Anyone have a child with febrile seizures?

Dawn - posted on 04/22/2009 ( 65 moms have responded )

23

27

0

Can anyone tell me details about their child's febrile seizures? My daughter has now had four of them, but I keep getting told most kids only have one.

MOST HELPFUL POSTS

Michelle - posted on 12/19/2013

1

0

0

My 2 yr old daughter has now had her 4th febrile seizure (according to paediatrician). The thing is she didnt have a temp or feeling unwell prior to the seizure nor temps or feeling unwell after the seizures. She has also had a few drop seizures. I know that temperatures can cause seizures but can seizures cause temperatures? Appreciate any advice here.

Tanya - posted on 02/07/2013

3

0

0

I have booked an appointment with the doctors but have to wait a week for it! Im not leaving without answers this time.
Jemma, it is horrible seing your child go through this, especially one for 25 minutes that must have been horrendous. Bit of advice i got told was it is not the temp, your child could be 38 all day and not have one but if they went from 37 up to 40 in a short time thats whay causes it. Also time the medicine make sure its near enough exact. And if she has more, you might start to notice signs i.e my son flinches alot before. I'm nervous after my son has one, can't sleep but remember they don't hurt your child there more horrific for you. Paramedics always comment how calm i am, this may be due to the amount my son has had but inside i'm not! But i have to be for my son. X

Jem___stone - posted on 02/07/2013

3

0

0

Course u dont ever want to c ur baby poorly. :((

Aww ur poor son. Maisie had two so far and was 2 months between them. She is always constantly poorly and i suppose teething dont help.

Convulsions dont run in our family its all new to everyone we all never herd of them.

Its took control on my life i never want to b alone just with maisie constantly feeling her head and checking temperature. so jumpy have her sleeping with me. It really does effect you. I am not a strong person and really has got to me and still its been 3 weeks since her last and im still not sleeping .

I brought a ear thermometer i check her temperature regular to make sure its ok if at any point it goes up and im straight at gp or hospital x

Adriana - posted on 06/04/2014

3

0

1

Sorry to hear your experience. My little nephew had one recently. I believe is his second. The doctor said that if he has a third one, it can be dangerous. Does anybody knows if there is a thermometer digital bracelet or something that babies can wear all the time and the temperature can be monitor... Perhaps if the temperature rises an alarm goes on... Thanks

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

65 Comments

View replies by

Alisha - posted on 10/23/2014

1

0

0

Hi, I have just signed up. My 17 month old daughter has had 4 seizures now. One in June and she had 3 last Tuesday, one lasting 22 minutes. They admitted her bit did no tests and diagnosed her with complex febrile seizures. Could anyone tell me about your experiences with these. I want more tests done but they dismissed it because she did have a temp of 38 each time that came on very suddenly. I am so scared, she went blue and I just feel so scared. What are the chances of it being epilepsy when they temperature induced? Thanks in advance.

Azalea - posted on 09/28/2014

13

0

4

This forum is very interesting, seems like a nice support group.
My son had his first febrile seizure on June 23rd, it was really bad... It was caused by an ear infection & his fever skyrocketed after medication. It may have been a few minutes, but it felt like it lasted forever. He turned blue, my sister did CPR & Chest compressions.

His second seizure was last week, (September)
I was taking a shower and left the baby with my mother & sister
They told me he was shaking & deliousional
I hurried out of my shower, and I went to check on the baby, He already had the seizure in bed.

It was unexpected, another ear infection... He recently started childcare August 28th, with me also going back to school, college.

He refuses liquid medications so it's tough, He takes ear drops too.
He's on antibiotic - liquid medicine, we are ontop of it even if he vomits it back up.
Suppositories are given for fevers. I take his temperature very often & I informed his childcare center. His second seizure he was also resucitated, turned blue the first time and the second time his lips turned purple, they turn white when he's sick, but they are originally red.

Febrile seizures last up until 5 years old, My son just turned 3 on August 6th.
This would definetly have to be the worst thing a parent would ever go through, even if it's not it's pretty terrifying. I also think it could be caused by dehydration.

I feel for all of you. Stay strong for your little ones! ♥
**Turns out it's epilepsy & tonic clonic seizures.**
He needs a EEG & doctor's appointment.... maybe we'll find treatment.

