Moms of Epileptic/Seizure Disorder Kids

Joey was diagnosed with Epilepsy/Seizure Disorder in July 1999 at the tender age of 9 months. Just as he was starting to cruise through the house ... holding onto anything he could to get where he wanted to go. Next thing, he was in the hospital fighting for his life. During his 6th brain surgery, where the remaining left side of brain was removed on August 18, 2005, he had a stroke in the right frontal lobe. Joey only has 40% of his brain remaining, yet he is attending school (3rd grade) everyday.

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VNS

Hi we just seen a new dr for my son's seizures and talked about a few things. We talked about all the meds he has been on/failed I think the count is 12 in 5 years. She...

11

EEG and sedatation!!!

Hi My little premmie Bailey has been having seizures since he was 4 months old. He had two really long absent seizures in hospital and then went on to have tonic clonic ones....

5

Meds cocktail!

Anybody else's kids on a cocktail of meds? My little one is on 10ml/400mg Epilim/Sodium Valproate twice a day, 6ml/600mg Keppra twice a day, 7.5ml/7.5mg Clobazam twice a day and...

2

hello

my name is crystal on aug. 15 2008 my son caleb was born. healthy pregancy and no complactions. the day after he was born he had a "spell" where he turned blue and quit...

4

epilepsy in babies

my son had seizures at 10 days old,now parts of his brain are damaged ,and i don't know his outcome,he can't walk or talk and i wish i knew if there was any chance his condition...

3

Medical ID bracelet

My daughter has epilepsy and was diagnosed 1 yr ago. Today she takes Keppra and Lamictal and we are still in the process of controlling her seizures. I believe everyone she...

9

Bath or Shower time

Just curious how other mom's handle bath or shower time with their teens with epilepsy. My daughter is 12 and I know privacy is important to her. However last Sunday night she...

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