Moms of Epileptic/Seizure Disorder Kids

Joey was diagnosed with Epilepsy/Seizure Disorder in July 1999 at the tender age of 9 months. Just as he was starting to cruise through the house ... holding onto anything he could to get where he wanted to go. Next thing, he was in the hospital fighting for his life. During his 6th brain surgery, where the remaining left side of brain was removed on August 18, 2005, he had a stroke in the right frontal lobe. Joey only has 40% of his brain remaining, yet he is attending school (3rd grade) everyday.

  1. 1
  2. ...
  3. 74
  4. 75
  5. 76
  6. 77
  7. ...
  8. 87
5

Meds cocktail!

Anybody else's kids on a cocktail of meds? My little one is on 10ml/400mg Epilim/Sodium Valproate twice a day, 6ml/600mg Keppra twice a day, 7.5ml/7.5mg Clobazam twice a day and...

2

hello

my name is crystal on aug. 15 2008 my son caleb was born. healthy pregancy and no complactions. the day after he was born he had a "spell" where he turned blue and quit...

4

epilepsy in babies

my son had seizures at 10 days old,now parts of his brain are damaged ,and i don't know his outcome,he can't walk or talk and i wish i knew if there was any chance his condition...

3

Medical ID bracelet

My daughter has epilepsy and was diagnosed 1 yr ago. Today she takes Keppra and Lamictal and we are still in the process of controlling her seizures. I believe everyone she...

9

Bath or Shower time

Just curious how other mom's handle bath or shower time with their teens with epilepsy. My daughter is 12 and I know privacy is important to her. However last Sunday night she...

12

TAKING HIM OFF MEDS!

WELL WERE GONNA FIND A OUT IF HE IS ABLE TO BE TAKEN OFF OF HIS MEDS! THEY ARE GONNA LOWER THEM FOR FOUR WEEKS IF NO PROBLEMS THEY ARE GONNA TAKE HIM COMPLETELY OFF! IM A LITTLE...

12

Zarontin / Vitamin B-6

Can anyone offer any info on using Zarontin? It was working wonders for my son (5) in combination w/Depakote but he developed a nasty itchy rash throughout his entire body -...

  1. 1
  2. ...
  3. 74
  4. 75
  5. 76
  6. 77
  7. ...
  8. 87
1

Teen Epilepsy

My 18 year old son has had 3 seizures and his EEG came back abnormal so the doctor says he has epilepsy and prescribed Keppra. He refuses to take it since the first medication...

3

VIMPAT AND DEPAKOTE

MY 3 year old has been on just about ever seizure med out there. currently on Depakote 6ml twice and day and Vimpat 1 1/2 ML twice a day. any other moms have their children on...

3

migraine med

Hello Everyone. My son is 12 years old , going thru very rough time. He is having migraine since last year Nov. 2013. The pain is 24/7. very horrible. He is on TOPAMAX 100 mg...

4

need advice

so my 5 year old little girl was born with hirschsprungs disease we have pretty much got that taken care of expect for some bathroom issues. well recently we also found out she...

5

Help for my daughter!

Hi, I'm pretty new to this site, and was wondering if anyone could tell me how I might be able find a seizure alert dog? My 14 yr. old daughter had been seizure-free for the...

8

Seizures once a month

My 12 year old son has been having seizures once a month ( the same time of the month) for about 3 months now. He has a cluster of them on and off for about 24 hrs. When I...

21

Epilim side effects

Started by You (a moment ago) (no moms have responded yet) Hi, i have a son who's nearly 5, who's has other illnesses other then Epilepsy, he was doing great in his...

70

Keppra for children?

my daughter has just started on the drug eppra, she is 1 yr n 8 months and was wondering if anyone else using the same drug or a child has had side effects or if it may cause...