Sharon - posted on 02/22/2014

1

0

0

Hi I am new to this site - my grandson whom I have custody and is 17 months old has had 4 seizures for the past two weeks. The first lasted 20 min, this last one was almost 40 minutes long! It was awful to endure this. He is a sweet gentle baby and to see him screaming was terrible. He had testing yesterday (EEG) so ....waiting on results this week. He has a Neurologist bc he has Neurofibromitosis 1 if anyone is familiar with it. Anyways I'm glad to have found the site and possibly some support. God bless -Sharon

Joyce Ann - posted on 02/20/2014

1

0

0

My daughter's pediatrician said its hard to say how many times they can have it. But that most kids outgrow it by 3yrs old. However, febrile seizures are caused by high temps. If the baby is having a seizure and has no temp whatsoever my pediatrician said that they would then do neurological tests. If I were you I would advocate to have other tests done if your baby is having seizures without a temp.

Debbie - posted on 11/18/2013

6

0

0

some drs say...that its normal..for a child to have febrile seizures...but what causes the temperature in the first place,,,,an infection...somewhere in their body...fix...the cause...no more...sezures....the child needs to be on...antibiotics,...until....the infection is gone completely...my grandson...was on antibiotics for...about...3weeks...or more as he had pneumonia,,,

Debbie - posted on 11/18/2013

6

0

0

children don't have febrile convulsions for no reason...they have an infection,..somewhere in their body...and you just need to tell...the dr...to xray...their lungs...and check for urinary infections as well....demand it...

Debbie - posted on 11/18/2013

6

0

0

please...to everyone...whos child...has had a febrile convulsion,,,,demand that...the drs xray...their lungs....for pneumonia...and also...check...urine for...bladder infections...etc....just from experience....as I demanded that...after my grandson of 22 months...had his 4th sezure....and...they xrayed...he had...pneumonia for around 5 months...

Debbie - posted on 11/18/2013

6

0

0

one of the drs I saw...when my grandson..had .them(seizures)...sent me home with panadol...after 4 of them...I knew it was just not normal...he had to have had an infection...to cause high temperatures....so the 4th time....he had the high temp...and the seizure...at the hospital...I demanded...that they xrayed...my grandsons lungs....they found that he had pneumonia...he had it for 4 or more months...before they ...even...picked it up...he also...had an infection...in the bladder...which was caused by an infected willie...that was the reason...he was having the febrile seizures...demand...to have your childs lungs xrayed and their urine tested...

Debbie - posted on 11/18/2013

6

0

0

trust me...your child has a temperature....because...of an infection...in either her bladder or her lungs...or somewhere...else...don't...leave the hospital...until..theyve checked their urine...or have done...xrays on their lungs...

Debbie - posted on 11/18/2013

6

0

0

ask dr to test...for urinary infection...and any other infection...because...my grandchild...had 4 seizures...in the end found ...out that he had pneumonia...and a infected willie....

Hannah - posted on 06/27/2013

1

0

0

both my girls has had them and its is scary i also worry when im alone a few weeks ago my youngest had a temp so took her docs they sent us home with antibiotics 2 hours after she went in to a fit that lasted just over 3 hours she spent time on the high dependency unit in hospital and was told that now she has had a prolonged fit that it is likely to happen for a long time the next time she fits thankfully her little brain was unharmed and i have total respect for the 9 doctors that worked on her for just over 2 and half hours. i myself was unaware such a thing could happen because of a high temp and really think mums and dads should be told about this kind of thing especially new parents . i think its silly when your told to wait 10 mins before calling an ambulance as its scary as hell and im sure any parent that's been through this will agree when i say it doesn't matter weather its your childs 1st fit or 10th fit its the same scared and petrified feeling every single time, i just think people should be educated on matters that seem so harmful and simple to doctors and members of the medical profession that are clearly upsetting and scary for any parent x

Lynsey - posted on 06/06/2013

4

0

1

My son has had 4 total. # back to back on Christmas eve and one 4 months later when he caught a bug. A very good friend's son has them too and hes had quite a few, last one lasting 30 min!!!

