Alexa - posted on 07/05/2010 ( 35 moms have responded )
Hello all, I'm pretty new to the group. My son is 2 years old and was diagnosed with a neurological disorder that causes his seizures. We found out he had seizures when he was 1 year old. The neurologist started him on Keppra which worked for a while and then he started back up with the seizures. We tried Topomax buy my son had a horrific reaction to it, violently vomitting and terrible behavior issues. We then started Phenobarbital and that helped for the first month. After that, it didn't work. Now, my son is on Keppra, Phenobarbital, and the neurologist added Benzal. I'm not sure what to think. We were referred to a epilepsy specialist who wants to do an overnight hospital stay to perform a video EEG. This will be tomorrow. I just don't know what to expect or think as it seems that they are having a hard time controlling his seizures. How long did you go before your children's seizures were under control? Did you have a Video EEG and did that help? What can I expect? I'm just so frustrated to see my son struggling and his development is so far behind because of his seizures (he is 2 years old and cannot sit by himself, crawl, or walk). I'm really need some insight and support. Thanks so much!