Babies with febrile seziures

Myranda - posted on 01/05/2010

I have had all three of mine with febriles but my oldest never had a fever when they said it was febrile. He was later diagnosed with an unknown seizure disorder and put on phenobarbital. I could not stand seeing my 3 year old stumble around so I volentarily took him off. He has not had a seizure since but I am always on the look out. In fact he has not been ill enough to go to the doctor until this year when he got H1N1 and stayed out of school for a week. He kicked it in 3 days. What an immune system.

Charlene - posted on 01/02/2010

I can sympathize with you. I had 2 kids with seizure disorders - and I NEVER got used to it. It is very scary. And...yes, they do outgrow this as a general rule. Our son had frequent ear infections & inevitably he would develop a fever, which would lead to seizures. The first time it happened it was terrifying. We were told by the pediatrician that he would outgrow it by 6 years. He had his last seizure at 6. Our daughter took much longer unfortunately, but is now being weaned of antiseizure meds, with no problems. Be encouraged. This, too, shall pass.

Rhianna - posted on 12/29/2009

my son has febrile seizures. he had his first one when hes was 6 months old, and gets one now when ever his fever hit 103.5. unfortunately he has other underlying medical conditions that cause his me get fevers quit often due to infections. he has had over 20 seizures in the past 7 months. it is the most scariest thing, at first, but now, i know what to do and i know that they are not life threatening, but his infections can be. so its a trip to the hospital every time we have one!
we are planning eeg and CT scans in the near future just in case sorta thing.
i finad the calmer that parent it the better the child handles these seizures. dont feak out, stay calm and collected. and KNOW WHAT TO DO!

Stacey - posted on 12/28/2009

My 4 year old daughter has had 14 febrile seizures since she has been 15 months old. Her last one was in Feb., she has had a few fevers since then and hasn't had a seizure. She has had 2 eeg's and 1 CT scan and they have all came back normal, I am hoping that she has out grown them. but everytime she gets a fever I alternate between advil and tylenol.

Flo - posted on 12/18/2009

She was checked out for the first one. And she has rutine EEG's because of her brain damage. She has started to have regular seizures but they don't show up in any EEG yet. Still trying to figure it all out.

Stephanie - posted on 12/16/2009

My son at 9 months old had a "febrile" seziure and had to be taking by abulance to the hospital. I was lucking to have a great dr. that sent us to a nero right away. After his EEG we found that he is epileptic and has focale seizures and most likey had been having them since a few months old. He does tend to have "generalized" seziures when he is sick. He will be 5yrs old next week but have been seizure free since March. It never hurts to have her checked out to make sure it is truely just a febrile seziure.

Flo - posted on 12/06/2009

The first seizure my grandaughter had was a febrile seziure. Scared me to death! She had a fever of 104 and she was vomiting everywhere and her arms were twitching. The first one lasted the longest. about 5 minutes. After that, the ones she had only last a few seconds and are hardly even noticable.

Valissa - posted on 12/02/2009

my son was getting febrile seizures, which is suppose to be common and has a slight chance of turning into epilepsy. I was told not to altenate between tylenol and anything because it can be hard on their livers, but you can definately ask your doctor about their opinion. I was told to give tylenol every four hours on the dot, but it will not stop a seizure. its suppose to be the spike that causes it, not the fever itself. I was givin guidelines for my son. if his seizure went over 5 mins call 911, if he had mre then one in a 24 hour period call 911, and if it takes him more then an hour to come back call 911. he had grand mal seizures which are the full body ones, but their are other seizure types as well, so taking note of all seizures and any very weird behaviour such as zoning out and you can't get them back is a good idea. if you can they should be seen by a neuro doc and tests be done if they think anything is off, just to make sure the brain is working properly. talking to your doc will help and get you the info you need. all children are different so things may be different for you. the first couple times are definately the most scariest, it does get a little easier, ecspecially if you know its going to happen. i went with the thought that he was going to have another one and i was prepared when he did. but it was the worst time of my life. she should grow out of it, be strong. it might help to find as much info as you can about it. hope this helps you out a little.

