Jodi - posted on 08/01/2012 ( 2 moms have responded )
I'm a basketcase and am finding a great deal of peace reading through the threads of conversation on this site. Just knowing that you all are out there is providing me with the ability to breathe a bit deeper. My just turned 6 year old daughter started having absence seizures at some point over the past few years, but were increasing in frequency and strength over the past months. She stops, stares, roll/twitters her eyes upwards and comes back without much confusion where she left off. I find myself super tuned into them...I think she is in a blank seizure state far more often than we realize though...but neither of her two teachers even noticed them. Her first eeg showed abnormal localized brain activity in the left frontal lobe with no spread to the rest of her brain, even when triggered with typical epilepsy triggers. We were rushed to Childrens the next week where they did another eeg and provoked the triggers further. WIth this reading, the pedi neuros were able to see spread to the brain and diagnosed her with complex partial epilepsy. We started Clobazam in 10 mg for the past two weeks and are increasing to 20 mg today. Initially, I thought I saw a decrease in frequency, but the last few days, she seems to be having a ton in the morning in particular. I guess we'll see what the increase does. I have noticed that she is more out-of-it, although I think this may also be the medication effects.
I feel the strong need to connect with you all. Just knowing that you are fighting similar battles is helping me today, and will continue to, I suspect....