Moms of Epileptic/Seizure Disorder Kids

For all those moms caring for children with Epilepsy.

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gefs+

Does anyone have a child with generalized epilisey with febrile seizure plus? If so how has it affected them?

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Dravet Syndrome

I have a 2 1/2 year old that has dravet syndrome a very rare form of epilepsy that is caused from an scn1a gene mutation. We started seizing at 6 months old.

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New Challenge

Can you be kind to yourself for 30 days? We want to empower mothers to practice better self-care by doing something nice for themselves everyday for 30 days. Simple acts of...

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support groups

Any body know of support groups in the Tampa Bay Area (FL) for parents of children with Infantile Spasm or even just seizure disorders in general?

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SEIZURE FOR 1HOUR

does anybody know.. what the damage is in your brain for a child to have a seizure for 1 hour.. is anybody out there who has a child who has DRAVET'S SYNDROME?? ALSO CALLED...

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siezures

It is actually me that has the siezures. I had epilepsy until I was 18yrs old, and had learned to control them somewhat. Then they were dormant for 15 yrs, until I had my 3rd...

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Welcome -- New here too

Please, if you're a parent, take a moment and sign up to connect with other parents who are just trying to keep some sanity in their daily lives. No spam - no BS - and she has...

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Medicade and Medications

I have a 6 yr old son with Epilepsy For several months my son has not been getting his full dose after contacting the doctors and the pharmacy, I found out Medicaid only pays...

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epilepsy and driving

My daughter is turning 16 in a week. She has been seizure-free for over a year now because of her medication but I am SCARED to death for her to start driving. I want her to...

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Epilesy after a virus

Hi i'm new to all of this, my daughter was 5 when her first siezure occured, after all the EEG's MRI's and a lumberpuncher my daughter was diagnosed as having Herpis Symplex...

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epelim?

my son has just seen a specialised epilepsy doctor who is changing his medication from carbamazapine to epilim. do any other mums have any advice on this medication, what bad...

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Epilim side effects

Started by You (a moment ago) (no moms have responded yet) Hi, i have a son who's nearly 5, who's has other illnesses other then Epilepsy, he was doing great in his...

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Keppra for children?

my daughter has just started on the drug eppra, she is 1 yr n 8 months and was wondering if anyone else using the same drug or a child has had side effects or if it may cause...