Lynsey
www.hotcitycoolmom.com

Tanya - posted on 02/07/2013

3

0

0

Jemma, i was at first but he was having them every month at least. The only reason i'm worried about epilepsy is because it runs in mine and his dads family but i also had convulsions too (not linked). I think you have a right as her mother to be worried, of course we don't want anything to harm our babies, we want to protect them. Just try to relax abit, i got told if they are prone they will have them but they will grow out of them. If your still worried maybe see your GP, its obviously caused you anxiety and sometimes in A&E they don't have enough time to explain everything properly to you x

Jem___stone - posted on 02/07/2013

3

0

0

Tanya im so worried reading everybody experiences. I find it hard pulling myself together now alot of children have got eplisesy oh god :((((

Im so so scared keep reading things on the internet. Last one maisie had she was having calpol and nurofen and temperature was only 38.6 so werent really that high.

Im scared cause she is accident prone always bumping her head. Are u the same?cxx

Jem___stone - posted on 02/07/2013

3

0

0

Hey ladies i am new to this...

I have a 17 months year old daughter Maisie. she had her first convulsion at 14 and half months old which i thought o had lost her and was fitting for 25 mins was the most scariest thing ever. Went to hospital and was due to viral tonsillitus.

Then not long ago maisie had her second convulsion 16 and half months which later 5 mins and this time bacterial tonsillitus.

I am so so scared and she sleeps in my bed as i am a nervous wreck cant sleep and when she bangs her head or anything im a nightmare.

Im just so scared the next time she has one constantly checking her temperature. There was only 2 months between both convulsions. How does everyone else feel?

Am i being to paranoid? Thanks jem x

Claudia - posted on 02/05/2013

3

0

0

Hi Tanya,
I'm so sorry what you are going thru with your son. Yes I would keep pushing to get him
tested. I am in the process right now of having a neurologist see my son. I want him to get re-tested just to make sure everything is ok.

Claudia

Tanya - posted on 02/04/2013

3

0

0

Hi i'm new to the site :-)
My son is 3 1/2 years old, he had his first convulsion at the age of 18 months, he had one every month for around 5 months, one without a temp but he had fallen so they put this down to a head trauma. He then had a rest from them, i was told that in summer this tends to happen as theres no much stuff going round. He's had numerous since one even including at PE at nursery which he fell off a bench! I managed to get a doctor to refer him for tests as in both sets of families epilepsy runs, but they said because he was potty training and very forward for his age then they wouldn't test him. His last one was 31.02.13, he was in bed when i heard him screaming/crying the convulsion was over but i recognised the signs, i checked his temp and he was only 36.4 no where near a high temp if anything quite cold. The hospital have dismisse this though as his temp flew up whilst in A&E. Although i know they are more than likely right i just wish they would test him, being dismisse like that upsets me and i can't help feeling its because i am a younger mum and not been took seriously! Do you think i should push for tests again or leave it? X

Claudia - posted on 01/30/2013

3

0

0

Hi Michelle, I'm so sorry you are going thru this too. This by far is the hardest thing I have ever gone thru with my son. Just like you we are checking his temp every hour pretty much. I havent really figured out how to cope with this. To me it doesn't get easier, the good thing is I have an awesome support system. My husband is great and so positive and so is the rest of my family they never leave our side. I hope that both of you children grow out of this soon.

Michelle - posted on 01/28/2013

1

0

0

Awhh I am so sorry Claudia. My 18month old daughter just had a febrile seizure this past Friday night. It was the most frightening thing I have ever witnessed in my life. I am soo paranoid to when it could happen again. I just can't put my mind at ease no matter how I try to distract myself. I don't know what to do. I must have taken my daughter's temperature 20 times since we left the hospital on Friday night. How do you cope with something so traumatizing??

Claudia - posted on 01/27/2013

3

0

0

My son Vincent was febrile seizure free for almost two years until Jan 11 -13 he had another one due to a viral infection . We noticed he had a rash a few days later we took him back to the hospital and were told he had scarlet fever and that's what caused his fever . He was put on antibiotics for ten days . My poor son had another febrile seizure last night . His temp was 101. The seizure was mild and lasted about 5 min. I pray that he out grows them soon. He's 3 1/2 and has had 6. He had an EEG and MRI that came back normal a couple years ago. It helps to know we are not alone .