Megan - posted on 11/29/2009

my youngest daughter had her fever seizure exactly 1 year ago today... she was 11 months old and she was teething which caused the fever, and w/in an hour she went from 99.8 to 103.0 temp... my husband put her in a luke warm bath till the ambulance arrived. For the next 2 days she slept w/ cool washcloths on her body, and we alternated tylenol and motrin, so she was getting one every 3 hrs... She has not had another one since, but whenever she is getting a tooth, runny nose, or any sign of something, we give her half the recommended dose of tylenol, just to stay on top of any chances of a higher fever... but i have 5 kids and she is the only one who has had this happen... Good luck and God bless u and ur daughter!!

Bobbi - posted on 11/29/2009

Two out of the 4 of my kids had them and my oldest son grew out of them around 8 yrs old.My daughter wasnt so lucky. she had a grand mal in the middle of the night and had a stroke.If the ER Dr would have had checked it out a little further and not mistaked it for a febrile sezier with the first one when it was the beginning of epilepsy,her turn out might of been different then what her life is now. Once you notice her getting a fever rotate tylenol and IB uprofen every 3 hrs. If its a low grade fever try cool rags on her head, or a luke warm bath every 20 mins,20 mins at a time. But I would see a nurologist and ask them for a single dose medicine called diastat acudial or something like it. I have it for my daughter if her seziers last for more then 5 min. Make sure hers dont last over that cause of lack of oxigen to the brain. Good luck to ya girl.have any questions ask

Danica - posted on 11/28/2009

Thank you everyone for their replies! It has helped a lot. Sarah is response to your questions: The seizures are not that often only when she gets fevers. She isn't diagnosed with an infection the doctors mostly say it is a cold virus. She is still teething and she does get fevers from that. The doctors gave me diastat to give but only if the fever is lasting for more than three minutes.

Sarah - posted on 11/23/2009

At one point my daughters neuro doctor called her seizures febrile, and she actually ended up having epilepsy. Her last break-through seizure was called a "febrile" seizure by the ER doc who did not even order us to follow up with neurology only the pediatrician. I called and set an appt with neuro anyway. I explained to neurology that Aneesa had not had a fever all day at the health care facility she goes to. She did not have a fever when I took her off of transport 10 minutes before she seized. I questioned if there was a possibility that the seizure brought on the fever and low and behold the neuro doc agreed.

I am not trying to scare you other moms out there. Just keep an eye on the whole pictue. I suggest keeping a note book. Write the seizure start times and end times. Write down if it there were convulsions or if it was just an abscent seizure. Write down if one side of the body was twitching (what side and what body parts).

If it is something that happens pretty frequently and seizures last a long time maybe the doc can give you something to stop the seizure.(emergency anti-convulsant).

Asking questions never hurts, and if you have a good doctor they will be understanding that you are just being a good mom.

How often does your daughter have seizures? Is there always an infection found? How long are you supposed to let a seizure go for?

Helen - posted on 11/22/2009

Hi Danica my 3 n a half year old daughter had a febrile seizure a week ago and like u said it was the most scariest thing i have ever seen. She had the seizure because her tempreture soared. Even though she has epilepsy the seizures she has are nothing compared to what i saw when she had the febrile. As the previous posters said they do grow out of them. x

Samantha - posted on 11/21/2009

hi there my names samantha i have a 6 yr old boy who suffered frm febrile convolsions whn he was little and thy r the most scary thng in the world becos u feel so help less but frm my experiance thy do grow out of thm but if ur really worried take her 2 the doctors for tests becos like anita sed thy are suppost 2 grow out of thm and my son didnt and has been diagnosed with epilepsy and u can nevr be 2 careful whn evr my son had a fevr we all used 2 camp out in his room and we still do nw x

Anita - posted on 11/21/2009

Hi Danica! My girls are now 18 and 21 but both had febrile seziures. Here's the good news....they out grow them! My peditrician told me that by the age of 5 that their brains have developed and grown enough to the point that they can handle fevers. I just had to be on my game at all times! First of all I watched my kids like a hawk. Any sign of a fever...I'd take their temperature! I kept a digital themomater in my purse, kitchen, bedroom etc! In addition I always kept Childrens Advil and Tylenol on me at alll times! Trust me....it DOES GO AWAY AND GETS BETTER!