aussie mums....

Alexis - posted on 04/28/2009 ( 8 moms have responded )

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hi just wondering if their are any mums in sydney that have little ones with epilepsy.... would love to get together for a chat......

im trying to start a support group for families who have children with epilepsy.... i have the backing of my pediatrician and epilepsy action..... the support group that i am starting will run for 8 weeks with an orray of topics.... i have guest speekers and child minding.....we will meet every tuesday at quakers hill in western sydney.... from 10 till 12....

after the 8 weeks we can continue to meet and support eachother....

email me at...... lifes_little_wonders@live.com.au

love to hear from other mums.....

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Alexis - posted on 06/09/2009

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hi kate, it can be scarry to witness a siezure, especially that of a child.... the more awareness their is out there hopefully the less scary it will be....thats great that you are working towards your passions..... kids are role models as they somehow manage to get back up and go..... they accept themselves and others where others dont ......

keep in touch... alexis

Kate - posted on 05/29/2009

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Hi Alexis,just looked in to see how you were doing and it looks like you are getting some great interest!!! Funnily enough they got EPV down to our Disability Class and for all local disability workers.Lisa Khune ra the Ballatrat and district part of EPV so obviously she was a great source of info.... But Lisa got me to speak and often about my embarrasing seizures as a source of understanding to those who hadn't really witnessed a seizure. So Alexis I can happily tell you that the wheels of information are turning and becoming public. My real passion hwvr is kids and I am doing my placement at the moment in an early intervention kindergaten. Half the children are role models with the other half being special needs.... It is both rewarding and challenging as you can imagine! Talk Later Kate!!!!!!

Alexis - posted on 04/30/2009

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hi sam i recieved your email...

jacob was diagnosed in 2006 and i cant believe their still isnt a support group out there....would love to see you there.....

alexis

Samantha - posted on 04/30/2009

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Alexis! You are wonderful! I asked Epilepsy Action a while ago now if they had a support group and as you would know, they didnt! Would love to attend, i go to a Parenting Extraordinary Children Group aswell, but i think a specific group would be great! I will email you asap, Sam

Alexis - posted on 04/30/2009

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hi kate,

thanks for the vote of confidence, i do eventually want to get into adolescents with epilepsy and adults etc,,,, but at the moment im going to concentrate on the kiddies,,,,

i never drempt that i would be so interested in this disorder, but the more i look into it the more fascinating it is..... i do hope that i can help to make a difference, just for other families to know that someone out there is willing to put time into helping support them......

Kate - posted on 04/30/2009

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Hi Alexis, I think its great what your doing for families in the Sydney region. Don't forget that there are kids out their who have to put up with their own Mum's epilepsy so try not to disclude this group... It is more common than you think!!! I'm studying Cert 4 in Disability at Tafe and would love to make a wonderful difference in the education of Epilepsy. Particulaly for the young one's as there is not enough support. I have 4 great kids of my own and my daughter last week was luckily cleared of suspected epilepsy after what looked like tempral lobe activity on both sides. My children only have to contend with their own mothers poorly controlled Epilepsy due to two inopperable scars on my right frontal temporal lobe caused by infantile ferbrile convulsions. I was lucky enough to have no symptoms at all from 2yrs until 16 so school learning was not really affected!!! These are real issues for our kids.

Good Luck, Kate, Warragul, Vic

Alexis - posted on 04/29/2009

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hi lauren,

thanks for that.... its nice to know that people are interested.... their is a big need for support groups.....i will definately keep you posted.....

alexis

Lauren - posted on 04/29/2009

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Hi Alexis, I'm living in Melbourne now (originally from Sydney) but what you're doing is fantastic. I'd love to hear how it all goes.



Lauren.

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