Moms of Epileptic/Seizure Disorder Kids

Joey was diagnosed with Epilepsy/Seizure Disorder in July 1999 at the tender age of 9 months. Just as he was starting to cruise through the house ... holding onto anything he could to get where he wanted to go. Next thing, he was in the hospital fighting for his life. During his 6th brain surgery, where the remaining left side of brain was removed on August 18, 2005, he had a stroke in the right frontal lobe. Joey only has 40% of his brain remaining, yet he is attending school (3rd grade) everyday.

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epilepsy in babies

my son had seizures at 10 days old,now parts of his brain are damaged ,and i don't know his outcome,he can't walk or talk and i wish i knew if there was any chance his condition...

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Medical ID bracelet

My daughter has epilepsy and was diagnosed 1 yr ago. Today she takes Keppra and Lamictal and we are still in the process of controlling her seizures. I believe everyone she...

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Bath or Shower time

Just curious how other mom's handle bath or shower time with their teens with epilepsy. My daughter is 12 and I know privacy is important to her. However last Sunday night she...

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TAKING HIM OFF MEDS!

WELL WERE GONNA FIND A OUT IF HE IS ABLE TO BE TAKEN OFF OF HIS MEDS! THEY ARE GONNA LOWER THEM FOR FOUR WEEKS IF NO PROBLEMS THEY ARE GONNA TAKE HIM COMPLETELY OFF! IM A LITTLE...

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Zarontin / Vitamin B-6

Can anyone offer any info on using Zarontin? It was working wonders for my son (5) in combination w/Depakote but he developed a nasty itchy rash throughout his entire body -...

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Epilim side effects

Started by You (a moment ago) (no moms have responded yet) Hi, i have a son who's nearly 5, who's has other illnesses other then Epilepsy, he was doing great in his...

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Vitamin B6 (Pyridoxine)

Has anyone tried pyradoxine i have been told by someone that it helped with her daughters seizues even though she hasn't got a vitamin deficiency and have also read that it can...

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hi

I have twins and one of them have cortical d on the left side of his brain and he also has West syndrome and we all found this out when he was 3 wks he is on Meds and doing a...

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hi

I have twins and one of them have cortical d on the left side of his brain and he also has West syndrome and we all found this out when he was 3 wks he is on Meds and doing a...

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Tolerance to Keppra

My 13 yr ol daughter was diagnosed with JME last year. She had seizures approximately 1x/week. and was unresponsive to trileptal. After 4 months her doctor switched her to...

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need advice

so my 5 year old little girl was born with hirschsprungs disease we have pretty much got that taken care of expect for some bathroom issues. well recently we also found out she...

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Screaming fits

Okay does anyone have any advice on how to deal with the screaming fits caused by Keppra? My son will get into fits of screaming that last 30 minuets or more and I'm going nuts.

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Seizures once a month

My 12 year old son has been having seizures once a month ( the same time of the month) for about 3 months now. He has a cluster of them on and off for about 24 hrs. When I...

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Epilim side effects

Started by You (a moment ago) (no moms have responded yet) Hi, i have a son who's nearly 5, who's has other illnesses other then Epilepsy, he was doing great in his...

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Keppra for children?

my daughter has just started on the drug eppra, she is 1 yr n 8 months and was wondering if anyone else using the same drug or a child has had side effects or if it may cause...