Moms of Epileptic/Seizure Disorder Kids

Joey was diagnosed with Epilepsy/Seizure Disorder in July 1999 at the tender age of 9 months. Just as he was starting to cruise through the house ... holding onto anything he could to get where he wanted to go. Next thing, he was in the hospital fighting for his life. During his 6th brain surgery, where the remaining left side of brain was removed on August 18, 2005, he had a stroke in the right frontal lobe. Joey only has 40% of his brain remaining, yet he is attending school (3rd grade) everyday.

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seizure length?

I am overwhelmed sometimes reading peoples posts when they say their children have numerous seizures a day. My son has seizures every few weeks and it's scary enough. It just...

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Anyone on KEPPRA?

Hi All, I'm new to the group and wanted to see if anyone is having luck with anti-seizure meds. My son had his first seizure in June and after an MRI, they found a group of...

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Febrile Seizures

Has anyone else dealt with reoccuring febrile seizures? My two year old daughter has had two in the past 3 months. Now she is running a fever again. I've got her stripped down...

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Ohtahara Syndrome

My daughter was diagnosed with Ohtahara Syndrome at the age of 9 months. She is now 19 months, has a seizure disorder, cortical vision impairment, and is very developmentally...

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Help for my daughter!

Hi, I'm pretty new to this site, and was wondering if anyone could tell me how I might be able find a seizure alert dog? My 14 yr. old daughter had been seizure-free for the...

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hi

I have twins and one of them have cortical d on the left side of his brain and he also has West syndrome and we all found this out when he was 3 wks he is on Meds and doing a...

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Help for my daughter!

Hi, I'm pretty new to this site, and was wondering if anyone could tell me how I might be able find a seizure alert dog? My 14 yr. old daughter had been seizure-free for the...

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need advice

so my 5 year old little girl was born with hirschsprungs disease we have pretty much got that taken care of expect for some bathroom issues. well recently we also found out she...

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Screaming fits

Okay does anyone have any advice on how to deal with the screaming fits caused by Keppra? My son will get into fits of screaming that last 30 minuets or more and I'm going nuts.

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Seizures once a month

My 12 year old son has been having seizures once a month ( the same time of the month) for about 3 months now. He has a cluster of them on and off for about 24 hrs. When I...

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Epilim side effects

Started by You (a moment ago) (no moms have responded yet) Hi, i have a son who's nearly 5, who's has other illnesses other then Epilepsy, he was doing great in his...

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Keppra for children?

my daughter has just started on the drug eppra, she is 1 yr n 8 months and was wondering if anyone else using the same drug or a child has had side effects or if it may cause...