Samantha - posted on 01/26/2013

2

0

0

My daughter started having seizures at 9 months old. it was very scary. We were told at the hospital that it was a febrile convulsion and after that point she had many, many more. At 18 months old she was diagnosed with Epilepsy this was on new years eve of all nights! it was an awful time. My beautiful daughter was put on Epilim but still continued to have seizures. Never one seizure was the same but we got to know which ones were Epileptic and which ones were convulsions, both different but also but scary, She spent nearly the 1st 2yrs of her life on a paediactric ward in hospital, the staff were brilliant apart from one awful consultant who didnt have a bedside manner to be a consultant to anyone!!! My little girl turns 6yrs this May. She came off her Epilim last June (2012) as she went nearly 2yrs with no seizures, it was a slow process coming off the meds. Since then she has had a couple febrile convulsions and 1 Epileptic seizure. We think she is about 12 months behind other children her age but is doing well. It is so hard to see your children like this, it broke my heart watching her from such a young age and even though her seizures/convulsions are so far and few between now it doesnt give me piece of mind because I wonder all the time when the next one will happen. My daughter convulses at a very low temp anything from 38 degrees up so we have to watch her very closely if she is unwell. We have been told that children start to grow out of convulsions when they are about 7yrs of age.

Kt - posted on 01/21/2013

3

26

1

My daughter has had 4 and her latest one as (1-16-13) which she was addimitted into the childrens hospital to have bloodwork, urine tested, ct scan and eeg done..Everything came back fine, thank goodness. I had them when i was younger so it got passed down to her.

Erica - posted on 01/18/2013

1

0

0

My 1 1/2 yr old started getting seizures 6 mos ago & they still can't figure what type they are. It is so scary. I'm in the nursing field but it's not the same with my own baby. I panic so badly. Thank God either my mom or husband are always around. He first got 5 in less than 24 hrs. Then while been hospitalized got hundreds more. We had a few months without them but again since dec 24th he keeps getting them & significantly loss a lot of his vocabulary. God Bless all these innocent little babies.

Stephanie - posted on 01/11/2013

1

0

0

my daughter just had one on jan 5th. worst experience ever! Wish someone could have warned me about them turning blue!!! She seems to be ok, but i will never be the same

Claire - posted on 09/11/2012

1

0

0

Hiya I was told by my doctor that febrile seizures are genetic if one parent had them when they were younger it was more than likely their children would fit with high temperatures. My childrens father suffered with them and both my daughter and my son have had seizures. My daughters were pretty much run of the mill febrile convulsions that lasted 2 minutes or less however my sons are completely abnormal for example his started at 6weeks as opposed to the 6months they're meant to begin from his last 4 seizures have lasted 40minutes to an hour culminating in him having to have diazepam anally. (They won't risk giving injections to babies that are seizing in case they hit a vein!) And buccal midazolam as he had a completely different seizure after the previous one finally stopped! Neither of these medicines actually stopped his fits though he came out of them by himself and he didn't have a temperature before the seizure began. Ge was taken for an eeg and that came back normal. I'm at a loss of what to do as they peadiatrics doctor will not diagnose him as epileptic although he agrees that both febrile and epileptic seizures do not tend to last as long as his! Someone mentioned a genetic condition that sounds like something I could suggest to his doctor could they please let me know more about this condition as I'm quite literally worrying myself sick expecting him to have another one all the time!

Claire

Melissa - posted on 09/11/2012

3

0

0

My son has had 2 of them. I was told by age 5 they how out of them. He is 6 and 1/2 years old and hasn't had one in almost 2 years.

I know it's very scary! Hang in there!!

Amy - posted on 09/01/2012

2

0

0

My son was 10 weeks early he came home 7 weeks after being born and 3 weeks after that he started having fits, his were linked to tempreture and he has a scan that showed his gland that controls his temp in his brain is underdeveloped he has had approx 30 fits now and is 10 months old if they last more tha. 60 seconds he gets admitted but were getting the hang of spotting them before they happen, so we can stop them with reducing his temp, there scary but usually not dangerous, we have too keep eye out for colour changes and responsiveness after the fit, If they don't return to normal after 10 mims we have to get him checked out, he does have a heart condition which is why he has to be admitted but usually febrile seizures are nothing to worry about unless they last a while 5mins plus, u less there are any other underlying issues, even after seeing 30+ of these I, still not used to it, he has them while sleeping too and has now started biting his tongue since his teeth have come through, he does get checked over regularly and so far all his brain tests and brain wave scans have been within the normal range, his oxygen levels become very low during fits and the night fits are usually more linked to a low body temp as through the night he will drop down to a scary 33C which is around the level of hyperthermia so we have to unsure lots of blankets etc even though it's summer, usually they grow out of it by 6-7 as by then they can regulate body tempreture better, xx

