Sandy - posted on 07/25/2009 ( 14 moms have responded )
I'm dealing with Joey the best I can but he has anger issues that are driving me crazy! Anyone out there have a seizure kid that is aggressive and gets anger fits??? Help!!! It's like Dr. Jekyll and Mr. Hyde complex! One minute he is the sweet Joey he's always been and then, as if a light switch was turned on, he will hit, push, grab, throw and just be very mean! I had to put the sharp knives away cause he kept getting them and walking around with them, sometimes showing a possibility that he might want to harm me or my mom. He'll take whatever he has in his hand and smack the dog with it. Could be a book, spatula or his little kid computer.
I just took him off of 600 mg of Banzel a day, the newest of seizure drugs, as it might be the cause of his increased anger and aggression. He's always been a great kid!!! I did increase his Trileptal from 900 mg to 1050 mg twice a day. The part that really concerns me ... his seizures did NOT get any worse. I just stopped the Banzel without weaning him. Keppra was added and taken away last year cause it made his anger and aggression flair up.
One thing about drugs. They can turn on pieces of brain that had been previously not seizing. This is from what I've experienced with Joey. Whatever you do ... don't EVER give a seizure kid or adult Abilify!!! It took Joey into seizures that his whole body rocks while his arms and legs are kicking and flailing around. He is STILL having the side affects of Abilify as of this minute. I stopped the Abilify August 1, 2008! It turned on parts of his brain and now I can't turn them off. He's been in the hospital twice this year with seizures that want to last 5 ~ 10 minutes. Before the abilify, he had petit mal and absence seizures that didn't last longer than 5 minutes .. usually just a couple of minutes at most. Rondec is another drug, along with Benedryl, that should not be given to seizure people. It lower their resistance. Rondec started Joey's seizures up after he had been seizure free for 3 weeks following his left hemispherectomy. And he has never been seizure free since!!! Drugs aren't always good!!! Beware of what you give your kids!!!
If anyone has any insight or suggestions, please let me know!! I am at my wits end on some days!