Monica - posted on 06/24/2009 ( 10 moms have responded )
My son was diagnosed with autism at 2. I saw what I believed to be grand mal seizures around the same time. The doctors never took me seriously and told me if I had no proof on video and they couldnt catch it on an eeg there was nothing they could do. At same time though through brain MRI they found arachnoid cyst in front left lobal part of brain. At time they told me it was harmless and to put it out of my mind. Fast forward 5 years, new neurologist, new tests. He was given a sleep deprived eeg and found to be having seizures in succession one after the other. The doctor said very likely the cyst can be causing them, but that the autism diagnosis, epilepsy and behavior problems from cyst all are seperate but working together are the perfect storm of problems to make this something he will quite possibly be living with forever. We are now on our 2nd round of meds, tried levital?first with extreme mood swings, only lasted a week on that one. Now he is on depakote but we are noticing alot of hyperactivity and alot of his autistic behaviors he seems to grow out of like flapping his hands and making strange loud pitched noises are coming back full force. Can anyone out there relate to this or have been through this or happens to have a child with all these same diagnosis and experienced the same side effects with seizure meds? And if so any advice, my son is 7 years old right now and having such a hard time.