Moms of Epileptic/Seizure Disorder Kids

Joey was diagnosed with Epilepsy/Seizure Disorder in July 1999 at the tender age of 9 months. Just as he was starting to cruise through the house ... holding onto anything he could to get where he wanted to go. Next thing, he was in the hospital fighting for his life. During his 6th brain surgery, where the remaining left side of brain was removed on August 18, 2005, he had a stroke in the right frontal lobe. Joey only has 40% of his brain remaining, yet he is attending school (3rd grade) everyday.

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my boy

Justin has tonic clonic seizures. his disorder is called SCHIZENCEPHALY. He is now a 14 year old that just graduated to high school and he was told but Dr.'s that he would...

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partial seizures

My son has has seizures since he was 7 months old and he is almost 13, next month. When he was 9 he was diagnosed with a tumour that was caused from seizures that he had. The...

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VNS

Hi we just seen a new dr for my son's seizures and talked about a few things. We talked about all the meds he has been on/failed I think the count is 12 in 5 years. She...

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EEG and sedatation!!!

Hi My little premmie Bailey has been having seizures since he was 4 months old. He had two really long absent seizures in hospital and then went on to have tonic clonic ones....

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Meds cocktail!

Anybody else's kids on a cocktail of meds? My little one is on 10ml/400mg Epilim/Sodium Valproate twice a day, 6ml/600mg Keppra twice a day, 7.5ml/7.5mg Clobazam twice a day and...

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hello

my name is crystal on aug. 15 2008 my son caleb was born. healthy pregancy and no complactions. the day after he was born he had a "spell" where he turned blue and quit...

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epilepsy in babies

my son had seizures at 10 days old,now parts of his brain are damaged ,and i don't know his outcome,he can't walk or talk and i wish i knew if there was any chance his condition...

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Medical ID bracelet

My daughter has epilepsy and was diagnosed 1 yr ago. Today she takes Keppra and Lamictal and we are still in the process of controlling her seizures. I believe everyone she...

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Anyone in Las Vegas?

I'm looking for moms with babies/toddlers who have epilepsy in Las Vegas. My son is 21 months old and he was diagnosed epilepsy when he was 11 months old. I've been looking...

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Seizure

My son is 14 months. The other week my son had crawled in his room to play(he isn't walking yet) My mama said he started to cry so she went to get him. When she picked him up he...

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Anyone in Las Vegas?

I'm looking for moms with babies/toddlers who have epilepsy in Las Vegas. My son is 21 months old and he was diagnosed epilepsy when he was 11 months old. I've been looking...

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Seizure

My son is 14 months. The other week my son had crawled in his room to play(he isn't walking yet) My mama said he started to cry so she went to get him. When she picked him up he...

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MRI Scan

My 2 year old son has epilepsy and is undergoing an MRI scan at the end of the month to check for brain damage, what happens and how long does it take? Is MRI scan harmful?

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VIMPAT AND DEPAKOTE

MY 3 year old has been on just about ever seizure med out there. currently on Depakote 6ml twice and day and Vimpat 1 1/2 ML twice a day. any other moms have their children on...

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migraine med

Hello Everyone. My son is 12 years old , going thru very rough time. He is having migraine since last year Nov. 2013. The pain is 24/7. very horrible. He is on TOPAMAX 100 mg...

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Help for my daughter!

Hi, I'm pretty new to this site, and was wondering if anyone could tell me how I might be able find a seizure alert dog? My 14 yr. old daughter had been seizure-free for the...

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Epilim side effects

Started by You (a moment ago) (no moms have responded yet) Hi, i have a son who's nearly 5, who's has other illnesses other then Epilepsy, he was doing great in his...

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Keppra for children?

my daughter has just started on the drug eppra, she is 1 yr n 8 months and was wondering if anyone else using the same drug or a child has had side effects or if it may cause...