Jesse - posted on 11/26/2011 ( 5 moms have responded )
My daughter had her first Grand Mal seizure about 2 years ago. A year and a half passed by before her 2nd occurred and she is now taking Keppra to treat the seizures. All the testing that she's been thru show normal results and don't show the cause at all.
Even before she had the first seizure, she's had these strange "sleep walking" like episodes. They are hard to explain, but she seems to be awake, however, very confused and some times talking about things that are not there at the time or that are not happening. Two nights ago, she woke up hysterically crying and could not be consoled. I couldn't understand a word she was saying and she didn't seem to be completely alert, although she knew where we were. I'm not sure if maybe she awoke after a seizure, but I never heard any noise at all on the monitor we use to listen out for her. When I tell the doctors about these episodes, they don't really seem to be too concerned since the sleep studies have come up normal. I'm convinced they have to be related some how to the seizures, or may be a different type of seizure.
Trying to see if anyone else has had similar situations like this. And also if anyone has any recommendations on books that describe different types of seizures and symptoms or any other useful resource information.
Also would like to know if someone who has experienced a seizure can describe to me what its like and how they felt when they woke up. I don't mean to pry and be personal, but its hard for my daughter to explain since she's not sure how she feels and I believe knowing what its like would be extremely helpful.
Thank you so much for your time.