Absence seizures, depakote, Lamictal and MAD?

Jennifer - posted on 06/23/2011 ( 8 moms have responded )

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Is there anyone who is also dealing with absence seizures. My daughter was dx at age 4 and we tried MAD before meds and had some results but I could not get her to really work the diet so prior to entering kindergarten we started Lamictal. We did well only having to increase meds twice to get control but unfortunately it came to light that my dd also has this eye fluttering thing that is also a type of seizure that is aggravated by Lamictal. So now we have to switch her to depakote, which is the one drug I did not want to use bc of all the horrible things I have heard about it. Unfortunately it maybe our choice.
Was wondering if anyone has had a similar story or has a child on depakote (looking for some good news) or has the eye
flutter thing (not sure of the medical term).
This whole thing is so frustrating and it can really get to me at times but my dd just takes it in strides, god love her!

Thanks, Jennifer

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Tuloni - posted on 06/29/2011

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I have a 9 year old son who is on depakote and is doing well. He was also complaining about head achs before being placed on this medication. Now that he is on depakote, no more head achs and seizures. This medicine is wonderful, the only downside is the slight weight gain. But it can be offset with increase excercise through play. Hope this helps.

Amanda - posted on 06/24/2011

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Hi Jennifer,
My son also got diagnosed with absent seizures and myoclonic seizures. They wanted us to start him on depakote but we went with keppra instead. But they're not sure the keppra will work for the absent ones. But were praying it does, he's only been on it for a week. Seizures are the one thing I did not want my son to get so I hear ya when you say it can be frustrating.

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Angela - posted on 04/22/2014

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Kids are much more reseliant than parents. My son has both types of those seizures and deplore has helped him. The side affects are very mild and it has been a great help. Good luck

Sabrina - posted on 10/28/2011

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Hi Jennifer,

My six year old son is currently taking Depakote, he has Absent seizures and Electrographical Status Eptilepticus of Slow Sleep, it workd well stopping the day seizures however it has not stopped sleep seizures. Some of the side effects he had were moodiness, sleepy and headaches. We are now taking Lamictal with Depakote, they are two drugs that do not interact well together at all, if not started slowly and gradually raising the dose a severe rash may form and or Stephens Johnson Disease. I don't mean to scare you, just thought id let you know what I've come up with from my reserch on the two drugs together. Best of luck to you!

Karen - posted on 07/06/2011

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Hi my son has just started on lamical and i have just started noticing a few times the fluttering of the eyes also.

Sanfloraine - posted on 06/29/2011

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My baby is 13 months old, he has lots of absence seizures. He also rolls he eyes. He was recently diagnosed and is on Trileptal, it has been 2 weeks. No results yet.

Renee - posted on 06/29/2011

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Depakote causes ployscystic ovarian syndrome in young girls when taken prepuberty and during puberty.I took it and live with painful ovarian cysts along with menstrual problems/infertility.Did they try tegretol?

Jamie - posted on 06/29/2011

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My daughter who is 13 now was diagnosed at age 5 with grand mal and absence seizures...she is now on Keppra and Lamictal they help control her seizures very well....and had until February when her body did a hormonal change so had to up the doses. I like this balance of meds. My daughter to had the eye thing going, and these seem to help. Throughout your daughters life the meds will keep increasing unfortunately. My daughter hates it, but if it keeps her seizure free that is what we do.

Tori was once on DeppaKote....hated it...now we have Keppra and its doing its job!

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