-free for the...

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Epilim side effects

Started by You (a moment ago) (no moms have responded yet) Hi, i have a son who's nearly 5, who's has other illnesses other then Epilepsy, he was doing great in his...

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Keppra for children?

my daughter has just started on the drug eppra, she is 1 yr n 8 months and was wondering if anyone else using the same drug or a child has had side effects or if it may cause...