Marlene - posted on 08/28/2012

1

0

0

i have 2 grandchildren thats had them but now they act fine they had one each granddaughter had hers 1yr ago grandson had one 2 weeks ago now dr wants to do eeg on him same dr for both kids dont understand for one not the other

Dee - posted on 08/28/2012

1

0

0

My son was prem and had menigitis at 5 days which have led to different health concerns, including a low threshold regarding seizures... anyone can have a seizure but some people are more likely to have them then others ...my son experince with febrile is in the extreme side due to his rough start in life from august last year to now my son has had 40 fibrile's this is very rare and from what i have been told most children who have had a febrile convulsion will have another one before they are 6 years old but it most likely will be only on a few occassions.. febrile convulsions are a type of epilepsy but one that children grow out of in most cases they are harmeless in fact normally only a couple minutes long.

Iin my experince the hospital is only worried about long seizures lasting more then 5 minutes, having a child who has seizures does not mean he/ she will be dignosed with epilepsy in fact my son has had tests EEG and they do not belive he will have epilepsy ..

the seizures that my son has present with eyes rolled back, severe shaking of arms/ leg/ head

and going blue mouth feet hands after this the child will be all have a complextion that is all mottled from lack of oxygen (i think the skin looks like a road map at this time) this is normal

you may find your child vomits after the seizures and lets out a very scary scream again normal this is natrual response to the seizure.

when you child has a seizure move any heavy objects from aroun the child.

roll you child on to they side making sure the air way is open and allow the child to have the seizue do not try to stop the child from having the seizure e.g holding the child down or giving the child CPR this should be given if the child stops breathing after the seizure has stop (very rarely does this happen and thankfully it has never happened to us)and call ambulance or take the child to hospital if you are confident yourself.

The seizures do not hurt child even though they can show detress i think it probally worse for the parents then the child

the treatment plan i do is keep my son always hydrated and if sick give both panodal and nurfen

they are 2 different medication so its quite safe to use both at the same time i find this very effective in dropping the temp when he is fevorish we are also on a mangement plan and have buccal midazolam in the fridge if the seizure last more then 5 minutes

hope this is helpful and goodluck Dee

Maria - posted on 07/16/2012

5

0

0

my son had one while we were on vacation hes only 3 years old? I want to know if this going to be his last febrile seizure? is there any way u can answer this question?

Nikki - posted on 01/24/2012

5

0

1

My son had his first when he was 14 months. He is now 3 just diagnosed three weeks ago with generalized epilepsy and started him on meds. If it wasn't for my pushing for answers, we wouldn't know about the epilespy. He temperature would go from normal to 102 or higher and would cause his seizures. I knew there was more to it though. It took us two years to get an answer. If your daughter's doctor hasn't mentioned a pediatric neurologist, ask. You are her mom and you know what is best for her. If you have the slightest doubt, push!!! My son had three and his pediactrian completely understood when I told him that there is more going on and referred him with no questions.

User - posted on 01/22/2012

2

0

0

my son was 15 months old when he had his first febrile seizure. We were told its very common in kids. his seizures usually last 30 seconds or less, he has had 5 seizres in his lifetime. every kid has a .5 chance of developing epilepsy and if they have a febrile seizure the risk goes up to 1%. so very low. he is 3 and a half and hasent had a seizure in a year! all kids will grow out of these seizures by the time they reach 5 years old.

Jessica - posted on 01/19/2012

3

0

1

My 3 year old son has been having febrile seizures since he was 18 months old....he had 3 before we did our first EEG, which came back normal; and has had another 5-6 since. His most recent EEG came back as abnormal and we now have a formal diagnosis of "seizure disorder" versus febrile seizures. His seizures started out as 30 seconds to 2 minutes, give or take, and could occur with a fever of 99.5 or 104 - actual temperature doesn't seem to matter. It can be from an ear infection or the flu - again, doesn't matter. His last seizure was 40 minutes long....



