Moms of Epileptic/Seizure Disorder Kids

Joey was diagnosed with Epilepsy/Seizure Disorder in July 1999 at the tender age of 9 months. Just as he was starting to cruise through the house ... holding onto anything he could to get where he wanted to go. Next thing, he was in the hospital fighting for his life. During his 6th brain surgery, where the remaining left side of brain was removed on August 18, 2005, he had a stroke in the right frontal lobe. Joey only has 40% of his brain remaining, yet he is attending school (3rd grade) everyday.

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epilepsy and driving

My daughter is turning 16 in a week. She has been seizure-free for over a year now because of her medication but I am SCARED to death for her to start driving. I want her to...

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Epilesy after a virus

Hi i'm new to all of this, my daughter was 5 when her first siezure occured, after all the EEG's MRI's and a lumberpuncher my daughter was diagnosed as having Herpis Symplex...

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epelim?

my son has just seen a specialised epilepsy doctor who is changing his medication from carbamazapine to epilim. do any other mums have any advice on this medication, what bad...

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travel insurance

hi just wondering if anybody has ever got travel insurance for their child im hoping on going abroad with my son next year i saw this advert on tv and thought i would check it...

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my boy

My boy is 20 now , been epileptic since he was 16 what a tough few years this has been, emotionally and physically.my sons seizures are always whilst he sleeps, he no longer...

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i am so happy

my 3 1/2 yo has epilepsy he was diagnosed at 11months.... i am so happy as he hasnt had a siezure since february..... he has been really sick twice with high temps between then...

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Speech Delays

I know I'm a lot older than many of you and my child is older than most of your children...so I speak from experience. For those of you whose children are speech impaired, my...

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Nero appt Tomorrow

Hello, I hope that everyone is doing well. Phoebe has a follow up appt with her Nero's Nurse P. We have to be their at 8:15 what a long day that is going to be. I have a few...

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Lissencephaly

I have been meaning to chat with other parents who have children with seizure disorders & this is my 1st time ever reading similar stories & I'm already at a loss for words...

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Hello, I am new here!

Hi my name is Amber and I am the mother of 2 beautiful children! My little girl Kaylee is 4.5 and starting pre-k this fall! My son Logan is 2.5 and he has complex partial...

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new type of seizure?

My daughter Morgan is almost 4 months old. She has been having Grand Mal seizures since she was 2 months old. They put her on Keppra 100mg 2x a day. She has started having...

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Trileptal

Does anybody have their child on trileptal? (Complex partial seizures) My three year old is going on his third week of meds (started at 1ml bid, upped it to 2 ml bid, and will...

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Trileptal

Does anybody have their child on trileptal? (Complex partial seizures) My three year old is going on his third week of meds (started at 1ml bid, upped it to 2 ml bid, and will...

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Need help !!

Hi, I was wondering if anyone could help me with my daughters condition ... My LO has uncontrollable seizures .. She is only 7 months old. Her first seizures started when she...

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Help for my daughter!

Hi, I'm pretty new to this site, and was wondering if anyone could tell me how I might be able find a seizure alert dog? My 14 yr. old daughter had been seizure-free for the...

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Epilim side effects

Started by You (a moment ago) (no moms have responded yet) Hi, i have a son who's nearly 5, who's has other illnesses other then Epilepsy, he was doing great in his...

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Keppra for children?

my daughter has just started on the drug eppra, she is 1 yr n 8 months and was wondering if anyone else using the same drug or a child has had side effects or if it may cause...