P.Richardson - posted on 01/24/2011 ( 3 moms have responded )
I was told ny a dr. at childrens hospital Salt lake City that my son of 24mo. has pfapa it is a new seizure disorder in males only between the ages of 2-5..with unexplained fever but no reason for the fever and no illness or infection my son was fine and by the time the ambulance arrived he went from 100.2 to 106.3 his seizure lasted 15 min. and he stopped breathing the 911 asked if we had a fibrilator at the house...he roused and caught a breathe but was still blueish...very scary to me ...with each siezure his chance of another increases 10%..he was not diagnosed with epilepsy...or a true disorder and they think tonsils are a related cause of this siezure mystery....I know this seems mild for all of you that deal with this daily but he is my fifth child and I found him face down at 13mo. in the crib having a siezure he could not move he was partially blue and drownding in his own saliva..had I not heard him grunting from my room I would have lost him how do you cope with the thought of sleeping....I have not fully slept in 2 years......