Most kids do only have one, or maybe 2, but as you can see, we have been seeing a neurologist for almost 2 years and just after this last really long, bad one did we receive an epilepsy diagnosis. Just remember that an EEG can come back as normal even if there is a problem, and if you want a second opinion and can afford it, MRI's can be really helpful. Good luck!

Natalia - posted on 01/17/2012

1

0

0

My son had his first seizure after his first birthday , he ended up having two in a 24 hour period as doctors did not explain alternating advil & tylenol every 3 hours. He has had five since then. Last one was on sunday and there was no temperature until we got into ambulance 38.5. once we arrived at hospital it was 39.4.

Normally I'm in control until we reach hospital but this one was at a restaurant and i was holding him in my arms when it happened, cried during the hole thing.

His first seizure was three mins and all the other ones have been under two mins.



He has had EEG and we are still waiting for MRI from sick kids. The EEG came back clear but doctor wants to be thourogh.

Ashley - posted on 09/09/2009

3

18

1

my youngest son has had them since he was 10 months and he's 2 years old and still has them. i always have to make sure he stays cool not to cool but make shure he doesnt get hot were he can have one. I f I notice him getting hot or even sick i have to tend to him fast as posible.

Brandy - posted on 09/08/2009

6

14

0

it is different with each child... my son is 4 and he has had this type of seizures since he was like 15 or 16 months old... he was put on kepra about a year of so ago... thank god he hasn't had one since he started taking this medicine...,.But they also said that they would take him off of this when he was 4 or 5....before the medicine he had about 6 or so.....they say it is all due to fever....

Daniele - posted on 08/23/2009

2

18

1

My son had two in one day. Then another one a week later. He would have them when his fever shot up. Even it was from normal to 99.The doctors told me that it all depends how fast the temp shoots up.

Amy - posted on 08/22/2009

5

20

0

My youngest son had febrile seizures starting at 2. He even had to be airlifted once. He was in seizures for over 40 minutes. They couldnt stop him. He had them until he was 6. Everytime he got sick. He even wandered off on us in the middle of one once. Very scary. But the good news is he is now 10. Almost 4 years seizure free. 8 months off medicines. Hope everything works out for you.

Ashley - posted on 08/21/2009

12

4

0

My 3 year old has them and has had them since about 6 months. I have noticed that they occur if the fever rises too quickly. You really have to be diligent when they get sick. I check her fever every ten minuets when she is sick if I notice it going up quickly or at all even I strip her down to her undies/diaper, they hate this because they feel cold but the old "sweat it out" theory only compounds the problem, if the fever persists give them the normal dose of tylenol, and I even put rubbing alcohol on a rag and rub it on her chest and back( another old wives tale) but seems to work well. My little one still has them but they are fewer and further between. I have lost count of how many but she also has random seizures as well. I would definatly have it checked by a Dr.

Jill - posted on 08/10/2009

21

10

2

if a child has one fibrile seizure thiers odds increase that they will have another. it is caused when the body temp raises too quickly, thier little body can't handle it. my advice is to always keep an eye on thier temp and help them always cool down. we keep a baby monitor on at all times and that helps us to sleep better

Maggie - posted on 07/23/2009

1

0

0

My son had one 3 weeks ago! We were luckily sitting in the doctors office when it happend. Not sure for the first one what I would have done had been home alone with him. He is 19 months old. I have had several peopler tell me they knew someone who knew someone whose had a child who had had 1. But the only other mother I have met with a child who has them has had more than she can count. He is 3 and has been having them since he was 18 months old.

Peta - posted on 07/20/2009

4

22

0

my daughter has had quite a few of dem, she's had her 1st one wen she woz 4 yrs 8 months(12/06/08), it may/may not turn in2 epilepsy, but my daughter is now 5 yrs 9 months & now has been recently diagnosed with epilepsy as a result of her febrile seizures, but dont get me wrong ur daughter may not, it is very scary @ first but da best thing 2 do is ring an ambulance da moment it starts cause sometimes they wont come out of it.

