Denise - posted on 02/18/2011 ( 12 moms have responded )
My 3 yr olds new neuro said that he wanted to do another EEG before he diagnosed her but the spikes mostly at night indicate possible BRE. He thought she was a little young for this so he wasnt convinced until he saw another reading. I def want an MRI/brain scan to ease my mind of something else going on but evidently from the spikes they can determine if she def has the disorder. I despirately want to talk to other moms that have experience with this type and if she does have this disorder, what meds other kids with the same have been put on. Even though he said the prognosis with this is good and they usually grow out of it by teens, that is a long time for us and I wish someone would tell me not to worry so much...because I cant stop worrying. Especially with the seizure types being during sleep...I cant sleep for watching her. The EEG from her sleep study showed a lot of spikes in the center. She also has sleep apnea and scheduled to have her tonsils removed next week...he said that could have triggered her seizures but it wasnt causing the spikes that makes her prone. I would appreciate your input!!