Kassandra - posted on 07/15/2009

1

22

0

Both of my younger children have had them, my daugther was 12 months (now 31 months) she had a fever n had one but hasnt had one since but ended up that she need her tonsils removed which she had done last week and has she was released from the hospital 3 days after, as we were pulling outta the parking lot of the hospital my son ( 18 months) had his first one but he had a fever earlier that day that had gone away wit a bath and meds so at the time he did not have a fever but right after it happened he had a fever of 101, also with my son the right side of his body was stiff for about 30 mins after and he kept shaking for about an hour after but was a wake
1 They says it febrile seizures but say its in the gene too because it happen to both children and my oldder child whos from another father has never had anything like it, so when we followed up with our family doctor 2 days ago she would like to look into it more and run tests because she believes theres something else because its happen to both children!!

Tonya - posted on 07/14/2009

4

5

0

Yes my daughter has engerlis epilsey with febrile seizure plus. It is hard to find and it takes gentic testing. My daughter went for 2 years with daughter saying I was letting her fever get to hih but their was never no fever before hand always after the seizure. I went all the way to houston to ge her help for this and found some really good doctors there, if i hand not done that she would still being said that she was having fever seizure the gene they need to look for on this kind of seizure disorder is SCN1A gene.

Julie - posted on 07/13/2009

5

13

0

My daughter had a febrile seizure when she was 5 and they told us there was a 99.5% chance she would never have one again because of her age but this past October she had 2 back to back brought on by a high temp, she is 8 now. We had to do cpr on her in the dr.s office and in the ambulance. After spinal taps, cat scans & eeg's a pediatric neurolgist diagnosed her with epilepsy enduced by body temperature. She is now on her 5th medication because of reactions to the others but we are still hopeful to find the right one for her. We were told that it does not matter how high the temp goes but how quickly it increases. It throws the neurons in the brain for a tizzy, my words not the dr's, and her body reacts with the seizure because the brain doesn't know how to cool down quick enough. It is very frustrating and it boggles my mind that her twin brother and her other brother have no indications, thank God, but it is odd to me. Our neurologist suggested giving motrin the first sign of a fever, even low grade, and cool cloth's but they also gave us a suppository of valium specifically based on her own body weight, it is to be given if she has a seizure for 3 minutes and then it will immediatly stop the seizure. It gives us some comfort having that with us all the time. I also got a small backpack that I keep a thermometer, motrin, a bottle of cold water and a washcloth, and her valium. We take it with us everywhere, even to the grocery store. We find that keeping her out of the sun on hot days and treating her right away when she is sick helps but also keeping her hydrated all the time just in case,. They say 4-6 ounces every 20 minutes on hot days or during sickness can help keep the body temp down. My thoughts are with you!
Julie

Tonia - posted on 07/11/2009

15

57

0

My daughter has had 3 seizures which she was hospitalized each time. The first one she had a fever. The second one she got a fever after the seizure and the last one no fever. They can not find any other reason so they say it is febrile. She is on Divalproex and has been seizure free for 1 1/2 years now. We carry diastat just in case. The first one we thought we were going to lose her. Too scary!

Karen - posted on 07/10/2009

3

13

0

My daughter had her first Febrile fit when she was 2. I was scared it was Epilesy as I suffer from this and it can sometimes be heireditory,(excuse the bad spelling), thanks heavens it wasn't epilepsy, I was told it was febrile fits and she would grow out of them when she was around 6 years old.



I think my daughter has had 4 fits, it doesn't matter if its the first or the 100th fit, they all seem as frightening as each other.



You say your daughter has had 4 now, have you considered that when your daughter gets a cold that she is older since the last fit and may need more Calpol? I know i made that mistake once and my daughter ended up fitting.



I don't know if it's ever been explained in simple layman terms why your daughter has these fits but a paramedic explained it to me once as the part of the brain which controls the body temperature is not fully developed until you're around 6 years old and the only way a child can let out body heat is having a fit.



I hope this helps you, I know how frightening it can be, all I can say is i know it's hard but bear with it, it won't last forever and you'll come through the other side smiling



Karen

Andrea - posted on 07/04/2009

31

37

0

Yes unfortunately :( My 13mo. old daughter takes Febrile Seizures, as well as just plain 'ol outta the blue Seizures that we can't seem to find a reason for...



She takes Keppra 2x daily tho & since shes been on the Keppra her seizures have gone from Grand Mal(ish) to Partial Seizures...



Dunno if that helps - but it's our story :) *best of luck 2ya hun*

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms